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Siochain

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Posts: 4
Reply with quote  #1 

Hi everyone, 

 

Looking for some advice on how to use pink noise therapy the right way. 

So I have constant T in my right ear, and probably some H here as well but so far it doesnt really bother me to much. It is my left ear that has the main H problem, and it has been getting worse. I do not experience loudness hyperacusis, but I get extreme ear pain from some sounds. Whenever the H in my left ear gets bad I get tinnitus in that ear aswell. The tinnitus in this ear changes all the time, and when it is bad and my ear is really painful the tinnitus is very reactive. When the ear pain gets better the tinnitus gets better and sometimes is completely gone in that ear. 

My ear pain is unfortunately bad these days. I¨ve gotten pink noise therapy generators from my audiologist a while back, but after using them a couple of times I felt it just spiked my tinnitus so bad even on an extremely low volume that I decided not to use them. 

But now I do not really know what else to do than to really try them out for a while. Does anyone on here have any advice to give me of how I could use the pink noise therapy without it raising my tinnitus like crazy? When I take them of after a couple of hours my tinnitus is suddenly extreme with all kinds of noises in my head. It always resolves itself after some time, but it still feels scary to spike my tinnitus like this everyday with the pink noise and I¨m afraid one day it will actually get permanently worse. 

Could this also just be a phase I have to get through before my ears get used to the pink noise generators? They play pink noise with extremely low volume, so it couldnt actually hurt my ears? And they do not seem to trigger any ear pain. 

Any advice on the situation would be very much appreciated. I just joined this forum and Im really glad to be a part of it. 

 

Siochain 

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Aplomado

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Posts: 695
Reply with quote  #2 
No, low volume pink noise will not hurt your ears.

As to your tinnitus issue, I can't comment as mine doesn't really do that so much.
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Kiwigirl

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Posts: 5
Reply with quote  #3 
Can you explain what pink noise is? I use Sound Therapy International which is classical music played very quietly on ear phones 3 hours a day. I used it last year but thought it was making the tinnitus worse. But they assured me it very often gets worse before it gets better. I wasn't prepared to risk it for fear it would be permanent, like you, it so I stopped the therapy. But my tinnitus is worse anyway now, so I've just started it again and hope I have the courage to continue this time!


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Aplomado

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Posts: 695
Reply with quote  #4 

"Pink noise" is a mixture of many different frequencies of sound combined (it sounds like static) but it is skewed with more low-frequency sounds and less high frequency sounds.

"White noise" is mix of sound with both high and low frequencies in equal proportions (it also sounds like static).

High frequency sounds are more irritating to hyperacusis folks (dishes clinking, high pitched children's voices etc) and so pink noise is less annoying for sound therapy.  It can be helpful for desensitization.

Kiwigirl, I am glad you restarted sound therapy!  I haven't used music for mine, but I know some people have used is successfully.  

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cozo

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Posts: 66
Reply with quote  #5 
Hi all please join the Facebook group called
( Hypercussis surgery success talk) lots of information on there for this horrible condition.

__________________
dean cosnett
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Siochain

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Posts: 4
Reply with quote  #6 
Hi Kiwigirl
Yes I hope to have the courage as well, but the tinnitus spikes are scary. A couple of days now I’ve been wearing the sound generators on low volume for many hours and I take them of before I go to sleep. The spikes are brutal but the next morning my T is back to its normal baseline. Did they tell you tinnitus spikes are normal at first when you use sound therapy? I hope so..
hope it gets better for you Kiwigirl!

Anyone else have experiences with tinnitus spikes when starting pink noise therapy?
Thank you for any advice!!

Siochain
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Kiwigirl

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Posts: 5
Reply with quote  #7 
Thanks for the replies and information. I don't think I get bad spikes, Siochain. They sound terrible! My tinnitus does ebb and flow but not too markedly. I just worry that it is gradually getting worse over time and will become unbearable eventually. No, I wasn't warned that it could get worse while doing the therapy, which I wasn't very happy about.

What I notice is that everyone's tinnitus and hyperacusis are soo different, which explains partly why the medical world is so unhelpful. My hyperacusis has almost gone on my magnesium regime, but this doesn't seem to help other people. Perhaps other micronutrients would though? STI does recommend them.

Best wishes, Kiwigirl
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rodmccain

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Posts: 225
Reply with quote  #8 
Hi, soundslike there is a possibility you have reactive T.  I know there are some on this support group that say nay, but I know because I HAVE IT.  Marsha Johnson also says there is such a thing.

I stopped using the generators due to this problem,  and it did nothing to restore my hearing back to normal.  I have loudness H, which means I here everything abnormally loud, including frequencies. 

I believe it may be effective for some, but it all depends on your symptoms, AND what specifically caused the your issues.

God bless,
Kathy McCain
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