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Risfoki

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Posts: 12
Reply with quote  #1 
Ok so I got a very bad setback 8 months ago after going to a club at Christmas time while I was recovering from a medium Hyperacusis. I wore ear plugs and went to the club and it was in an open area and I tried to stay away from the music source as much as possible but even with ear plugs I made my Hyperacusis worse. So now after going to ENT and now I have been on a sound hearing aid generator for 8 months. So it is playing an ocean sound for 12 hours a day in my ear and also they amped up the volume on the frequency were I have a very very mild hearing loss. I am about 3% below the border line of the hearing loss which my ENT doctor said is extremely mild. But my delima right now is that I have stayed away from music for 8 months now and recently I started listening to music through regular headphones of my computer or TV. I heard from some people that said if you have noise induced tinnitus from music and got Hyperacusis do not listen to music through head-phones ever again. That has scared me. But then I have heard a lot of musicians they healed their Hyperacusis with headphones by listening to music on a very low volume. What should I do? I feel like I am getting better but the only thing I cannot handle is when I go to grocery store or wall,art and they are playing music through their speakers. I just cannot handle music. What should be my protocol on this? Any help? Just listen music through regular speakers or should start listening to music through headphones? Thank you in advance.
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RV
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MusicalMommy

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Reply with quote  #2 
I have been told by an audiologist to keep my son’s environment rich with at ear level sounds at his comfort level. She said any and all sounds at his comfort level including playing video games on the computer with his headphones. He cannot tolerate pink/white/or brown noises well, but can handle music now. Yes people with headphones in call centers, or while listening to music or YouTube gamers can trigger hyperacusis but my thought is they are not able to control sound levels in those cases. If someone yells, or maxes out their mic on YouTube there are plenty of loud sound exposures, also generally people listen to music way too loud. You wouldn’t be listening at a level that isn’t comfortable for you. My son also at first (since at his lowest measured his LDL was 35-40, he pretty much had a complete collapse of all sound tolerance) he could not listen to regular music that had too much acoustic variation or dynamics. The only music that was ok, was from the BellTone Calmer App, and I mention that because it’s a good place to start. The negative with headphone use is that you are blocking out natural outside sounds/background noise when wearing headphones so that can sometimes make your brain turn the volume up because that sound is missing. Yet we were in the situation where that was most times already too much sound so his only sound at first was through headphones with crackle fire noise on the app, (the one he liked/tolerated best at the time.) There are different schools of thought, unfortunately what works for one person, doesn’t for another and no one knows why. So it’s up to you to figure out what works best for you with what available to you.
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Just trying to help my 10 year old son.
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Rob

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Posts: 60
Reply with quote  #3 

I heard from some people that said if you have noise induced tinnitus from music and got Hyperacusis do not listen to music through head-phones ever again. That has scared me. 

Risfoki, listening to music through headphones won’t hurt you.    

Rob

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Cathu

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Posts: 52
Reply with quote  #4 
Quote:
Originally Posted by Risfoki
Ok so I got a very bad setback 8 months ago after going to a club at Christmas time while I was recovering from a medium Hyperacusis. I wore ear plugs and went to the club and it was in an open area and I tried to stay away from the music source as much as possible but even with ear plugs I made my Hyperacusis worse. So now after going to ENT and now I have been on a sound hearing aid generator for 8 months. So it is playing an ocean sound for 12 hours a day in my ear and also they amped up the volume on the frequency were I have a very very mild hearing loss. I am about 3% below the border line of the hearing loss which my ENT doctor said is extremely mild. But my delima right now is that I have stayed away from music for 8 months now and recently I started listening to music through regular headphones of my computer or TV. I heard from some people that said if you have noise induced tinnitus from music and got Hyperacusis do not listen to music through head-phones ever again. That has scared me. But then I have heard a lot of musicians they healed their Hyperacusis with headphones by listening to music on a very low volume. What should I do? I feel like I am getting better but the only thing I cannot handle is when I go to grocery store or wall,art and they are playing music through their speakers. I just cannot handle music. What should be my protocol on this? Any help? Just listen music through regular speakers or should start listening to music through headphones? Thank you in advance.

Hi  RV
That was brave of you to go to the club.   I can;t stand the supermarket or shops.  I Have to wear my ear plugs. There is usually a charity in front of the supermarket entrey with a HUGE Big Speaker booming..and then there s the LOUD announcements at the supermarket,and screaming kids, and falling over noisy things....
I went to my Audiologist last week. Going to give me a gadget  I can plug into TV and the sound streams to my Aids...  I could have had a gadget to go around my neck for talking to people..bu t the TV is a great start for me.  I  have HUGE trouble speaking. I lead a VERY quiet life and only talk to a very few people.    Some music is quite okay...especially Gospel and some Christian Rock. Some times I can't even understand or know what the songs are. Its very strange .  We have  the 24 /7 Christian channel on TV  so it will be good to see if  I can really enjoy the music once again.  I Have screaming loud 24/7 Tinnitus too, so its doing my head in  Let us know how you go there RV!



Good luck with your search.

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Aplomado

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Posts: 695
Reply with quote  #5 
Listening to music at a volume that doesn't bother you may be helpful.  As you feel better you can slowly up the volume.
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Peace

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Posts: 18
Reply with quote  #6 
I too have a very solitary life now. All my social life is gone. I can’t go out even to walk without plugs n my pockets because a Gardner or dog or anything will scream into my category 4 hypercusis. It’s reactionary my T - gets higher for quite some time like days afterward.
So I am blessed to have my home and my husband ans my few distractions. I am close to God and she has shown me His strength and His presence more and more in this storm now.
I want to get a cat like I use to have. Sierra has to be put down due to bad kidneys last May. I still dream of her. Miss her badly. But I think pets like quiet pet (😉) would do us well

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Victoria Peace Green
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