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TamiW

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Posts: 4
Reply with quote  #1 
Hello,
   I have just discovered that I am not losing my mind and I am not a crabby drama queen because I cannot tolerate the sound of car engines, motorcycles, dishes clanging, babies crying, kids screaming, cell phones ringing and people talking loudly in a group. I can't go into a grocery store without headphones on. I can't go into restaurants at all. And if you're here, you know the other ways my life has been impacted by hyperacusis.
     I had a head injury in 2017 and I have had extreme noise sensitivity since then. I have always had fullness in my ears with constant fluid draining, itching, about 50 ear infections in my life. I thought that I had anxiety and it wasn't until I got tinnitus as well that it occurred to me that this is not all in my head, it's literally a problem with my ears.
   I saw an ENT and they referred me to a specialist for hearing retraining therapy. Insurance does not cover it, I'm looking at thousands of dollars. In the meantime they told me about an app that is helping.
   They mentioned that I could get hearing aids that they use to treat tinnitus. Insurance does not cover this either and it's about $2,000. I would spend $10,000 + to get my life back as I have been isolating and avoiding social events for nearly 2 years. This is nothing in comparison to some of your stories. I'm glad I found this network. Please let me know if you have any experience with getting these hearing aids that basically dilute sound and have a calming sound going into the ear (such as waves, etc.). Thank you in advance for your help and feedback!
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LauraB

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Reply with quote  #2 
I’m with you on car engines etc! Add lawnmowers, the freezer, cooktop exhaust fan, microwave, bathroom fan, hand dryers. We live a mile from a motocross track. The whir on weekends goes through me. My problem started with the greatest innocence. I was swapping out a frayed flag on our flagpole. I tried to ignore a feeling of high pressure while I cleaned house looking for fabric to mend the flag. I was a classical pianist when my h and t struck. I am still hoping for ways to play again without my piano sounding like a blacksmith pounding with his mallet on his anvil. Not offering solutions but just to let you know you are not alone and your experience is real.
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Laura Brannen
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ecshen

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Posts: 11
Reply with quote  #3 
I have T/H/mild to moderate hearing loss.  I have Widex hearing aids that is to amplify sound so I can hear better and it also has other functions to let you hear clear and with calming sound effects such as white noise and theraputic sound technology. Their phone app have many sound effects and that is only available to the hear aid users, I think. See https://www.widex.com/en-us
Hearing aid are covered by insurance, if you have hearing loss. There is a free Starkey Relax app that offers claming sound effects.

Do you have hearing loss? If not, the hearing device that you mentioned not cover by insurance maybe is a wearble hearing device over the ears that have music therapes to eliviate tinnitus bothering which I am not familiar.  I have tried TRT for a month which is like a hearing aids that has white noise to change your tinnitus perception, but it did not work for me.




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ecshen
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TamiW

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Posts: 4
Reply with quote  #4 
Quote:
Originally Posted by ecshen
I have T/H/mild to moderate hearing loss.  I have Widex hearing aids that is to amplify sound so I can hear better and it also has other functions to let you hear clear and with calming sound effects such as white noise and theraputic sound technology. Their phone app have many sound effects and that is only available to the hear aid users, I think. See https://www.widex.com/en-usHearing aid are covered by insurance, if you have hearing loss. There is a free Starkey Relax app that offers claming sound effects.

Do you have hearing loss? If not, the hearing device that you mentioned not cover by insurance maybe is a wearble hearing device over the ears that have music therapes to eliviate tinnitus bothering which I am not familiar.  I have tried TRT for a month which is like a hearing aids that has white noise to change your tinnitus perception, but it did not work for me.



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TamiW

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Posts: 4
Reply with quote  #5 
Thank you for your reply. I only have slight hearing loss in my left ear, so the insurance did not covering the hearing aids. I ended up purchasing "Oticon" aids that stream calming waves. I have found that combining this with relaxing music, such as harps, helps a bit. I'm still working on other noise therapy and trying to be patient as we head into "motorcycle season" in the Chicagoland area. I will keep everybody posted on whether or not the hearing aids help long term.
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Aplomado

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Posts: 627
Reply with quote  #6 

I have the general hearing sound generators for hyperacusis therapy.

They help a lot.

However, the fact that I am still on this board shows they have not been a silver bullet for me.

Yours results may vary.

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TamiW

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Posts: 4
Reply with quote  #7 
Hi, I'm not familiar with the general sound generators, can you tell me where I can find more info? I've had the hearing aids that are streaming a wave sound since last week and they help a bit in certain situations. However, they are useless for outside noise. They do help a bit in stores. What is everybody using for a noise therapy device? These were $2,900. Insurance did not cover any of it. Thanks!
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Aplomado

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Posts: 627
Reply with quote  #8 

I think this is the sound generator I have:

https://generalhearing.com/professional/tinnitus-products/tranquil-i/

It is not a hearing aid, it only generates noise.  It is designed as a tinnitus muffler, but it works for hyperacusis by desensitizing your ears.

I had really good results with it at first, but had some bad relapses.  It is still helpful, but I am not cured.  

It is very expensive about $3k for me.  It was worth it.  

I got it through my TRT audiologist.

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