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COYS

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Posts: 16
Reply with quote  #1 
Hi All,

I'm in a difficult place right now and hoped I could get some wisdom and advice here.

I've had mild t for around 2 months from what I believe to be an acoustic shock/trauma (not sure if there's a difference?) which I have mostly got used to and accepted. My bigger issue at the moment is H and an ear spasm which I've had for around 7 weeks.

Sorry for the long post but I wanted to breakdown my situation.

Cause/Timeline


  • 9th of Jan two balloons were inflated to the point of rupture around 1m from me in a relatively small room. The sound was very loud and I felt slight discomfort in my right ear for around 10 minutes but no loss of hearing/muffled effect that I can remember...
  • 16th Jan: Tinnitus started randomly in the morning and has been there ever since - I'm assuming this is now likely to be permanent now its been 7 weeks?
  • 16th Jan - 20th Jan: I started to notice that certain noises were uncomfortable for me. These include cutlery, glassware etc. I had a feeling of fullness almost constantly at work by just being around conversation etc (my office is around 60db-70db). A fire alarm went off relatively near me and I had to cover my ears as it was so loud (First time I've ever needed to do this).
  • 20th Jan onwards: My ears pop/crackle when I hear certain noises but mainly in my right ear which does it almost every time and can even do so when my partner coughs or sneezes. Both ears seem to crackle every time i swallow too.

My H is very random and I can't really explain it. I have recently got back from a holiday in Boston and was able to walk around for many hours with only slight twinges of pain/discomfort. I was in a bar on holiday 80db-90b before feeling some discomfort and I left (ear felt okay when i woke up the day after). The flight over was quite noisy (85db) so i used some bose noise cancelling headphones and I was mostly okay. The flight back was quieter (70db-75db) and I was fine without any hearing protection.

I then started to struggle when I got home (admittedly quite jet lagged) but my ears spasmed to cutlery again and felt quite full.

To summarize

Things that hurt/startle me/cause ear spasm and fullness.
  • Cutlery
  • Dishes
  • Glassware
  • Coughs and sneezes
  • putting my ear phones down on the side (very random)
  • Voices that are loud/booming
  • Sweaking car breaks

Things that dont cause me pain.
  • Traffic
  • Music on a lowish volume
  • TV
  • Most conversation


I suppose my main question is am i suffering from acoustic shock and can it get better? I've now got into the habit of spending long periods of time scouring the internet and message boards for help.

My biggest fear is that it wont get better and its going to stop me doing many things for the rest of my life. I'm buying a house at the moment and plan to renovate. How can I do DIY when percussive sounds affect me so much? Will I ever be able to go to a bar again around loud music? I have vision issues so these concerns are exasperated because I've always been very protective of my ears

Thanks

COYS



Note: I should also have mentioned that I dont feel my ear spasm is constant or fluttering as I've read a few times on the board it only happens in reaction to sound.

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COYS

Registered:
Posts: 16
Reply with quote  #2 
Hi All,

Any advice on this would be great as I'm freaking out slightly!

Its a very odd sensation to explain with the pain I get. It almost feels like my ears tickle and then ache...

I've also noticed last night that if there is background noise my ears don't pop/click than if its silent and I hear a noise. Also when I'm outside especially when cycling my ears dont pop when I swallow at all ? 

I listened to pink noise last night at around 65db-70db for 25 minutes and didnt feel much if any discomfort. Is this a good sign and a good thing to be doing??

It's currently taking the shine off all the good things in my life at the moment and I'm losing hope slightly that it can improve and I can return to normal :|

I know I am throwing random symptoms at you all and I know people on this forum have it a lot worse than me but I really need some help.

Thanks,

COYS
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Steve2017

Registered:
Posts: 132
Reply with quote  #3 
Some of this could be stress, try be calm see if it eases, avoid mobile phones to ear when on charge, it plays a big part in health issues stress. I have a few posts on here from some time ago might be something to help on there if no one else reply's to you.
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s simpson
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phacker

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Posts: 132
Reply with quote  #4 
Go see an ENT to be sure that you do not have something else going on with your ears that may be contributing to your H and T.  The ENT most likely will know little about H, so do not expect too much. Do not let an audiologist that is not certified in TRT do sound testing on your ears. 

Embrace all the sounds that do not give you pain, fullness or fluttering, but do not over do it as your ears need some rest to recover. 

Try to avoid sounds that cause pain, fullness, or fluttering, so that, your ears can rest and recover.  It appears that you can handle sound up to 80 db, so until your ears start to feel better stay out of loud sound environments that have sounds over 80 db.  Your ears are giving you a warning that there is something wrong and you should recover with some rest from loud sounds. If your sound tolerance drops another 10 db, it can be really difficult to handle. 

If you can not avoid the loud sound environments, protect your ears with ear plugs, ear muffs, etc. Do not over protect with the use of the sound protection. 

Try taking one 250 mg of Magnesium daily as there have been some studies that show Magnesium helps with ear recovery from loud sound.  It does work best if taken right after exposure. 

Try taking one 5 mg Melatonin before bed to see if it helps your T.  If you do not notice any improvement in 3 or 4 days, it is most likely not going to help. If you get any T improvement, you should notice it in the morning with you wake.

If you do not start feeling better soon, you may want to consider seeing a certified TRT audiologist that can be found on this website.
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Essiesn

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Posts: 17
Reply with quote  #5 
I have had H&T 6-7 years now. Saw neurontologist most of those years. Recently found one who had a completely different approach and I have finally seen progress. This progress can be attributed to 1. Gabapentin, 2. a great audiologist trained in H&T, 3. using sound generators, 4. and attitude adjustment . There are several different reasons for cause, therefore calling for different approach’s.
I second the poster who said “don’t see audiologist not trained in H&T.” Don’t give up, and seek a EENT who has had experience in treating this condition. Maybe if you post the area you are in, others could recommend one. Don’t be the victim, be the empowered one . Start now! Start anywhere , but just take that step forward.
Essie
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COYS

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Posts: 16
Reply with quote  #6 
Thank you for your replies I really appreciate it.

I live near London but I don’t have lots of money for TRT [frown]

Does TRT also help when the H is noise induced ? My T is currently quiet mild in that I can only hear it in quiet rooms and rarely stops me sleeping. I’m not sure if it’s improving or if I’m just getting used to it.

Does anyone else have TTTS? This is the most irritating symptom at the moment and I wonder if it’s that causing my ear ache.

Thanks
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Steve2017

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Posts: 132
Reply with quote  #7 

Hi Coys,

i'll give you one piece of advice - ive moved on now to advise on a depression mental health forum, and ive lived a lot of years here 65 now so ive learned a lot along the way. T is an ongoing battle for me, lower than it was and more manageable - but now since my 2 years research into the mind etc.

What do I think is mainly responsible in my opinion for T increase - 'thoughts' - thoughts of fear failure and health issues, my advice don't in all cases - look for ways to help people on your journey here and relish in the fact that you've helped just one person that day, relish in it and feel good as well as going about your day to day issues... So then you'll feel more positive, energy vibrations' will increase for better health and in my opinion lower more manageable T..... good luck.

Steve.

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s simpson
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COYS

Registered:
Posts: 16
Reply with quote  #8 

Hi All,

Thanks for the advice. I have been to my local ENT and had various tests. My hearing is fine up to 8Khz (no dips below 10db) and my ear pressure is within normal levels. My speech in noise results were fine and I can hear up to 15khz when using an app on my phone.

My pain from noise has lessened and my ears only felt slight discomfort when listening to music for around an hour though a speaker system.

My Tinnitus seems to be much quieter in the mornings to the point I'm sometimes not sure I can hear it. It starts the day as more of a hiss more than a ring which then slowly becomes louder throughout the day. I don't really notice it at work anymore. Is this a good sign that I might recover from it? It’s been 2 months now and I feel im improving slowly.

I still have my thump sensation when I hear sudden noises in a quiet setting but think doesn’t seem to cause any pain. On the odd occasion I get some fullness.

What are the chances that it will continue to improve without treatment?

Thanks,

COYS

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Steve2017

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Posts: 132
Reply with quote  #9 

Nice to hear things have improved Coys with T - not many self heal but it happens, it did with me with H - so we thank God for that... Just be aware if a balloon pops again just watch the stress & fear level in your body, keep calm and smile its good for you, and of course walk away while smiling and deep breaths. Stress is the damaging thing and causes more illnesses than you can imagine. 

What's happened to you recently will be a strength in the future my young friend. And if you gain one thing from this message/information, just remember to be kind to people on your journey through life here, because that's what we all are 'spirit' having a physical experience on Earth - and for anyone reading, we have to see it though 'keep going' whatever life throws at us in difficult times, non of this ending it as sometimes we hear, 'not the way' price to pay for that - so look for solutions here now while you can like Coys has. 

Keep an eye on some research weekly, just a few hours - 'positive energy to heal' its worth keeping an eye on energy levels and how to control damaging negative energy getting into our system - mind'body'spirit - when negative energy gets into the system it can deposit itself onto the skin as in a rash, and that's just one basic example...

I am hoping to open for free - half hour self healing lessons in my local town to teach people about energy to possible self heal, as we all operate off 100% energy - positive & negative energy, key is to keep the positive high and keep a strong mind.

This hospital in China used to use this system successfully until the government closed it for political reasons according to the website.

http://www.chilel.com/WhatIsChilelQigong/hospital.htm

Regards Steve.



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s simpson
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contrast

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Posts: 18
Reply with quote  #10 
I've caught up with you on TinnitusTalk. Glad you hear you are doing better now and I hope you continue to improve.
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cure noxacusis
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