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Siochain

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Reply with quote  #1 
Hi all,
Im struggling with my hyperacusis which just seems to be getting worse lately. It is mainly in my left ear and lately it has been so sensitive and the ear pain is bad, sometimes the pain is there all day.
I cannot help but get scared of how bad this is going to get. Especially since I did some research and it seems pain hyperacusis is the form of H which is believed to have the least positive effect from sound therapy.
So I guess I’m wondering if anyone on here with pain H has gotten better over time? And if anyone had any effect with using pink noise or other sound therapy on their pain H? Would probably help my spirit to hear if anyone has gotten better from this upsetting condition.

Currently I’m using pink noise therapy delivered by over the ear sound generators. Wearing them all day, but it has only been a couple of weeks and havent seen any effect so far, but I know its too early and I need to be patient. Right now my ears feel worse than when I started wearing them though so I’m scared it won’t work for me.
If anyone has any other advice on how to treat pain H that would be great to?
Thank you everyone,
Siochain
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DanMalcore

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Dan
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Reply with quote  #2 
Quote:
I did some research and it seems pain hyperacusis is the form of H which is believed to have the least positive effect from sound therapy.


In 2014 Dr. Richard Tyler chose to break down hyperacusis into four types:
-Annoyance hyperacusis
-Fear hyperacusis
-Loudness hyperacusis
-Pain hyperacusis

These may more appropriately be considered subcategories or different facets that may or may not be present in a patient.  Dr. Baguley states that patients with hyperacusis may experience phonophobia (fear of sound), annoyance (irritation), and sensitivity to noise.  Dr. Pawel Jastreboff does not break down hyperacusis into different types but clearly states the variety of symptoms of hyperacusis along with the other auditory phenomena including but not limited to phonophobia and misophonia.

In my almost 30 years of running this network I have never embraced the term pain hyperacusis since most experience discomfort (pain/fullness/irritation).  Plain and simple, sound therapy works very well on hyperacusis whether you embrace the concept of four types or not.  

[wave]Dan

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Siochain

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Reply with quote  #3 

So, you're saying sound therapy could still be helpful for me even though my main problem is pain from sound? If that is the case then it is so good to hear, thank you for your answer Dan. 

Siochain

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DanMalcore

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Dan
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Yes, you will be fine.  Make an appointment with a qualified clinician trained to treat hyperacusis for diagnosis, treatment and ongoing counseling.

[wave]Dan

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Cathu

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Reply with quote  #5 
Hi Siochain
How are you? I hope you a feeling a bit better now,  I think with the world turned up side down, the main thing is we  treat our selves kindly  and do what we can to get through this Covid19 disaster...  Our Hyperacusis isn.t going anywhere, and it will still be there once this all hopefully finishes    asap. I think if we all do what we can to make our mind s feel settled and as calm as we possibly can, with  any thing more intrusive than is absolutely necessary will be a good thing.
We have enough going on in our live s without  strange noises in our ears all day.  My Tinnitus screams at me 24/7 at 80 dB and horrible hyperacusis to match and this covid19 would not be helping our inner minds and self.
I've been reading about ASMR  and that s really interesting and a bit of a distraction  for the mind.   The other night I had the most amazing synchronicities happened, 3  totally linked  things. It was quite mind blowing...the mind is an amazing thing. Anything to distract oyr minds are a great thing. I like movies...with sub titles, so I can kind of concentrate. My 5th ENT Specialist, a Professor said there s no cure for Tinnitus and Hyperacusis, and he doesn't want me to waste money and time on   the  false promise of a cure.     At least he is honest!  these other s who take our money on false promises with their gadgets and tablets don't know how it feels to have this chaos in our head 24/7...If they only knew....   Do you like watching movies there?  Let me know how you get on there  Siochain.

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