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fedilio86

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Posts: 4
Reply with quote  #1 
Hello

I got tinnitus in may 2017, and a few weeks later hyperacusis set in. I have used headphones for many years, many hours, so that's the probable cause of it. For a long time the hyperacusis was problematic, but managable. I had pains around certain sounds, but I could tolerate many everyday sounds.

However this last 1-2 months it's been getting progressively worse culminating this weekend where I had many hours (not 24/7) where I had lingering ear pain, ear fullness, a pressure feeling and throbbing achy pain in my ears.

I havent subjected myself to any loud noise. And I have been using ear plugs around uncomfortable sounds, but at the same time I have tried not to overprotect as I have heard that is also bad.

But It's now so bad, that I am very much effected by it, and I am working an internship which I can't handle anymore as there is some noise at my workplace (moderate at worst)

My mom has suggested white noise generators but I am scared if it will make it worse. It seems that it helps some people, and some people get worse, and I am not sure I would be willing to take that risk, cause if my ear pain got worse I can't cope anymore (I may have to go to Dr. Silverstein then) 

But I am also worried that it will get worse, if I don't try to treat it somehow.

I would love to hear your guys's thoughts and experiences from people who have tried white noise generators.
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fedilio86

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Posts: 4
Reply with quote  #2 
Anybody?? Please.....I'm scared[frown]
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dave2

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Posts: 94
Reply with quote  #3 
I tried sound generators but unfortunately they made my LDLs dramatically and permanently worse. In hindsight I deeply regret trying them.
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fedilio86

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Posts: 4
Reply with quote  #4 
That's what I feared [frown] How much did it make it?

I just don't know what to do. I can't live like this for very long.
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dave2

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Posts: 94
Reply with quote  #5 
My LDLs dropped by about 20 decibels during the sound therapy treatment. Life became much more difficult after that worsening.
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Rob

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Posts: 53
Reply with quote  #6 
It is very important that you find a clinician with experience in diagnosing and treating decreased sound tolerance.  I don't know if you need sound generators or not, but I know for sure when sound generators are used correctly - at the proper volume and with a broadband noise presentation that is well-suited to the patient - they help improve loudness discomfort levels.    

I don't know if you have lower-than-average LDLs or not, but an experienced clinician can administer an LDL test to determine if you do. 

The ear pain, aural fullness. and ear pressure you experience can be successfully treated.  These symptoms may be related to, but different from hyperacusis per se, and may be treated without the use of wearable sound generators.   

I would ditch the ear plugs unless you are around loud sound.  Even if the sound in your environment is sometimes uncomfortable, it is not dangerous.  Moderate sound won't hurt you and the use of hearing protection will serve to make you more, not less, sensitive to sound.  

Please give yourself a chance to get the help you need before reaching any conclusions.  Decreased sound tolerance can be tough, sometimes very tough, but it is not a death sentence.  Based on what you have described, there is no reason to believe you can't get on top of this. 

Rob 

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Pamela

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Posts: 17
Reply with quote  #7 
Quote:
Originally Posted by fedilio86
Hello

I got tinnitus in may 2017, and a few weeks later hyperacusis set in. I have used headphones for many years, many hours, so that's the probable cause of it. For a long time the hyperacusis was problematic, but managable. I had pains around certain sounds, but I could tolerate many everyday sounds.

However this last 1-2 months it's been getting progressively worse culminating this weekend where I had many hours (not 24/7) where I had lingering ear pain, ear fullness, a pressure feeling and throbbing achy pain in my ears.

I havent subjected myself to any loud noise. And I have been using ear plugs around uncomfortable sounds, but at the same time I have tried not to overprotect as I have heard that is also bad.

But It's now so bad, that I am very much effected by it, and I am working an internship which I can't handle anymore as there is some noise at my workplace (moderate at worst)

My mom has suggested white noise generators but I am scared if it will make it worse. It seems that it helps some people, and some people get worse, and I am not sure I would be willing to take that risk, cause if my ear pain got worse I can't cope anymore (I may have to go to Dr. Silverstein then) 

But I am also worried that it will get worse, if I don't try to treat it somehow.

I would love to hear your guys's thoughts and experiences from people who have tried white noise generators.


Sound generators made mine worse as well. I’ve heard some people hang the ear buds/headphones around the neck so it’s further away from the ears.

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Aplomado

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Posts: 640
Reply with quote  #8 
Sound generators did help me a lot (though I am not cured).
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