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100183rbL

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Reply with quote  #1 
I have been sensitive to noise for many years, but over the last year it has become a major problem for me.  We have a praise band that to me had gotten too loud and I was no longer able to enjoy the music or worship.  Many noises in my every day life had become so intolerable and I would become very agitated.  I had no idea that this condition had a name, hyperacusis.  I did some research and talked to some people and that led me to Dr. Herb Silverstein, of the Silverstein Institute in Sarasota, FL.  They did several tests and offered a solution that might help me.  Dr. Silverstein performed an operation that has greatly changed my life, I am now able to enjoy the music at church and loud noises no longer agitate me.  I would recommend any one who has hyperacusis to get evaluated and see if this operation might help them, as much as it did me.
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Rebecca Liskey
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balloonboy

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Reply with quote  #2 
Quote:
Originally Posted by 100183rbL
I have been sensitive to noise for many years, but over the last year it has become a major problem for me.  We have a praise band that to me had gotten too loud and I was no longer able to enjoy the music or worship.  Many noises in my every day life had become so intolerable and I would become very agitated.  I had no idea that this condition had a name, hyperacusis.  I did some research and talked to some people and that led me to Dr. Herb Silverstein, of the Silverstein Institute in Sarasota, FL.  They did several tests and offered a solution that might help me.  Dr. Silverstein performed an operation that has greatly changed my life, I am now able to enjoy the music at church and loud noises no longer agitate me.  I would recommend any one who has hyperacusis to get evaluated and see if this operation might help them, as much as it did me.

wow, praise God! What is the operation?
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Aplomado

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Reply with quote  #3 
Details!
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Steve2017

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Reply with quote  #4 
When I first looked at this the other day I thought nice results, and then came to mind, what a 'great advert' for this company.. We shall see if more information comes along in the next few days from rebbecca or Silverstein Ins regarding this operation.
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s simpson
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dave2

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Reply with quote  #5 
The Silverstein Institute has held quite a number of seminars about the procedure with various patients describing their experiences and outcomes. Three of the seminars were video-taped and uploaded to YouTube.

This YouTube video is the most recent one, from earlier in 2018.

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TallDude

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Reply with quote  #6 
http://www.chat-hyperacusis.net/post/show_single_post?pid=1298143452&postcount=1&forum=47709
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brownie

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Reply with quote  #7 
Quote:
Originally Posted by 100183rbL
I have been sensitive to noise for many years, but over the last year it has become a major problem for me.  We have a praise band that to me had gotten too loud and I was no longer able to enjoy the music or worship.  Many noises in my every day life had become so intolerable and I would become very agitated.  I had no idea that this condition had a name, hyperacusis.  I did some research and talked to some people and that led me to Dr. Herb Silverstein, of the Silverstein Institute in Sarasota, FL.  They did several tests and offered a solution that might help me.  Dr. Silverstein performed an operation that has greatly changed my life, I am now able to enjoy the music at church and loud noises no longer agitate me.  I would recommend any one who has hyperacusis to get evaluated and see if this operation might help them, as much as it did me.
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brownie

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Reply with quote  #8 
can you please tell us what this operation is called and what is involved. what do they operate o
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Dianeb

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Reply with quote  #9 
I have been searching to talk to someone who has had this operation by Dr. Silverstein.  I had it Feb 27 and I just wanted to know some things.  When they took out the packing 9 days later my ear was still a little stopped up.  He said that it would pass, but I'm wondering 'how long'.  My H is better in that ear, but I assuming it is because the ear is a little stopped up.  Is this the way the operation helps, if it is I would have thought about it a lot longer.  What was your experience?  And also I hear my heartbeat booming in that ear pretty regularly.  It's very disturbing.  Also the tinnitus in that ear has continually buzzed since day 1 of the operation.  So I can't tell anyone that it won't make the tinnitus worse.  He said it wouldn't.  He said the ear has to calm down, and I realize that, but I just would like to know what others has experienced post op.
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100183rbL

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Reply with quote  #10 
I did have some stopped up feeling for a few weeks, but did not experience more tinnitus. I did lose my taste on the right side of my tongue. It has been a year and I have some taste now. Overall I have been very satisfied with my operation, it has helped me cope with the sounds that used to send me up the wall.
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Rebecca Liskey
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Johan_l

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Reply with quote  #11 
Quote:
Originally Posted by Dianeb
I have been searching to talk to someone who has had this operation by Dr. Silverstein.  I had it Feb 27 and I just wanted to know some things.  When they took out the packing 9 days later my ear was still a little stopped up.  He said that it would pass, but I'm wondering 'how long'.  My H is better in that ear, but I assuming it is because the ear is a little stopped up.  Is this the way the operation helps, if it is I would have thought about it a lot longer.  What was your experience?  And also I hear my heartbeat booming in that ear pretty regularly.  It's very disturbing.  Also the tinnitus in that ear has continually buzzed since day 1 of the operation.  So I can't tell anyone that it won't make the tinnitus worse.  He said it wouldn't.  He said the ear has to calm down, and I realize that, but I just would like to know what others has experienced post op.


There is a lady that did this surgery at the same time as you (she posted in the FB groups). She was warned by her doctor about temporary Tinnitus increase as well as the stopped up feeling. Apparantly it takes time to settle (months), and I'm sure it will for you too!

With that said, this is 3rd hand information. I would expect the doctor to inform you of this and support you. You should not have to turn to an online message board for these questions if you just had the surgery!

Finally, Please keep us posted of your progress!


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Dianeb

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Reply with quote  #12 
Yes, I agree that my Dr. should have informed me of these things beforehand.  I would not have gotten the answer had I not asked the question the day the packing came out. All he said was that it would pass.  As many as they have done, looks like they would know this information and tell their patients.  I am very disappointed in the Drs 'bed side manner'.
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Johan_l

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Reply with quote  #13 
Based on Silverstein's paper and anecdotal reports on Supprt Forums there is a very low risk of long term side effects, except for a slight increase in Tinnitus. However, several patients never saw any positive effect on their LDLs.

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Johan_l

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Reply with quote  #14 
Quote:
Originally Posted by Dianeb
Yes, I agree that my Dr. should have informed me of these things beforehand.  I would not have gotten the answer had I not asked the question the day the packing came out. All he said was that it would pass.  As many as they have done, looks like they would know this information and tell their patients.  I am very disappointed in the Drs 'bed side manner'.


By the way, do you know what caused your Hyperacusis? It might also be worthwile asking the doctor if you had a hypermobile stapes, as those patients had a greater improvement in LDLs.
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HST

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Reply with quote  #15 

 

Why was not it introduced and not one person under the age of 40 after surgery? I read that the odds of being over 60 years of age) would develop a hyper-zero.

Is it possible to discover the age of those who were operated on?                              A

B. In consultation with autoniologists in my country, it is explicitly stated that this will perform a progressive hearing loss in addition to the existing MILD  nerve HL

C     Does this surgery have a proven ability to rescue patients with the most severe pain

 OF H conditions including shock STATES  combined with intense pain OF H ?

Chronic  pain  will disappear or will not overcome?     D                                                            

E. Were the patients' data presented in relation to the type of hiracosis and the age of hyperacosia for the preoperative patient?

They had to present their age data if they had already allowed themselves to be interviewed on video.

I did not see any drop of an object or a shot or a slam or yelling or dog barking after the surgery on the video of those patients

Which was shown on video that would prove that the operation was useful !!!

There was no onlinel test for LDL before and after surgery to prove that the operation really works and succeeds for eace one of The people who were operated on  ...

So there are many questions for me and many others.

I would be happy to respond with proofs from the patients.


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HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
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HST

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Reply with quote  #16 
somebody can tell us the true about these operation?
does it can help more then 20 db f.f  COUSE OF nerve or brain damage of hyperacusis?
I AM NOT TALKING ABOUT TTTS. HAVE SOME BODY FIND APLACE  IN THE WORLD THAT DONE MEG FOR H?

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HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
I am ht
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HST

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Reply with quote  #17 
I have fewer headaches, no migraines or dizziness, but I have few shock conditions, 
Due to the immediate stimulation of a certain unknown high frequency tone or more freq..
- even at a maximum of 45 dB, which causes
for 2 seconds AT LIST -WUTH HARD PAIN IN THE EAR -NOT STABB H-PAIN,BUT APAIN OF
HYPERACUSIS /
pain IS HARMFULL !!!! that is so
intense that I will not be safe enough. If I am without masking and only with protective earphones or a rainbow will be pain in the face of s
creams and screams, women's children (wide frequency damage, higher frequencies) already have a drop Neural hearing,I need as much reliable information as possible.The tinnitus, which was on one side and moved to Danny or both, became established after two years or more, to a higher pitch to the other ear,
with lower hearing sensitivity.There is no misopenia at all.

somebody can tell us the true about these operation? I MEAN -does it can help more then 20 db f.f   TOLERANCE BETTERFOR OPERATE - COUSE OF nerve or brain damage of hyperacusis?
I AM NOT TALKING ABOUT  TTTS.
HAVE SOME BODY FIND A PLACE  IN THE WORLD THAT DONE MEG FOR H+T?

An auditory neurologist who can give me a tip how can I diagnose whether my nerve or brain injury is?
By what tests and where can they be performed?
THANKS!!!!

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HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
I am ht
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cozo

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Reply with quote  #18 
Hi all I’ve had round and oval window closer on one ear with great success I am the first person to have the opp in the uk it took about 6 months to heal 100% but it definitely works , please join my Facebook page called
HYPERCUSSIS SURGERY SUCCESS TALK . Lots of positive information there is hope just cost money I’m afraid.

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dean cosnett
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HST

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Reply with quote  #19 
Look cozo, if u don't tell us what was the real improve per hz's before and after in dbspl-I think it could be bull of... U know what. Prove us!! 0u did not answer even one of my q, what do I need to think about u? Maiby u tried to lie us? We want proves!!!! Now!!!
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HYPER IS ATOM PAIN
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HST

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Reply with quote  #20 
U wanna tell me u can hear in your operated ear till 1 pick of 135 do free field? On any hz?
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HYPER IS ATOM PAIN
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cozo

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Reply with quote  #21 
Why you talk like this ? Why would I lie ? I understand your frustration but talk to me like this and I won't answer you ever again . I didn't really have pain with my hyperacuss its more the fact of being in loud places like bars and eating places and things like dogs barking and children screaming but since the opp on the one ear it's much much better . I'm saving up to get the other ear done . I DO NOT LIE ABOUT ANYTHING IM NOT GETTING PAID TO LIE . Send me your email and I will send you pictures of my operation . Think you need to chill out a bit

Have a look on hyperacusis surgery success talk

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dean cosnett
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cozo

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Reply with quote  #22 
had surgery on one ear for my hyperacusis with good results just saving up now to get the other ear done. I know what ya all going through is a horrible condition to have , you just can't explain to someone what it's like. Please have a look at my Facebook page I've set up called (HYPERACUSS SURGERY SUCCESS TALK) there is people from the uk the USA etc who have had the surgery, there is hope it just cost money tho I wish it was free , HOPE IS GOOD X
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dean cosnett
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BCX

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Reply with quote  #23 
@cozo

Having surgery is the last thing on my mind. I've heard many horrifying stories about people getting surgery for H and T. Either it gets worse or stays the same. I believe that there isn't any surgery that is specifically for H bc H is such a rare condition and being diagnose can be misleading. Hyperacusis is different for everyone. I wouldn't say that I disagree with you since u have one ear done and found success. That's great! However, there can be a slight chance that H can come back. Who knows??? God bless us all!!!
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cozo

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Reply with quote  #24 
I’ve not ever heard of any one across the globe who has had a bad outcome with there surgery for Hypercussis. Over 49 people in the USA have had the operation with success and one in the uk ( me ) can you please tell where you got you’re information from ??
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dean cosnett
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BCX

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Reply with quote  #25 
Go on the hyperacusis and tinnitus support group on fb. Some people have had surgery for H and did not find any relief. Also, the hyperacusis network. If you've read past forums, you'll understand why I said that many people who had surgery didn't have any success. Plus, you are the first person I know that have had success with surgery which is great. I'm js that in the US, most doctors don't even know what hyperacusis is and how to cure it. Not saying that they dont understand it, there's isn't much information and studies being tested specifically for H.
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BCX

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Reply with quote  #26 
My questions are...where did u get your information from? Are you completely cured?
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