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nderendinger

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Reply with quote  #1 
Here are questions I think we can help each other with:
1) How old were you when your tinnitus and/or hyperachusis started?  Any Details that might be helpful?
2) Do you have some underlying conditions that you think maybe related?  Or was an injury the start?
3) Are there any medications that help your tinitus or hyperachusis?  Either over the counter or prescription?
4) Are there any ear devices that have helped?  From Headphones, ear phones, to ear plugs and under what circumstances do you use them?
5) Is there any noise that is best for masking or even providing relief to your tinnitus or hyperachusis? (the experts talk about pink noise, have you tried it, what was the result?)
6)Have you used any other devices, that are not for the ears to relieve the issue? (example Night Guard for TMJ?)
7) Do you know of any young children that seem to have hyperachusis in your eyes that you think might have been assumed to be on a bipolar perspective?
8) Has anyone tried a surgical treatment?  Can you describe the result?
9) Is anyone shocked at how people are just supposed to accept this condition as normal?
10) who are you most grateful to who has helped in this journey?

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My answers:
1) How old were you when your tinnitus and/or hyperachusis started?  Any Details that might be helpful?  Feb 2017, I was 54.  Started suddenly in a quiet room.  The hyperachusis started the next day after a train blew it's horn causing pain that lasted for 2 hours.  Soon minor sounds were causing pain and tinitus was constant.
2) Do you have some underlying conditions that you think maybe related?  Or was an injury the start?  I have several underlying conditions and may have another new one starting just as suddenly but not diagnosed yet.  Nothing seems related, except TMJ.
3) Are there any medications that help your tinitus or hyperachusis?  Either over the counter or prescription?  I take Lipoflavinoid Plus and Vit A from 2 to 3 times a day, I also take zinc, selinium and at the advice of the ENT doc advil for the TMJ, zyrtec generic and psuedofed.  The ENT doc predicted that after using the bite block, I would not need the Lipoflavinoid and Vit A, but that has not been the case.  This is the only consistent solution to my pain and ringing.
4) Are there any ear devices that have helped?  From Headphones, ear phones, to ear plugs and under what circumstances do you use them?  I only use ear plugs or musicians ear plugs in meetings with microphones or loud people.  These are no good for a silent room but are helpful for a loud room.  I use noise canceling ear phones (not plugs due to sensitivity).  Please note I only use this for temporary relief because it can cause your symptoms to get worst when used all the time.  A good time is noisy situations that you don't need to pay to much attention to.  A soft headband ear phone set is great for getting to sleep.
5) Is there any noise that is best for masking or even providing relief to your tinnitus or hyperachusis? (the experts talk about pink noise, have you tried it, what was the result?)  I have to have melodic music, gentle pop, noise app: fav is fire, thunder and rain mix, even a calm app story.  (Pink noise only causes me pain.  It's not for me.)
6)Have you used any other devices, that are not for the ears to relieve the issue? (example Night Guard for TMJ?)  I have used a night guard.  My TMJ seems better, but I still need my daily meds.  However to be fair, sometimes the night guard comes off during the night.  So it does not get plastic nasty, I not only clean and brush it, I use Act cinamon mouth wash to make it palatable in my mouth.
7) Do you know of any young children that seem to have hyperachusis in your eyes that you think might have been assumed to be on a bipolar perspective?  Not directly, but I often wonder about the children I see in the community and how upsetting this issue is and how no one who doesn't experiece it seems to get it.
8) Has anyone tried a surgical treatment?  Can you describe the result?  no, but I've had a medical massage person work on the TMJ a bit with some success.  Very highly recommend medical massage even above chiropractor if you can find one practicing.
9) Is anyone shocked at how people are just supposed to accept this condition as normal?  I was.  
10) who are you most grateful to who has helped in this journey?  There is a poster here who said she used the otc meds successfully above.  I believe her name was Ann but I'm not sure.  I just was desparate and tried her solution and it worked.  You have to keep up with it but it is a real total relief once built up in your system.  I hate taking meds but the alternative is awful.  One word of caution that she specified as well Vit A in not water soluable so consult your pharmasitst or doctor for how much to safely take in a day and intervals.

Again, this is not the advice of doctors, but what has worked for me.   

Thanks,
Nancy

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