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Michael84

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Reply with quote  #1 

it's been almost a year since i have hyperacusis
, I'm really losing all hope, I can't accept to live with this disorder, I'm at the limit. I would simply heal, I don't want money or anything, just my life back.
fortunately I have now managed to book a visit from an audiologist who, fortunately, knows this disorder.
I would learn to live with it, because I know it will last a long time, but i really don't know how.

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Rita

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Reply with quote  #2 
Don't be disheartened - I've had hyperacusis (and tinnitus) for seven years - it was terrible at first, but with the help of a good audiologist (and using ear plugs occasionally) i can manage.   I will never go to a concert again or even movie theater - much too loud.  But with the help of occasional ear plugs I manage bingo, church, occasional restaurant, social gathering, etc.   It helps the tinnitus to have background sound of some kind on TV or radio at all times.







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Essiesn

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Reply with quote  #3 
Good Ear doc and audiologist who knows tinnitus/hyperacusis are the key. I have the sound generating hearing aids and take Gabapentin. I have all but discontinued use of ear plugs per advice of audiologist. But no I do not go to concerts, movie theaters or loud restaurants. Life can be quite good with out them. DO NOT GIVE UP. I saythe wrong audiologist and wrong ear specialist for 4 years. With bifocals, I am hopeful and improving.
Wishing you the best.
Essie
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Essiesn

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Reply with quote  #4 
Disregard Last message where spellcheck put bifocals !!!!!
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JohnMarc

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Reply with quote  #5 
Mine was really bad and I know what you are feeling... 15 months ago it all started for me, pretty much every loud or soft sound sent shooting pain in my ears. Today I can go to the movies, be out at the bars for hours and hours without any problem.. rock out to loud music in my car.. do everything I could do before.. just takes some time, hang in there
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COYS

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Posts: 16
Reply with quote  #6 
Johnmarc what caused your H? Mines from acoustic shock and after ten weeks it’s not really improving.

The TTTS hasn’t improved either [frown]
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cozo

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Reply with quote  #7 
Hi there there is hope please join my Facebook page.
HYPERCUSSIS SURGERY SUCCESS TALK. Lots of information on there from people suffering with this crappy condition

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dean cosnett
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JohnMarc

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Posts: 26
Reply with quote  #8 
COYS, mine was acoustic injury too... got TTTS too.. takes most people months, up to 1-2 years to recover.. so I am not surprised you aren't seeing improvement in 10 weeks.. and it isn't a straight line improvement either, so there might be weeks, or a couple of months of no improvement and possibly even worsening.. it is like the stock market - ups and downs and ups and down, but long term always goes up 😉

So patience is the key.. we all want a quick recovery.. when I first got this, every night I hoped I would sleep it off and be fine the next morning.. but didn't work out that way.. make sure you don't use earplugs in most circumstances, keep doing sound therapy
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COYS

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Reply with quote  #9 
Do you have any symptoms left? I'm not using ear plugs at all really at the moment.

I will start to in noisy environments though
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JohnMarc

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Posts: 26
Reply with quote  #10 
If you already are where you don't need to use earplugs and you are only 10 weeks into this, then you'll be fine because yours is a very mild case compared to a lot of people on this board.

I still have mild tinnitus which doesn't bother me much at all.. it's improving ever so slowly too so I won't be surprised it is gone one day.. and if it doesn't go, like I said no biggie since it doesn't bother me and I hardly notice it it's that quiet.. was louder when I had my acoustic injury. Other than that, nothing really.. maybe occasional itch kind of feeling in the ear, but I don't know if that's a remnant of the H or just a normal itch that you get anywhere on your body time to time. And maybe my tolerance for really loud annoying sounds is less than it used to be, but again these cause annoyance rather than pain or setbacks, and I'm talking about sounds that most normal people find annoying - sirens, loud music on BAD quality speakers, annoying subwoofers turned up all the way that rattle your body
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COYS

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Posts: 16
Reply with quote  #11 
Sorry should have said I dont use ear plugs for everyday noise like traffic etc.

My ears twitch when i hear sudden noises or sometimes i get a thump when i stop talking.

I was somewhere yesterday with loud music 85-90db and had to leave after an hour as my ears started to hurt (wont be doing that again without ear plugs).

I have mild T which I can put up with 90% of the time. Its just the ear pain and TTTS that is getting me down a little.


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JohnMarc

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Reply with quote  #12 
An hour of 85-90db is actually very good at this early stage.. could have been a loooooot worse like it is for a lot of people.. but do be careful not to overexpose yourself as the ears need time to heal
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COYS

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Posts: 16
Reply with quote  #13 
I've bought some alpine party plugs so hopefully they will do the trick.

Thanks for your support 😉. Its good to know it can get better.

Thanks,

COYS
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JohnMarc

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Reply with quote  #14 
You're welcome. This board is a very good place for tools, strategies, support, help etc.. but one problem here is that only people who are still suffering tend to be posting.. those who have recovered and are back to normal life don't come here.. I don't know why I'm here myself right now lol.. but because of this, it can look very scary when you see people talking about having this for years and years, but those are just the more rare cases I believe
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COYS

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Reply with quote  #15 
I’ll bear that in mind thanks :) glad you made a full recovery in terms of the H. Being able to go to bars etc is where I want to get back to :)
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JohnMarc

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Posts: 26
Reply with quote  #16 
Haha yes, pretty girls at the bars is what I missed the most when I was in this.. and I like to think they missed me too while I was AWOL 🤣
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Curry

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Posts: 37
Reply with quote  #17 
Hi everyone, I'm new here. I also have hyperacusis. I've had it for about 2 weeks now, and sometimes my hearing is okay, and sometimes it's not. I've been learning how to cope without any therapy, cause I'm scared to tell my parents I have this. They would assume it's my fault for not taking care of my ear, when actually, this symptom just came to me out of random. I just wanted to ask, is there any solutions or treatments that you know of without having to see a therapist?
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Michael84

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Reply with quote  #18 
@COYS in my case i can listen music at volume like at 70db and i can tolerate music at 80-90 but not for long time after a year of hyperacusis without treatment
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COYS

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Posts: 16
Reply with quote  #19 
Has it improved at all ?

I’m worried mine won’t improve
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Curry

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Reply with quote  #20 
@Coys

How long have you had it?
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COYS

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Posts: 16
Reply with quote  #21 
About ten weeks. The H isn’t so bad it’s the TTTS that’s so irritating
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Curry

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Reply with quote  #22 
@Coys How can I tell if I have the TTTS? I only got H 2 weeks ago. Also, how are you coping with it?
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COYS

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Posts: 16
Reply with quote  #23 
It’s a thump or twitch in your ear when you hear noises.

Mine does it to sounds that I don’t even perceive as loud. And my ears flutter to noises
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Curry

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Posts: 37
Reply with quote  #24 
Then maybe I don't have TTTS. When I hear loud sounds, I flinch to it. I don't really feel a thump in my ear. Unless it's the same thing. And how do you cope to this symptom?
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COYS

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Reply with quote  #25 
Just trying to ignore it as much as possible really.

Hoping it will just fade or disappear eventually
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Curry

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Posts: 37
Reply with quote  #26 
I know same for me here. I know it sounds cliche, but I pray to God and I let him know with what I have. So far, it's been working somewhat. But I'm hoping for the same thing also. Just hope that it goes away without any physical treatment
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COYS

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Reply with quote  #27 
Was yours caused by loud noise or something else ?
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Curry

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Posts: 37
Reply with quote  #28 
See that's the thing. I don't know where I got it from. It just came to me randomly. I don't know if I got it from playing music in my car just a little bit loud or what, but that was like 2 months ago.
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BCX

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Posts: 37
Reply with quote  #29 
Pink noise for Tinnitus Retraining Therapy (TRT). Cognitive Behavioral Therapy (CBT). Two ways to manage your tinnitus and hyperacusis. I have both for 2 years now and able to go almost anywhere I want to. But still wearing ear plugs for emergency purposes.
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Curry

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Reply with quote  #30 
Did you go to see a ENT? I haven't yet, but how would I find Pink Noise? Is it something I can do on my own without actually having to see one?
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BCX

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Posts: 37
Reply with quote  #31 
Yes, I've seen an ENT and he was terrible. No help whatsoever. You can find pink noise on YouTube. There is also brown and white noise for people who can't handle pink noise. Make sure to listen to at a volume that you can handle.
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Curry

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Posts: 37
Reply with quote  #32 
How effective is it really? And how long do I listen to it for and how many days a week?
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BCX

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Reply with quote  #33 
Pink noise retrains the brain and helps it adapt with high frequency noises. I wouldn't say it's super effective but it's doable. I listen to pink noise everyday and at a comfortable volume at least 2hrs a day. You can listen it through a speaker or headphones.
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Curry

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Reply with quote  #34 
@BCX When you listen to pink noise do you listen to it by increments instead of listening the whole 2 hours?
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BCX

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Reply with quote  #35 
2hrs a day with a separation of 30min each. For example, I'll be listening to pink noise 30min, stop for an 1hr, then go back and listen to it 30min, then stop and continue.
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BCX

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Posts: 37
Reply with quote  #36 
I used headphones and it hurts if i listen it for 2hrs long lol so I broke it into 30mins each
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Curry

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Posts: 37
Reply with quote  #37 
I still have yet to try it, but I'm worried that if I do it on my own, something might happen. Also, for a daily job in the morning, how do you deal with H? Do you listen to it up early in the morning and then go to work, or tolerate with it during your job? 
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BCX

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Posts: 37
Reply with quote  #38 
It depends, I used to listen to pink noise before I head to work or after I get off. Now, I listen to it after I get off work bc it helps me relax after a long day of being exposed to all sorts of sounds.
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Curry

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Posts: 37
Reply with quote  #39 
The thing is, I'm planning on applying as a Teach Aide for a preschool, and one of my concerns is if they have a school bell or a fire alarm that might trigger my H worse. I also thought about the pink noise, and it's actually a 5 hour process, which would mean I would have to wake up at 2 in the morning, and be ready at 7 to get ready for work
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Curry

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Posts: 37
Reply with quote  #40 
UPDATE: Just did my first 30 min session at home with pink noise. As soon as I took off my headphone, it felt the same as before I even tried it. Am I supposed to feel the effect when I do 2 hours of pink noise? 


BTW: @BCX, am I supposed to make the pink noise louder or at the volume where I regularly listen to music? 
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BCX

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Posts: 37
Reply with quote  #41 
Pink noise/sound therapy takes time. It took me at least 4-5months to see improvements. Listen to it at a comfortable volume, not too loud bc it'll worsen your tinnitus. The first few months, you'll notice a bit of a difference and then later you'll improve a bit more little by little. Some people will see improvements and some will get worse over time. I don't know why but that's just how it is.
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Curry

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Reply with quote  #42 
That's one of my fears. If I keep listening to it in the next few months and no improvements have been made, or it gets worse... 😫 *knock on wood*
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BCX

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Reply with quote  #43 
Only time will heal. Goodluck!!!
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Curry

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Reply with quote  #44 
Thanks BCX! Let the healing begin! 🤞
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HST

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Reply with quote  #45 
Bcx, ו did 16 h aday!6 mo it Not help t it's called the trt,also have tinnitus,from the first. 3 mo also before did sound therapy.. It all scumbaj to shut up our mouch,its don't work. U can't do it where u are in noizY imvairment. Don't try.. It will make your h worth!!!and your t also. I did it only in state of no noizy. I wanna be dad because may h, also have chronic t, it's noise truma! It's hell more then a cancer!!! not hilling,all the doctors here in my country can not hill me from this,sone of them are stupid in this case!!! I think that it better 3to us to be be a deff!!!.!! Deff is better then us!!! I can't work, he can!!! He don't fill any pain we ,he can enter any place he want?!! We can't. I have from mild pain to a hard extreme pain,u can do a masking,it will help u til 25 or 3odb morethan your ldl, but u want here people talking g at all, with the mask, I mean.
with sony or Bose qc 35ll,its hell to me..its nerve or brain damahe in my case..i can't continue with test that I don't knew if them good for me here- no neurology can help me from here in my country, I am stuck!!!!! ,my MRI is good, cause that is what have to be in ht case!. Someone help me to discover what was damage with my hearing? By Megtest ?, anybody knew where to do meg test for h?i Can not go outside with out my headphone with some music song that I can here for mask ... Not loudly o c. Can't here people talking g to me, only what make me pain... Or panicking of been in shock with the most painful pain after it .that I felt... See this-kdisk problems in the back it's nothing like the h hard pain!! May lord hill us soon right now!!! I live alone because my this hearing Los, it's not disorder, it is most harmless kind of hearing loss, this is how I see it.

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HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
I am ht
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BCX

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Posts: 37
Reply with quote  #46 
@HST there isn't any specific medication or surgery that will help with H or T. That's why I said, "Only time will heal." Everyone is on a different path and sound therapy may or may not work for some. But it is the only method that has helped me and others cope with certain sounds. Plus, 16hrs is way too long. I recommend anyone to do sound therapy (pink noise) bc it has changed my life. God bless us all!
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HST

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Posts: 15
Reply with quote  #47 
Hi
A where is your damage in the hearingsystem , did your ent told u? What objective tests did u do to improve it? Did u do a Meg test?
B what was the fr(in hertz) that help u with your h? For how long did u do it in days? Why u think that 2 h is better then til 16h away?
C. How did u manage with your h, does it mild moderate or severge or very severe?
D. Do u have frequency with 50 db ldl? I can't even do breakfast test become of my h!!!the entire says he afraid of more damage if I do it... Did u did break test cause of your h?
E. Do u use only earplugs?
F. Do u have h loss also...i have it is nerve damage also.
G. Do u have tinnitus all day, like me? I can't handle it without maskeven for 7 sec!!!,it is all the time in my ear, it could be in 2 Estes together!!!
H. What was the cause of your h t? My couse wasn Truman a or maiby asd cause of strong pushes of booze near 1. CM or less from my ear, I have it in my 2 ears!!!!
I. I can't handle it without my headsets,2 kinds.
Do u can handle your life inside your home, not even outside, with out be wearing any earlplugs or muffs?
I wanna knew if there anyone here that his h is like mine, I had 5 time of shock, with real hard pain, all of them is because noises, some of them was 40db only!!!.
Over few y, u can't tell me that it will past away..... It's not true at all. Time will not hill it, the opozite it true, my friend. The surgery is for tots or pet, not for my damage.
Help me anderstand... I don't think there is any hope..... I am sorry. I can hear 5 gram of plastic falling on the floor and it pain!!! Now u anderstand me. Do any body have here shock for few seconds and neaRly it hard pain after, even the noise was gone?


__________________
HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
I am ht
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HST

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Posts: 15
Reply with quote  #48 
Hi
A where is your damage in the hearingsystem , did your ent told u? What objective tests did u do to improve it? Did u do a Meg test?
B what was the fr(in hertz) that help u with your h? For how long did u do it in days? Why u think that 2 h is better then til 16h away?
C. How did u manage with your h, does it mild moderate or severge or very severe?
D. Do u have frequency with 50 db ldl? I can't even do breakfast test become of my h!!!the entire says he afraid of more damage if I do it... Did u did break test cause of your h?
E. Do u use only earplugs?
F. Do u have h loss also...i have it is nerve damage also.
G. Do u have tinnitus all day, like me? I can't handle it without maskeven for 7 sec!!!,it is all the time in my ear, it could be in 2 Estes together!!!
H. What was the cause of your h t? My couse wasn Truman a or maiby asd cause of strong pushes of booze near 1. CM or less from my ear, I have it in my 2 ears!!!!
I. I can't handle it without my headsets,2 kinds.
Do u can handle your life inside your home, not even outside, with out be wearing any earlplugs or muffs?
I wanna knew if there anyone here that his h is like mine, I had 5 time of shock, with real hard pain, all of them is because noises, some of them was 40db only!!!.
Over few y, u can't tell me that it will past away..... It's not true at all. Time will not hill it, the opozite it true, my friend. The surgery is for tots or pet, not for my damage.
Help me anderstand... I don't think there is any hope..... I am sorry. I can hear 5 gram of plastic falling on the floor and it pain!!! Now u anderstand me. Do any body have here shock for few seconds and neaRly it hard pain after, even the noise was gone?


__________________
HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
I am ht
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HST

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Posts: 15
Reply with quote  #49 
D. I can't even do bera or brain but test!!! For my h l... Anyone did one of it for his h? Or t?
__________________
HYPER IS ATOM PAIN
TINITUS IS  NO PAiN BUT FANTOM
I am ht
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Curry

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Posts: 37
Reply with quote  #50 
@HST How long have you had the H? I can understand why you think doing 16 hours a day of therapy will help heal it faster, but from my opinion, I feel as if the ears start to become numb of what it's hearing. Covering your ears for 16 hours a day, it will make things even louder. BCX recommended to do 2 hours a day because you have a chance to listen to pink noise and be able to rest your ears before going back into therapy again. You got to give your ears a chance to rest from the therapy. I've only done the pink noise for 30 minutes and I wasn't able to continue it because my parents think it'll be suspicious of me to have headsets on my ear when I'm doing therapy. I'll continue to do therapy tomorrow. But if you want to do BCX method of sound therapy for 2 hours a day, do it by increments. Start off with 30 minutes of pink noise, rest for 1 hour, continue 30 minutes of pink noise, rest for 1 hour, and keep doing it until, the 30 minutes add up to 2 hours of listening. It's actually a very long process, but I hope to see improvement for everyone, you and myself included. And I've said this in the past posts, if you're religious, pray to God or the Lord. That's what I do. May sound cliche, but I feel like he's actually listening to me with the problem's I have going on in my life
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