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Butterflildy99

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Posts: 3
Reply with quote  #1 
Hi all ! I'm new to the network. I've have hyperacusis for over a year now . I'm a hairstylist and it has ruined my life almost . I work in a small Studio but lost a lot of my clients when first diagnosed and along the way. I can't handle 8 to 12 hr days anymore sometimes I'm lucky with 4 before my senses are overwhelmed and I'm sick . I find people are very non understanding.
I was was wondering what people with our condition do for work as hair has always been my passion and retail anything is very loud and undoable. . I'm single and need to support myself..I've had no luck with a disability work counselor...and got turned down for disability itself. life is going downhill and I was hoping to find help here.
Thanks for any help
Shanna
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trying

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Reply with quote  #2 
Hello, you might want to look at the thread on "disability support" not long ago--some exchanges you might find relevant.  These are hard issues for sure.

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Steve2017

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Posts: 131
Reply with quote  #3 
Hi Shanna,

Did something particular start your H off - for example maybe concerts or clubs, or one moment when involved in some sort of very loud noise trauma? And did T 'tinnitus' come along side with it? 

This info below, I hope might help others as well...

I'm a lot older than you with grandchildren, I still have T but I have spent the last 2 years researching energy - we are all made of energy - bones, blood, brain, and yes even the air we breath all 100% energy. So with this in mind, we are all energy - I decided to study how it all works for better health.

Along my way with research I came across many times 'the power of your mind' - I now use this method to calm T.... When sometimes during a particular day and 'Tin' is having a go - up a bit I use this 'mind power' to knock it back down - 2 ways i've found of doing this, 1. if its during daytime and its having a go, I find lots of little jobs to do, remembering to breathe to relax the mind, 'focus on nice things (nice positive thoughts)' while doing jobs.

Then an hour later its down to a reasonable level.

2. if its having a go during the night, take your mind away from it - imagine eating apple pie and custard or something similar over and over and over - or use your imagination to FLY or ride your bike around your favorite park 'its mind power it works' -  its a way of ignoring T and then feeling slightly better which again lowers T because of less stress.

Now there's a thing 'stress' and 'thoughts' - both increase T - relaxation and nice thoughts is what your after and definitely not fear, don't give it any respect, keep busy, busy, busy, little satisfaction jobs, and remember to rest in between for 10/20 mins to calm the mind, make yourself think nice thoughts, 'its rewarding' less stress..

H..... I'm 99% cured, but in my case it just crept up on me over many years - I never heard of hyperacusis, i just used to tell people I'm just a little sensitive of hearing, but it got ridiculously worse, with ear plugs, no fans etc before my turning point when I beat it, but i remind people i don't think I ever damaged my ears with over excessive noise, H just crept up on me 'brain got fussy' I don't like that sound, and i don't like that sound either.

Hope this Helps someone - feel free to ask any questions Shanna or others.

Regards
Steve. 




 

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s simpson
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Steve2017

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Reply with quote  #4 
I'd just like to mention with what ive researched, the brain is like an amazing computer, but its 'you' - 'the self' - steering the power of the mind that in turn is pressing the buttons on the keyboard of this amazing human computer. So having said this, can I remind people who have H and T or either, not to handle on charge mobile phones, and definitely not put them near the control centre... the ear -  when 'on charge', bad energy comes off them, just for 1 cm then goes back, but if you see its like its glowing bad energy - and to keep screen time and brightness lower, eyes will adjust...
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s simpson
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Butterflildy99

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Reply with quote  #5 
I had surgery. I had my Eustachian tubes dilated on both ears and a new ear drum made on my R ear .
The day after surgery I woke up with H and T.
Extreme on both . The R is always worse. I didn't leave my house for several months. Ironically my ENT doc that did the surgery told me I was going deaf beforehand.
12 doctors later a doctor I found on this network ran tests and found I have excessive fluid in my cochleas and put me on a diuretic to dry it up. That has helped significantly but it still suffer from H and T .. loud noises or constant and yes stress set off the T and make it louder . Loud noises or constant anything or earplugs make the H worse.
The pain and loud has gotten better with the diruteics unless I hear a very high pitch then I just get sick ...beeps, sirens and bass are the worst. The T seems to aggravate the H
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Steve2017

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Posts: 131
Reply with quote  #6 
You've gone through a lot I can tell. You're here looking for solutions - maybe people now will reply to you on this forum offering different options, ive read on this forum people like me and there are more that have found solutions for H.

We're not bragging we're offering hope!! When i'd sorted H and i finally got to see a T specialist on the NHS which seemed like a century waiting, my first words were its too late for me give the hearing aids to someone else, but she insisted and two weeks later i had hearing aids and gave me some comfort.

Ive gone 18 months now without hearing aids and ear plugs. I say im at 99% sorted on H - just that about a year ago I went to a wedding with a 100 people chattering in low ceiling room and I thought brain get on with it, take it, but after that hour I was trashed mentally and it took me 2 days to get over it - anyone else with ideas to offer??  

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s simpson
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