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Aklara

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Posts: 3
Reply with quote  #1 
Hi everyone,

I’m a young man (23) living a nightmare. Last year I flew while sick and experienced sharp pain during landing. Couldn’t hear well for a few days, but that cleared up. Experienced some ear thumping when I yawned a few weeks later—no pain.

I went to a nightclub about a month later and walked out with a battery of severe symptoms. I have tinnitus and extreme ear pain. It’s not in any way moderated by external sound. My ears (mostly left) feel full with a dull ache around the TMJ. I get severe pain and a tugging sensation inside my ears, which is worsened by talking. I feel tugging when I smile or raise my eyebrows. My ears flutter after percussive sounds, if I touch my face around my left ear, and at the end of sentences when I talk. It has been 11 months now...

I don’t know what’s wrong with me. Please help. I don’t know what to do and am very desperate. Thanks.
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MattR

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Posts: 10
Reply with quote  #2 
Quote:
Originally Posted by Aklara
Hi everyone,

I’m a young man (23) living a nightmare. Last year I flew while sick and experienced sharp pain during landing. Couldn’t hear well for a few days, but that cleared up. Experienced some ear thumping when I yawned a few weeks later—no pain.

I went to a nightclub about a month later and walked out with a battery of severe symptoms. I have tinnitus and extreme ear pain. It’s not in any way moderated by external sound. My ears (mostly left) feel full with a dull ache around the TMJ. I get severe pain and a tugging sensation inside my ears, which is worsened by talking. I feel tugging when I smile or raise my eyebrows. My ears flutter after percussive sounds, if I touch my face around my left ear, and at the end of sentences when I talk. It has been 11 months now...

I don’t know what’s wrong with me. Please help. I don’t know what to do and am very desperate. Thanks.


That sounds like some issues with your inner ear muscles. Most likely the tensor Tympani muscle. You should research tonic tensor Tympani syndrome. I'd also recommend perhaps contacting Myriam Westcott, and audiologist from Melbourne, or at least look at her clinics website. She's done some research on the middle ear muscles and will probably be more helpful than most audiologists or ENTs.

It may be something else, but the tugging feeling and tensing up sensations from touching your face closely resemble Tensor Tympani issues.
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Aklara

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Posts: 3
Reply with quote  #3 
Thanks @MattR. I appreciate the help.
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ybbest

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Posts: 19
Reply with quote  #4 
I would suggest to see Audiologist first. In the meantime , do not expose yourself into loud sound environment. 
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Queenmacha

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Posts: 45
Reply with quote  #5 
Hi,  I would love to be able to give you technical advice, but being layman, with Hyperacusis, Tinnitus, Hearing Loss all I can say to you is you have joined the right organisation to vent your problems, and to find someone who can point you in the right direction for solutions, (looks like that has already happened), Good Luck
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joe mc gahan
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Steve2017

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Posts: 132
Reply with quote  #6 

Aklara there must be so much stress in your body - we've all been there with stress - but you're still young yet... I'll just remind again on here for new people - I have been researching for two and a half years now, 'positive energy to self heal' and 'the power of your mind', some information in my past posts on here...

While waiting to see any specialists, you have to let go of stress or fear and start thinking positive thoughts while you are awaiting any appointments - the body has an amazing ability to self heal with the power of your mind. Make sure while you are waiting for docs etc you learn to relax - and yes you'll get people say just see specialists, but you should have seen some of the health issues ive come across where self healing has sorted different problems - start by deep breathing, meditation for 15 mins, and let go of any bad thoughts, and research power of the mind.

Just one other thing - make sure screen brightness is sensible on devices and not on charge while holding.


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Aklara

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Posts: 3
Reply with quote  #7 
Hi all,

I'd be very grateful for your thoughts. It's been nearly a year since I went to the club that gave me a barrage of ear problems. 

Where things stand now:
-My dentist noticed that I have an anterior open bite. I am now seeing an orthodontist. Seems unrelated, but who knows?
-An excellent neurotologist was able to record my middle ear muscle spasming. He placed a microphone used for acoustic reflex testing in my ear and banged a metal rod against a lamp. Spasmed audibly each time. We tested it against my "better" ear, which did not respond to the sound, and to my normal acoustic reflex test result. He suspects a dysfunction of my middle ear muscles (specifically, the stapedial) and gave me the option of surgery to sever the tendons. Could not definitively say how this happened (people fly sick and go to clubs all the time) and confirmed that it is very rare. I opted to wait for now.

What should I do from here? I want to make sure that there's nothing else causing the muscle spasms. The only things that worsen it are certain head positions, talking, and, oddly enough, my (unrelated) wisdom teeth extractions.
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