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SalFaz

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Posts: 71
Reply with quote  #1 
Has anyone had any luck with low gain hearing aids that effectively screen back frequencies you're sensitive to and are programmed around your LDLs? The device I am supposed to be trialing soon also has a setting to play pink noise, so it can act as a TRT device. Few things I'm wondering about:

1. If I use the hearing aid setting, sounds will come into the ear very close to my ear drum. And of course they have to be set to an audible volume. Does this present any risk to me? I imagine I'd want to only do short increments of time 

2. For the pink noise setting, I'm assuming I still ease in, just like what the H Network recommends?

3. For programming the aids, LDLs have to conducted through the aid into my ear canal. Is this possibly dangerous?

I gather that this device is very similar to what the florida hyperacusis device trial is... 

https://hyperacusisresearch.org/hyperacusis-device/

Thanks!
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darryl61

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Posts: 23
Reply with quote  #2 
Hi SalFaz,
Where did the device come from?

1. The person setting you up should be the expert. I have read that some people with hyperacusis cannot tolerate the sound so close to their ear drum.
2. The person setting you up should be the expert.


3. I had my LDLs tested in February this year. I think my hyperacusis and tinnitus got worse. Could have been a coincidence. I would NEVER do it again. It is so subjective because now I would be saying STOP way before I got to what level really feels uncomfortable. This reaction would schewe the results. The audiologist I am consulting with now does not do them. 
 
Darryl

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Darryl
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darryl61

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Posts: 23
Reply with quote  #3 
And regarding "experts", I had an audiologist tell me not to wear hearing protection unless exposed to 85db for 8 hours. If I was exposed to 85db for 5 minutes my tinnitus would be screaming for who knows how long, probably for days! I tried to make him understand and I all I got was silence like I am nuts. 
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Darryl
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phacker

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Posts: 143
Reply with quote  #4 
My recommendation is not to do the Flex-Trial hearing aid unless it is a trained audiologist in TRT for hyperacusis.  Audiologist who fit people with standard hearing aids typically have no clue how to handle someone with hyperacusis. The audiologist who is fitting your hearing aids/noise generators/frequency damper should answer your questions.
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goodfella032

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Posts: 19
Reply with quote  #5 
The Florida trial device is just a miniature in ear version of hearing muffs that already exist that allow you to amplify and/or adjust low level sounds and has a threshold for suppressing noises at or above a certain decibel level (See peltor tactical pro ear muffs). Definitely would be a great device if and when all the bugs are worked out, allowing sufferers to not worry about the next unexpected potentially damaging noise. That being said, I wouldn't want to be the lab rat while they figure it out. Just too much risk. I would definitely be a buyer of the finished product though.
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