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Aklara

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Posts: 3
Reply with quote  #1 
Hi everyone,

I’m a young man (23) living a nightmare. Last year I flew while sick and experienced sharp pain during landing. Couldn’t hear well for a few days, but that cleared up. Experienced some ear thumping when I yawned a few weeks later—no pain.

I went to a nightclub about a month later and walked out with a battery of severe symptoms. I have tinnitus and extreme ear pain. It’s not in any way moderated by external sound. My ears (mostly left) feel full with a dull ache around the TMJ. I get severe pain and a tugging sensation inside my ears, which is worsened by talking. I feel tugging when I smile or raise my eyebrows. My ears flutter after percussive sounds, if I touch my face around my left ear, and at the end of sentences when I talk. It has been 11 months now...

I don’t know what’s wrong with me. Please help. I don’t know what to do and am very desperate. Thanks.
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MattR

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Reply with quote  #2 
Quote:
Originally Posted by Aklara
Hi everyone,

I’m a young man (23) living a nightmare. Last year I flew while sick and experienced sharp pain during landing. Couldn’t hear well for a few days, but that cleared up. Experienced some ear thumping when I yawned a few weeks later—no pain.

I went to a nightclub about a month later and walked out with a battery of severe symptoms. I have tinnitus and extreme ear pain. It’s not in any way moderated by external sound. My ears (mostly left) feel full with a dull ache around the TMJ. I get severe pain and a tugging sensation inside my ears, which is worsened by talking. I feel tugging when I smile or raise my eyebrows. My ears flutter after percussive sounds, if I touch my face around my left ear, and at the end of sentences when I talk. It has been 11 months now...

I don’t know what’s wrong with me. Please help. I don’t know what to do and am very desperate. Thanks.


That sounds like some issues with your inner ear muscles. Most likely the tensor Tympani muscle. You should research tonic tensor Tympani syndrome. I'd also recommend perhaps contacting Myriam Westcott, and audiologist from Melbourne, or at least look at her clinics website. She's done some research on the middle ear muscles and will probably be more helpful than most audiologists or ENTs.

It may be something else, but the tugging feeling and tensing up sensations from touching your face closely resemble Tensor Tympani issues.
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Aklara

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Posts: 3
Reply with quote  #3 
Thanks @MattR. I appreciate the help.
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ybbest

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Reply with quote  #4 
I would suggest to see Audiologist first. In the meantime , do not expose yourself into loud sound environment. 
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Queenmacha

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Posts: 48
Reply with quote  #5 
Hi,  I would love to be able to give you technical advice, but being layman, with Hyperacusis, Tinnitus, Hearing Loss all I can say to you is you have joined the right organisation to vent your problems, and to find someone who can point you in the right direction for solutions, (looks like that has already happened), Good Luck
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joe mc gahan
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Steve2017

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Posts: 145
Reply with quote  #6 

Aklara there must be so much stress in your body - we've all been there with stress - but you're still young yet... I'll just remind again on here for new people - I have been researching for two and a half years now, 'positive energy to self heal' and 'the power of your mind', some information in my past posts on here...

While waiting to see any specialists, you have to let go of stress or fear and start thinking positive thoughts while you are awaiting any appointments - the body has an amazing ability to self heal with the power of your mind. Make sure while you are waiting for docs etc you learn to relax - and yes you'll get people say just see specialists, but you should have seen some of the health issues ive come across where self healing has sorted different problems - start by deep breathing, meditation for 15 mins, and let go of any bad thoughts, and research power of the mind.

Just one other thing - make sure screen brightness is sensible on devices and not on charge while holding.


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s simpson
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Aklara

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Posts: 3
Reply with quote  #7 
Hi all,

I'd be very grateful for your thoughts. You really helped the last time and I’d love to connect with people who’ve experienced similar symptoms. It's been nearly a year since I went to the club that gave me a barrage of ear problems. 

Where things stand now:
-My dentist noticed that I have an anterior open bite. I am now seeing an orthodontist. Seems unrelated, but who knows?
-An excellent neurotologist was able to record my middle ear muscle spasming. He placed a microphone used for acoustic reflex testing in my ear and banged a metal rod against a lamp. Spasmed audibly each time. We tested it against my "better" ear, which did not respond to the sound, and to my normal acoustic reflex test result. He suspects a dysfunction of my middle ear muscles (specifically, the stapedial) and gave me the option of surgery to sever the tendons. Could not definitively say how this happened (people fly sick and go to clubs all the time) and confirmed that it is very rare. I opted to wait for now.

What should I do from here? I want to make sure that there's nothing else causing the muscle spasms. The only things that worsen it are certain head positions, talking, and, oddly enough, my (unrelated) wisdom teeth extractions.
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smuth

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Posts: 11
Reply with quote  #8 
Hi

I had simular symptoms, i would not go for any surgery before trying sound treatment / TRT. Seems like hyperacusis symptoms, for me it took many years to resolve. Your have to retrain your brain and it takes time. Pain makes you afraid of sounds, you have to overcome that, and change you thaughts, then you will see improvement. You can contact me if you want any advice.

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Steve2017

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Reply with quote  #9 
I think I may have put some of this on here before, but just in case anyone's missed it, here it is again... ive just delivered this same letter, recently updated to my local NHS T department here in town. I wish someone had told my several years ago to research the Power of Your mind.

-------

Help with Tinnitus - using the 'Power of Your Mind'...

Try to get rid of worry and stress now, thoughts increase tinnitus, so live happy and think good thoughts, and research and print off information on The Power of Your Mind.

Be aware of too much screen time, also brightness on screens, when brightness is lowered eyes will adjust - also any mobile or tablet that has a battery enclosed, I wouldn't use to ear, or handle when 'on charge' - also putting a phone while on charge under your pillow, just don't do it...

All this helps my tinnitus after many years, which is now reduced.

Allow an hour for this, maybe in the afternoon or evening - find 3/4 small jobs to do write them down ready so you can clear your mind of them, 'then' go and rest for 10/15 mins, rest your mind, nice deep breaths, think of nice things, eg eating your favorite food over and over - completely clear your mind of 'mental chatter' as it's called, you know like problems to solve, jobs to do, just rest, completely clear your thoughts to 'calm the mind' and reboot it.

Then after rest time, say to yourself 'ok get on with it' open your mind, raise your eyebrows slightly, move around sharply and get on with your jobs, and 'focus hard' on just what you're doing, and nothing else to remove 'mental chatter' - that's troublesome thoughts from getting into your head, just while you're doing your jobs... And when doing dishes and gardening, all good for calming the mind if you allow it to, again just think of just what you're doing.

Once you start to do this procedure 'daily' you should notice tin reduction about an hour after doing jobs - once you've practiced this on a regular basis, opening your mind to access 'the power of your mind' you should see a difference, and remember to breathe and relax when doing jobs.

When sleeping, take your mind away from the tinnitus, with thoughts of eating a nice 'zero calorie' chocolate walnut or lemon cake, neatly sliced into 8 pieces, or use your mind, and imagine riding a bike or flying around your local park - mind power it works.

Regards Steve - former tinnitus NHS patient.-


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s simpson
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