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darryl61

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Tinnitus Since:6/1/19
Cause of Tinnitus and hyperacusis unknown--depression?

Hi,
I have tinnitus that comes and/or gets worse when I am exposed to sounds.

I experience these things and somehow they are caused by hyperacusis:

-Ear fullness and distorted hearing that gets better if I equalize the pressure in my sinuses by doing the valsalva maneuver. Comes right back though.


Sometimes my tinnitus gets lower and these thing/s happen:

-headache
-or neck ache
-or both
-or ache above my eyes like a sinus headache
-sometimes my legs feel weird
-and the sound sensitivity gets worse.


I was in the bank signing some papers on Friday. Seemed SO loud, but it wasn't and I felt like my heart stopped.

After sleep the symptoms "reset" and it happens all over again, but rarely the same symptoms two days in a row.

Does anyone with hyperacusis experience any of these things?



Thanks,
Darryl

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darryl61

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Reply with quote  #2 
Does the lack of response mean no one else has the symptoms?
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Margy

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Reply with quote  #3 
Hi Darryl;

I experience some of those things but not all of them. I have had a pretty severe case of hyperacusis for the last five years. In this last year, the tinnitus which had been quiet became an almost permanent part of me. I often don’t pay attention to it, but often for the smallest of reasons, it will decide to really squeal at me. Driving sets it off, and other loud noises bring it on. It’s a bother.

The worst is the physical discomfort and pain caused by the hyperacusis. My neck is affected, along with every muscle on my head. I get intense aches in all the areas you mentioned.

I used to have a nerve condition where my legs felt weird. It was caused by my nerves higher up getting pushed on too much by muscles or bones. It wasn’t part of my hyperacusis, though.

My heart feels affected by especially loud, deep sounds, like powerful motors. It feels like the noises make my heart start skipping beats.

So there are similarities and differences.
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Peace

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Reply with quote  #4 
Hi Daryl,

I am thrilled I found the Hyperacusis Network. I think you are in based in UK. I live in Texas
I just got on this board. I do have H and T and Autophony (I hear my own voice). It has been four months ago on this day I had an acoustic Trauma from my daughter (she gave me a giant smacking kiss on my ear opening.) it was all innocent ....She missed me and came to say welcome back in town. Anyway, No I don't have it where I get those specific things to heighten or lower the T. But it just comes on higher of lower because of TOO MUCH noise the day before...Or some foods that I ate...or salt..but I am so watchful for what I eat...very limited diet now due to many foods have salisytates in them..and products we use for our personal use have salisytates which have numerous symptoms and one biggie is Tinnitus or T as I call it.

My life has stopped...I have no more life outside myhome. My husband is amazing man who I have been with since I was 17. We have kids and grands but no one 'gets it' but him. He has the patience of Job.

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Victoria Peace Green
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Cathu

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Reply with quote  #5 
Quote:
Originally Posted by darryl61
Does the lack of response mean no one else has the symptoms?

Hi Darryle
Hope it  s settled down  a  bit..  It is very stressy at the bank.  There s usually no air in there, it s hots and full of computers and techy gear.
I am the same  with the library      and it  s  a shocking light in there.  ANd my reflection looks awful in my ipad when I am there doing printing and research.  And stressful too.
I went to my 5tH ENT dr  at Westmead Private Hospital  which is next to Westmead Main Hospital   and  Australia's Corona Virus Hospital .  I went past the Parking station entry and there was an exclusion zone for the whole block, with a new case coming in....
The New ENT spray stuff up my nose and put a camera up there!! FREAKED me right out!  (Poor man..)
He suggested a Holiday to help me Tinnitus and Hyperacusis.......

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Cathu

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Reply with quote  #6 
Quote:
Originally Posted by Peace
Hi Daryl,

I am thrilled I found the Hyperacusis Network. I think you are in based in UK. I live in Texas
I just got on this board. I do have H and T and Autophony (I hear my own voice). It has been four months ago on this day I had an acoustic Trauma from my daughter (she gave me a giant smacking kiss on my ear opening.) it was all innocent ....She missed me and came to say welcome back in town. Anyway, No I don't have it where I get those specific things to heighten or lower the T. But it just comes on higher of lower because of TOO MUCH noise the day before...Or some foods that I ate...or salt..but I am so watchful for what I eat...very limited diet now due to many foods have salisytates in them..and products we use for our personal use have salisytates which have numerous symptoms and one biggie is Tinnitus or T as I call it.

My life has stopped...I have no more life outside myhome. My husband is amazing man who I have been with since I was 17. We have kids and grands but no one 'gets it' but him. He has the patience of Job.
 
Hi Victoria!
I m glad your husband understands   he must be a very good listener, and done alot of research. He  sounds  amazing!
 so many normal noises and make life murder  its  amazing.
Have you found that your diet plays any part of the  T?
I shall have a google of Autophony..
I got it from my 1st ENT doing Micro suction. The gadget sucked onto the ear drum SO LOUD!!
Agree there    with life stopping after we get it.
From something so simple  as  kiss  you got it......  That s so sad.
My 5Th  ENT recommended a Holiday!   I have to separate the noise from my brain....um  How?
It s a NIGHT MARE  

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Kiwigirl

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Reply with quote  #7 
I have longterm hyperacusis and tinnitus. I have twice resolved acute hyperacusis by starting a daily dose of magnesium. It was effective within a couple of weeks, maybe less. I took it for several years after the first time with no further acute problem, then stopped taking it. Had another acute onset a couple of years later. Ignored it at first but eventually had to start the Mg as couldn't go anywhere. And it worked again. I still wear ear plugs in noisy environments and still react badly to a clanging pot or other sudden noise. I think each incident not only brings on increased tinnitus briefly but also worsens the tinnitus permanently. I still take the Mg. No physical pain but I relate to the sinus thing. I think I have chronic inflammation somewhere in my head but haven't had any breakthrough with ENT specialists. Condolences to my fellow sufferers for your even worse symptoms.
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Peace

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Reply with quote  #8 
Yes he gets it. But it’s still as you know a huge new place of existing. And we do it alone. (From the others) God is my refuge and strength and gives me wisdom for this.
You and me are rare in the T family. Most don’t have Hyperacusis. As you know. The suction you got at the ent was akin to my very snack or suck kiss she gave to me. Have you seen “ kids of deaf” website. Dr Levi Reter is the doctor of audiologiy that discovered this sucking to be the demise of the hearing and the occurrences of so m at symptoms
Foods of many kinds (which I so adored ) exacerbate my T and the muffling / pressure.
I am 5’6” and weigh now 100 lbs only. Lost about 12 pounds in four months. I use to drink glass I’d white wine. No more. Very bland diet. Sounds -ambient external noise can continue to jack up the T we have to be so careful. I love this Hyperacusis network and the education we are receiving here.
Do you listen to pink or white noises ?

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Victoria Peace Green
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Peace

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Reply with quote  #9 
Oh Cathu I forgot to say the only thing that helps me separate the noise from my brain( good terminology) is reading historical fiction and reading the Word of God and cross stitch and doing the pink noise two hours a day so far. Jesus is alive and lives forever. He came to live inside me 6/1975. Check out my author website for more of who I am as a person. Victoriapeacegreen.com. Or google my full name - victoria peace green. I Just began this regiment of pink. I looked it up here in Hyperacusis network.
I also have to live now in the present. Moment by moment. There is no other way. That’s why I have a hard time also with the rest of my friends and family. They live in the future. I’m talking even tomorrow is not the present.

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Victoria Peace Green
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darryl61

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Reply with quote  #10 
Thank you all for responding.
Mine came on after tinnitus, which started out soft and now can get pretty loud. My tinnitus comes on and/ or gets louder when I hear fans furnace motors microwaves etc.
makes it impossible to be normal.
I am so sorry anyone has to suffer this affliction.
Darryl

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mb62

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Reply with quote  #11 
Hi,

I am having strange symptoms as well.  Hyperacusis in both ears, tinnitus that seems to bounce from ear to ear.  Pressure in both ears.  Definite symptoms of depression, such as weight loss, lack of interest in normal activities.  Neck pain, lack of ability to focus, fatigue.  But hard to tell if it was depression that caused hyperacusis or the other way around.  All has developed over the past 6 or so months.  I saw an ENT and an audiologist, I don't have any hearing loss which is good.  But other than that they were not much help.  ENT said to take a vacation and I'll probably forget my symptoms...yeah don't think that's going to work.

Any help with getting started with TRT on your own?
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Peace

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Reply with quote  #12 
Yes. I have hyperacusis and T in both ears...those things can cause major depression...your life has changed 180 degrees.  Your H didn't happen by some depression. If you have Hyperacusis in both ears, did it get diagnosed by the audiologist? I usually comes because of some incidence; a accident or a long time effect of loud noises in your ear (s).

The neck and/upper back are all tied to many times a TMJ. TMJ is tied to Tinnitus in many many ways...Get your neck MRI or CT...get to an orthopedic work up.
I am about to do just that. Get some good PT person that understands the both go together. You may have TMJ.  It all takes time to make it work and allow yourself to fail- to be just what you are feeling too. Depression or great sadness because of loss. I do CBT therapy. Check out that too. Just remember we are all feeling like you do ....and we are here for one another.

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mb62

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Reply with quote  #13 
I've seen an audiologist and an ENT.  Luckily, I don't have any hearing loss.  But beyond checking my hearing, they weren't much help.  The ENT actually said "just take a vacation, you'll feel better!"  Not helpful.  I should get checked out for TMJ though.  My jaw has felt weird, like it's hard to chew.
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darryl61

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Reply with quote  #14 
Hi mb62,
I was going to start sound therapy with hearing aids with amplification turned off by the end Of March, but the pandemic put that on hold indefinitely. I am trying to figure out a way to do it on my own, but my reactive tinnitus makes it difficult, not that it would not have been difficult with hearing aids. I am determined to not give up.
Telling someone to take a vacation shows how little that the “experts” know.
If my 1st ENt and audiologist would have recognized hyperacusis 8 months ago I might be closer to recovery.
I try not to be bitter, it does not help.
Getting angry feels terrible. Before T and H I use to rage. I am better in some ways than I was before.
Take care

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mb62

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Reply with quote  #15 
Hi Darryl,

Thanks for the note.  Yeah, it is frustrating, especially when I come on here after my appointment and read about different tests they can do like loudness sensitivity (or LDL?) that weren't even mentioned by the ENT or audiologist.

And to your point about symptoms.  For me my hyperacusis is worse than my tinnitus.  And yes I've had a lot of the same symptoms:

-headache
-pressure and fullness in ears and can't clear them
-or neck ache
-or both
-or ache above my eyes like a sinus headache

In addition I get weird neck muscle spasms in the front of my neck occasionally.  All of which were dismissed by my ENT saying "oh I'm not worried about it."  OK dude that's awesome you are not worried about it, how about the fact that it's slowly destroying my life.

About a week ago I started with experimenting with pink noise sound therapy with my phone and a pair of wireless headphones, and honestly, even after a week I think I feel a difference.  The first few days I started with ear buds, but it hurt to physically have something in my ear so that's why I went with over the ear headphones.

Take care,

Matt
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Kiwigirl

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Reply with quote  #16 
I can relate to the frustration with the medics. I got so cross with them telling me about my symptoms rather than listening that I gave up. But I did make an appointment with the local University's Tinnitus Clinic a while back which was due next Tuesday but is now cancelled due to lockdown here.

I'm about to give Sound Therapy International another try. I have ear buds and a bone conduction headphone. Is that what you mean by 'over the ear phones'? I worried last time that the ear buds were making the tinnitus worse, tho STI said it often gets worse before it gets better. They thought the bone conduction phones more likely to make it worse. I gave up at that point (after 3 months daily use) but might join you in trying with my bone conduction headphone from today. STI plays specific classical music.

The problem seems to be that each case is very different from the last.

Good luck!
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mb62

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Reply with quote  #17 
I just got a standard over the ear (foam piece covers around your ear) noise cancelling blu-tooth headphones.  Inexpensive, they're not Bose or anything but seem to work well.  I'd like to try the Bose at some point before investing that much money, to see if the sound quality is that much different.  Mine were sub-$80, but again seem to work fine.
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Peace

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Reply with quote  #18 
I have been against NC headphones since I heard the pressure of the void or vacuum seal can cause more issues with Hyperacusis and or make the T react. I use mine without the noise canceling button on
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Margy

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Reply with quote  #19 
There’s no vacuum seal. Noise-canceling headphones simply work by making sound of the opposite sound waves that you hear, so the sound is canceled out. But it doesn’t work perfectly, so sometimes the sound canceling is not helpful.

But there’s nothing to be afraid of. They’re often very helpful. They’re great for removing droning lawnmower noises!
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NB42DB

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Reply with quote  #20 
I got the noise cancelling headphones and they make it worse because it's like they are responding  to low frequency noise, so that's what i get in the head set and it's like getting punched in the gut when i put them on. I've lost patience with trying to figure out how to adjust, because it does not appear i can.
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