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jjtutturu

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Posts: 8
Reply with quote  #1 
Hi everybody,

Sorry for all the posts, I was just wondering if anybody knew of any positive testimonies from TRT clinics in BC? Like St. Paul’s hospital, or Ossicle Hearing in Kelowna or Nexgen hearing in Saanich? Any advice would be much appreciated.
I’m trying to decide whether to go to a clinic or to try the CD on my own from this website.

I have already tried 5 months of TRT from Soundidears in Vancouver, however I don’t believe it was really TRT and more of a pink noise sensitization, as the noise was far too loud and it made my T and H worse.



Thanks,
Jacob
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Margy

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Posts: 184
Reply with quote  #2 
I’m curious: Did Soundidears call the therapy TRT?

Their webpage didn’t say anything. It sounds like you had pink noise therapy which was too loud, which is not TRT, as you pointed out.
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jjtutturu

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Reply with quote  #3 
Hi Margy,

I am filled with such hope and joy to be able to discuss this condition with people. It is such a wonderful community here! Thank you for your reply.

Yes Carol at soundidears did call it TRT and she claimed to have been following Jastreboff’s teachings, however, she was very insensitive and to be honest quite rude. She never answered my questions regarding my fear of certain symptoms or sounds and she always said she only has so much time and that I just need to calm down. The generators were far too loud and I do believe you’re right about the pink noise desensitization not being TRT. I wish I knew all of this before hand however, I can only take what I’ve learnt and try my best to move forward. I am thinking of trying Glynnis Tidball at St. Paul’s. I am just concerned about how long I might have to wait.

Here is the link to the claim that it is TRT: https://soundidears.com/what-we-do/tinnitus/tinnitus-treatment-services


Thanks again so much,
Jacob
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Margy

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Reply with quote  #4 
Hi, Jacob;

Yes, this condition is really difficult partly because the professionals you go to usually don’t understand about it. So often we go through the problems of finding someone, only to find that the visit did more harm than good. Personally, I can say this site taught me a lot, and then I could read further with more insight. ( but although I have learned a lot, there are still questions in my mind.)

About the TRT that “soundidears “ described on their website: it was exclusively about curing tinnitus. There are some practitioners who understand both hyperacusis and tinnitus, but it sounds like this place only understands how to treat tinnitus. Even though they mention the word hyperacusis, they don’t actually talk about treating that. They are used to patients who don’t have sensitive hearing, so they are likely to set the devices too loud and also not have patience for hyperacusis problems.



There are some people out there who do understand what hyperacusis is like; it’s just hard to know who they are. But a recommendation from someone who knows hyperacusis is the one to follow.

Good luck!

Margy
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jjtutturu

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Reply with quote  #5 
Hi Margy,

Thank you so much for all of your kind words! I spoke to a Dr. Tidball over e-mail and she explained what needed to be done to get into her clinic. I’m seeing my family doctor today to get the necessary information in and get a referral to her. They say the wait is about a month. So I guess things could be worse!

May I ask where you are on your journey?

Thanks,
Jacob
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