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Willie

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Posts: 4
Reply with quote  #1 
Hello!
I have had severe hyperacusis for about 8 months now. It is a little better than in the beginning but not much. I can not have a normal conversation without much discomfort. But at least I can listen to soft music at a low volume for a while most days. 

I have not isolated myself since getting hyperacusis even thou I feel like doing that most of the time. But i do spend quite a lot of time at home because of other healthissues. I am outside every other day if I am in good shape.

Outside I don´t wear earplugs and I can stand background sounds good most of the time, except really loud sounds like Harley Davidsons of course. Then I plug my ears with my fingers for a while. Also some birds are hard to tolerate but I try to get through it. The biggest trouble I have is with  conversation. Human voices are really sharp to me.

I have read a lot about hyperacusis and it seems that the best thing to do is to not be in quiet for too long. So I have started listening to naturesounds and trying to  add more music back in when I am at home. I plan to find a practioner who can help me do sound therapy in some form, but it is hard to find one here in Sweden where I live.

I am not sure how much sound is actually good in the beginning. So I wanted to ask if you think this is a good plan. The plan is more or less to have sound all the time at a low volume so as not to worsen my sensitivity.

My days are as follows if I am indoors: 

1. I get up and listen to the radio while I make and eat breakfast.

2. Then I sit at my computer and write for 2-3 hours before lunch. While I write I listen to naturesounds on youtube through a hi-fi system in my living room. Mostly from the channel Relaxing White Noise. 

3. Then I make lunch and while I do it I listen to some music that I like at a low volume and most of the time I have the kitchenfan i the background too. A sound I find soothing.

4. Naptime.

5. In the afternoon I often listen to naturesounds for a few more hours while I write or do a bit of this and that.

6. With dinner and after dinner I watch TV at a low volume even though I have a bit of a problem with the sound. But I can not imagine living without watching TV. I have the TV connected to my hi-fi system so the sound is as good as it gets I guess.

7. At night I sleep with earplugs. I know I shouldn´t. But I have done this for 12 years and have not been able to stop. I wake up easy and if my girlfriend is up longer than me, she wakes me and I don´t get enough sleep. 

So it adds up to maybe 4-6 hours of naturesounds. Is that too much? Do you think this is a good plan for the time being? 

(I think it is hard to know what aggrevates the hyperacusis but the things I know for sure is talking on the phone and that kind of tinny sounds. But most sounds are hard to be around, except for ambient background sounds really. And I have a fullness and kind of dull pain in my right ear all the time som hard to tell what makes it worse sometimes.

I also get quite sore in my ear after talking to people, both because of their voices but also my own which I have a hard time tolerating. Sometimes talking gets worse the longer the day goes and sometimes slightly better. So it is sometimes hard to know what is bad.)

Thanks!


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DanMalcore

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Dan
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Reply with quote  #2 
Quote:
So it adds up to maybe 4-6 hours of naturesounds. Is that too much? Do you think this is a good plan for the time being? 


It is not too much but let me make a few suggestions.  The routine you are on lacks some important elements.

1) You have not been to a trained clinician who can calibrate your level of decreased sound tolerance (DST), can track your progress and guide you through DST successfully.

2) Properly administered sound therapy involves gently increasing the volume of sound over a period of time so your tolerances improve.  The best way to do this is by working through a clinician trained to treat hyperacusis.  If that is not possible during these challenging stay-at-home times then at least consider pink noise therapy available through the network that comes with a 6 page guideline on how to proceed.

3) You need to work at eliminating earplugs at night unless there is thunderstorm.  Earplugs all night starts your day out with your ears being sensitive and can negate any progress you are making on building your sound tolerances during the day.  Also, if it sharing your bed with someone else tends to wake you up, sleep alone.

4) When you consider the impact this is having on your life, be proactive and do this the right way.

[wave]Dan


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JW

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Reply with quote  #3 

Thanks, Dan.

Willie, I responded to your other post. The way you describe hyperacusis is very similar to mine. So lets keep each other posted!


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Queenmacha

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Posts: 59
Reply with quote  #4 
Hi Willie, I've had Meniere's Syndrome (which includes Tinnitus, Hearing loss, loss of balance) and I have had Hyperacusis since 2001/2, and have went though the mill looking for cures, I e Sensitiving etc,plus others.  None of them worked permanently.  So, now I'm just getting through each day as it comes, and deal with "H" challenges as they happen.  If I see a particular problem, which I think could be dealt with from the many "solutions" that I have experienced , then I will use it. But more often than not, I have to think "on my feet".  That policy seems to be working overall, as I'm able to face things head on, plus reading Hypeacusis Newsletters shows some really brilliant people on here, and I have benefited greatly from them .  Thank you all.  Joe (queenmacha)


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