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Willie

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Posts: 4
Reply with quote  #1 
Hello!
I have had tinnitus since 2013 following an ear infection. In 2016 it became more severe and I also developed mild hyperacusis in my right ear during an antibiotic treatment. I did not realise it at the time thou as I did not know what hyperacusis was.
Then 8 months ago I had a fight with my girlfriend in the car and since then I have pretty severe hyperacusis.

I can not have a conversation st””at a normal level without a lot of discomfort. All sounds are loud but the biggest problem is the sounds kind of bounces or pokes in especially my right ear. As long as there is a sound something reacts in the ear.

Other peoples voices are really hard to tolerete as they ”break through” and sort of vibrates in my ear.
But the worst part is that I have trouble with my own voice.

When I talk something in my right ear seems to be vibrating. So I get really tired from talking. I can not really focus.
But If I put a little pressare to the bottom of my ear it stops vibrating and my own voice does not bother me that much anymore and I can speak in a normal volume of voice. It is really strange. How can the pressure stop it? Is that really the hyperacusis? It has got to be something actually vibrating?

Does anyone else have this?
What does it point to?
TTTS?

Of course I have been to an ENT, and they say it is just tinnitus and I should live with it.

Any ideas?
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Willie

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Posts: 4
Reply with quote  #2 
Does anyone else here have this symptom? Is it normal to be able to stop the vibration in the ear?
If I hum a melody to myself it is actually vibrating from my own voice. In just the right ear. And if I put my hand and press to the bottom it actually stops. And I can hum without discomfort.

Noone has this? =)
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darryl61

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Posts: 23
Reply with quote  #3 
Hi Willie,
I am really sorry you have this.
Be kind to yourself. Have compassion.
I do not have the vibration. I do have symptoms of TTTS ear fullness.
My voice sounds too loud and sometimes my tinnitus comes on or changes its sound in reaction to my voice. I live alone and work from home. I read out loud at different times of the day to try to make the sound of my voice not so intrusive. Hyperacusis and tinnitus have so many sound manifestations for me.
I am working with an audiologist in Australia (I live in the US). Her consistent words of advice are to try not monitor, try not to get so upset and roll with the punches and slowly my mind will turn down the alert and this will get better. I listen to music and talking through a shoulder speaker and sometimes through a small speaker in my desk.
Take care
Darryl

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Darryl
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JW

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Posts: 7
Reply with quote  #4 

Hi Willlie (and darryl)

Willie I have various symptoms of what i consider loudness and pain hyperacusis. But i also think i might share this vibration with you, which I find not everyone has.
the "vibration" was actually how i first noticed hyperacusis in a quiet environment, before realizing everything is too loud. People use terms like distortion or echo but i dont think that is it. See if this sounds like you:


If i finish sentence, i will hear a brief vibration in my hears, like a little delayed feedback or fuzz. It lasts only a second, probably less than a second in actuality. This correlates perfectly with an actual noise catalyst (unlike delayed pain and such). It need not be a loud noise and may be different than my loudness discomfort level. Someone speaking or putting something down on the counter, even if not loud, i can get this vibration. It is very easy for me to replicate. I can snap my finger somewhat close to my head and have the vibation. The vibration is not pain, but it is uncomfortable. Does that resonate with you?

I spoke with someone who considered this TTTS, and they got the surgery and this aspect of hyperacusis resolved, though for this person the surgery did not resolve other aspects.

Darryl, are you speaking with dr Wescott in Australia?


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JW
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Willie

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Posts: 4
Reply with quote  #5 
Thanks for your reply!

It sounds a bit like mine. Especially the part about being able to replicate it. Just like you I can hit something like a glass with a spoon and the ear reacts a millisecond later. Like the sound is poking my ear. I guess it is a muscle spasming..

With my own voice or other voices it is more like as long as there is a sound the ear reacts. I don’t know how to describe it. But just like you say it is not exactly pain but more like a really unpleasent feeling.
It’s a bit like the sounds bounce in my ear. Or like a grinder or something is turned on and off. As long as the sound is there the grinder is on. And sort of irritates and vibrates in the ear. I agree that an echo is not a good way to describe it either.

And when I talk my right ear is sort of humming along. The vibration you can feel in your chest while you talk. I feel the same in my ear. Very uncomfortable. If i hum a different notes I feel vibrations in my right ear.

I had this with Bass sounds even before it got worse.
Basstones bounces in the ear. The louder the Bass the more uncomfortable. Maybe this is the echo people reder to?!

Even thou the sounds are more uncomfortable than bringing pain I get a dull pain and fullness from prolonged sound exposure.

I don’t have the swooshing that Many seem to have. But I have a lot of that and cracking and popping when I Yawn and swallow. It is really loud and feels more like a whip in my ear.

I have trouble with the shh-sounds as most H-people.
But if I would describe the worst part of my problem it is that sounds have became like pressurevawes. I feel the sounds in my ears as pressure.
High frequency sounds are sharp, and everything middle and low is like pressure.

So voices and that kind of sounds is like a combination of a sharp stick and pressure.
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darryl61

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Posts: 23
Reply with quote  #6 
Hi JW
Yes to your question

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Darryl
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