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locutus24

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Reply with quote  #1 
Anyone here take marijuana and experience changes in auditory perception? I sometimes take a certain amount and it causes tinnitus in my good ear to increase in intensity or it makes regular sounds == more distorted and echoing in my brain. I wonder if people without H and T also experience this to some degree, because if that's the case then maybe I'll take it anyways since it's an inevitable side effect.

I use it for medical reasons to relieve anxiety (even anxiety related to H and T), but it backfires when it worsens H and T. Not sure if I should cut back or just adapt to it while high? It doesn't happen every time, but often happens.




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KFOregon

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Reply with quote  #2 
Hey Locutus,

Its been close to 30 years since using mj for me. I finally went into a legal store here in oregon with an out of state relative who uses it for anxiety. They offered some for body high, some to zone out and some to take off the edge. I was amazed at all the choices of edibles, vapes, salves and oils.

Long ways from a 4 finger lid for 20 bucks.
I have thought many times about trying it for anxiety. But if it increaed any of the H, T or V I'd probably flush it for fear that it would stay that way.

Best to you,

KFOregon
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locutus24

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Reply with quote  #3 
Hey, I'm originally from OR. Grew up in Newport, but lived in NY for a few years now.

The H and T doesn't stay around permanently. Once the weed wears off it goes away. So you could probably take it with little risk of worsening your condition permanently. 

I was just curious if others experienced this during the high. 
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EDogg

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Reply with quote  #4 
Another Oregonian chiming in..

I don’t have personal experience with this and H & T, but wouldn’t a CBD heavy strain potentially have more benefit, with its nerve calming function (similar to benzodiazepine like effect)? Might be worth exploring.

Best,
EDogg
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dpellerin

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Reply with quote  #5 
Quote:
and it causes tinnitus in my good ear to increase in intensity or it makes regular sounds == more distorted and echoing in my brain


Same here even for the medical marijuana including those with with high CBD. The tinnitus gets quite strange with loops and echoes. I find it affects my sleep (negatively) as well. It takes quite a while (6-8 hours) for my tinnitus to quiet down again a to baseline after taking a dose. Once the tinnitus was still looping the next morning (something like 12 hours later). Seeing as the M was negatively impacting my auditory system and sleep, I thought it best to forgo this option after a few months trial period. 

Denis 
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KFOregon

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Reply with quote  #6 
Interesting reading.

Having nerve and cochlear related H, T and vertigo, my Audiologist (M.Johnson)recommended an alternative procedure for the vertigo. She worked with Dr Epley for years and is very well known herself in the field and a board member of VEDA (Vestibular Disorder Assoc) among others.

Anyway, the procedure is a shot through the eardrum to fill the exposed areas of the cochlea and canals governing balance, with a steroid. You have to lay on one side for 20minutes and heres the hard part; You cannot swallow, because if you do, the eustation tubes open and drain all that fluid. Its a very bizarre feeling for a day, but for me, it cured the vertigo for a full three months! Apparently there are cases where H and T are reduced also on those with vestibular disorders. Unfortunately I wasnt one of those.

So, my V is coming back with every head movement and I was considering asking about cbd oil injection early next month. I dont know if they would, but Im almost positive that I couldnt be any worse off for trying.
I wonder if it is being "trialed" yet. I have read some other amazing successes using CBD.

I think many of us are willing to try the extraordinary to just be normal again. /c8
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EDogg

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Reply with quote  #7 
Hey KFOregon,

So happy to hear the intratympanic steroid injection worked in calming the vertigo! You must have been thrilled by that result, even though temporary, for relief from these symptoms is so precious. Dr. Johnson recommended the same for me, but for ear pain, not vertigo. I get pretty intense burning ear pain with worsening of H&T, episodically. She couldn’t refer me to any particular ENT and those I chatted with said they only do this for patients with Meneires disease. If you wouldn’t mind, could you provide the name of the ENT who did this injection for you, perhaps via PM?

CBD oil injection would be interesting for sure. We are definitely the pioneer guinea pigs when it comes to finding effective relief. No matter how I slice it, sound therapy just does not seem to be the sole method of improvement in my case. Might help some, but my exacerbations are not due to sound usually and my H& T was not necessarily caused by sound exposure.

EDogg
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locutus24

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Posts: 47
Reply with quote  #8 
Quote:
Originally Posted by EDogg
Another Oregonian chiming in..

I don’t have personal experience with this and H & T, but wouldn’t a CBD heavy strain potentially have more benefit, with its nerve calming function (similar to benzodiazepine like effect)? Might be worth exploring.

Best,
EDogg


Yes, for me a balanced strain of CBD and THC offers more anxiety relief, which can help H and T, but even when there is CBD I still get the weird increase in tinnitus and static like echoes that follow sounds. If I put in ear plugs while high then the tinnitus goes up another level and it seems like my ear is another person "loudly" whispering static in my ear. 

I also take prescribed k pins for anxiety and if I combine that with mj before bed sometimes the tinnitus actually lessens closer to base line. I find that benzos are best meds for tinnitus in my overall experience, but I still enjoy my mj for mood boost and to enhance music, food, and sexual experiences.

My issue is I don't like k pin and mj at certain times of day cause it's too sedating and I can't get work done. With mj alone I can still do studying, play piano, workout and play video games. Not so much with socializing though as I get paranoid having H and T while talking to people. 
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locutus24

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Posts: 47
Reply with quote  #9 
Quote:
Originally Posted by dpellerin


Same here even for the medical marijuana including those with with high CBD. The tinnitus gets quite strange with loops and echoes. I find it affects my sleep (negatively) as well. It takes quite a while (6-8 hours) for my tinnitus to quiet down again a to baseline after taking a dose. Once the tinnitus was still looping the next morning (something like 12 hours later). Seeing as the M was negatively impacting my auditory system and sleep, I thought it best to forgo this option after a few months trial period. 

Denis 


The loops? Can you describe those in more detail? You mean an internal sound keeps looping over regular sounds from environment? That is strange and would make me paranoid and uncomfortable. 

Interesting that it affects sleep, cause high CBD strains can help me relax in bed and lead to sleep. I notice mj causes me to dream less and less, sometimes I just black out and have nothing but deep sleep and wake refreshed. Sorry you don't get the sleep benefits. 

For me it probably take 4-6 hours to return to base line after last dose. 

Oh no! In the morning and for 12 hours! Must have been terrible!

I've had similar experience with another drug. I used to take seroquel before bed and it's labeled as ototoxic (tinnitus inducing) and some mornings I would wake up and simple sounds like wind blowing outside, fans, and other ambience would sound static-like and annoying. Lasted until evening and then got some relief from noise. 

Yes, if it is causing more harm than good then don't take mj. Hopefully you have or will find something better as alternative.
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locutus24

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Posts: 47
Reply with quote  #10 

Quote:
Originally Posted by KFOregon


Anyway, the procedure is a shot through the eardrum to fill the exposed areas of the cochlea and canals governing balance, with a steroid. You have to lay on one side for 20minutes and heres the hard part; You cannot swallow, because if you do, the eustation tubes open and drain all that fluid. Its a very bizarre feeling for a day, but for me, it cured the vertigo for a full three months! Apparently there are cases where H and T are reduced also on those with vestibular disorders. Unfortunately I wasnt one of those.

So, my V is coming back with every head movement and I was considering asking about cbd oil injection early next month. I dont know if they would, but Im almost positive that I couldnt be any worse off for trying.
I wonder if it is being "trialed" yet. I have read some other amazing successes using CBD.

I think many of us are willing to try the extraordinary to just be normal again. /c8


The procedure sounded kind of invasive and uncomfortable. I'm glad it worked temporarily for you. Too bad it relieved your v for 3 months and then stopped. Can you get another injection? 

I suffered anhedonia and depression and for a year I would get ketamine infusions every few months. Overall, I felt good that year. Maybe the same principal applies to these steroid shots in the sense that you may have to keep getting injections 4 times a year or something. 

I'm unaware of how CBD could help relieve vertigo, but am going to look into it today. I don't get vertigo myself so that's probably why I'm not aware. I highly doubt there will be any bad side effects or long term consequences if you try CBD oil. It's well known for it's anxiety relieving effects. Some people take CBD doses to sleep on long air flights. I would try it and see what happens.

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locutus24

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Posts: 47
Reply with quote  #11 
Quote:
Originally Posted by EDogg
Hey KFOregon,

CBD oil injection would be interesting for sure. We are definitely the pioneer guinea pigs when it comes to finding effective relief. No matter how I slice it, sound therapy just does not seem to be the sole method of improvement in my case. Might help some, but my exacerbations are not due to sound usually and my H& T was not necessarily caused by sound exposure.

EDogg


I've never tried sound therapy. What does that involve exactly? I thought that most people did TRT by simply getting exposed to normal sounds for periods of time or wearing sound generators for a few days. I'm a noob to the H and T wonderland so I haven't even tried any therapies yet, but setting that up as we talk. At first my H and T seemed bad and too loud, but now I think what happened at first was I was getting panic attacks which artificially inflated the sounds, meaning they weren't as loud as I thought they were. I feel like many people on this forum have it far worse, especially if vertigo is in the equation. 

How was your H and T caused by? 

My other mental illnesses can exacerbate the H and T condition though. :/
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EDogg

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Posts: 174
Reply with quote  #12 
Hi locutus24,

There are many ways to densensitize to sound. The most structured and studied way seems to be TRT (based on the Jastrboff neurophysiological model) and has been very successful for many people. Not all though. Some people have great success desensitizing in other ways, like slowly re-exposing themselves to everyday sounds. TRT is not the only way and Sometimes you have to get creative. I definitely encourage you to explore this and find out what works for you.

My hyperacusis, tinnitus and ear pain (otalgia) was not caused by loud noise exposure. It began rather suddenly after exposure to chemicals and/or massive plumes of allergen after having my previous home remediated for mold issues. I was fine the day before, listening and playing music, and 24 hours later my life had turned upside down. I ended up being hospitalized from severe reaction to something, no one ever really figured it out. I have seen countless doctors and no one seems to know what is wrong or what can be done. It’s frustrating to say the least. I believe my symptoms are in part due to chronic inflammatory process, perhaps an attenuated allergic reaction, that irritates the inner ear tissues leading to the aforementioned symptoms. I have been doing allergy immunotherapy for over a year now, which has helped maybe a little. I am certainly interested in finding ways to calm down this inflammation, if that is indeed what is going on, like steroid injections. I did seem to have some improvement after taking prednisone for several months but was taken off to prevent long term complications with this med.. I’ve been fortunate to made in roads with several highly experienced audiologist, both of which recommend I see a neuro-otologist in Phoenix who apparently is the best in the country for complex patients such as myself. Flying there, for me right now, seems way out of the question. I’m still mulling over what to do next.

I hear you on the mental health affecting your H&T. Same here. This stuff has taken me to some dark places and thankfully I have supportive folks around me to snap me out of it. I hope you have this support as well. Here’s hoping we both can nip this thing in the bud and move on with our lives!

EDogg
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KFOregon

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Posts: 23
Reply with quote  #13 
Im really enjoying all the good input today.
Dillon, you got me considering the cbd.

In the last year(10 days short), I have changed alot of things.
Much lower caffeine: used to drink8-10 cups coffee/day and 3- 5 cokes a day, but now prefer water.
Never took pills, now I take 4 vitamins and3 prescibed meds/day
From active people person to recluse with phonophobia, misophonia, H,T,V..
Avoided listening to people drone on about their ailments, now I are one... When someone asks..

Been reading about advances in alternative over the counter treatments for H and T. The H is by far my worst enemy so attacking that one first. Since there is like 3 legal mj stores within 1/4 mile, Im gonna start with the CBD for anxiety and sleep. I have used zanex for sleep and been prescribed amitryptaline, but didnt care for the "thick" feeling the next morning. Id love to sleep for more than 4 hours without that.

Maybe start a new thread to report the results. Ill try for a week.

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