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Thierry

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Posts: 15
Reply with quote  #1 

Hey guys,

im new to this forum

I have tinnitus and hyperacusis now for 1 year. I have got it from loud noise ( party) the tinnitus and the hyperacusis are now worse than 1 year ago. i have different sounds and my ears are hurting more. 
The tinnitus is not the big problem but the hyperacusis is becoming worse and worse.  voices from people hurts in classes and have to put on my ear plugs in the car. i think it became worse because of the 5 or 6 evenings with loud noise i attended with my 33 decibel earplug the past year. 

My question is how can i settle down my hyperacusis and can i still go to loud places ( clubs and partys) with my earplugs? i listen to pinknoise everynight but it seems not to help. I put the pink noise on the lowest volume because if i put it harder my ears hurt when i wake up.

I need some help and tips!! im 25 now and in the past year everyday i was thinking about my tinnitus and hyperacusis. i want less stress and my hyperacusis to settle down but i don't know how?

Thanks for the attention!!

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bellsareriging

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Reply with quote  #2 
Hello  Thierry,

This is just  one persons opinion  but  after  5 yrs  of  full On Hyperacusis, I know this !  sadly for you,  and your  Question !

My question is how can i settle down my hyperacusis and can i still go to loud places ( clubs and partys) with my earplugs?

You  cannot, you  will not be able too ever  attend  loud  places ( club's  Party's)  with ear plugs,  Noise  =  Hyperacusis  the louder the noise, the  worse  your  ears will  suffer.

After  5 yrs of the  most debilitating pain  I have ever experienced in my  life  of  over 60 yrs, I have learn't  to treat  my ears  as  if the  last noise I heard depending on the  volume, was going to  deafen me, permanently, so I have to exercise caution at all times with My ears,  even in My quietest  days, My ears  can feel like  some one  is poking  a hot  poker into them, so please  do Not  use  ear plugs and go party.  25  is so very young  and  you have a life time ahead of you,  but your  life  has to be  around your  ears, Look after them.
The  less stress part,  will  come when you  start  thinking  Less Noise in my life.

Tips !  accept   H & T  then  research how to  live with them.

turn down the  volume  your  ears are exposed too.!  see if that helps [blinkphones]

Bell  
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DanMalcore

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Dan
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Reply with quote  #3 
Thierry,

I am wondering if you have ever made an appointment with a qualified clinician who treats hyperacusis.  It sounds like you have been trying to treat this on your own with little success.  If you have not already done so I would strongly encourage you to get professional help in treating your hyperacusis.  With diagnosis, properly administered sound therapy and ongoing directive counseling there is a high likelihood that this will 'settle down your hyperacusis.'

Dan

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"Yesterday is ashes, tomorrow is wood, only today does the fire burn brightly"
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Thierry

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Reply with quote  #4 
@bellsareriging

thanks for your quick answer i get your point and i totally onderstaand why you say this and how it now feels i know its true that i can't go to clubs and partys. but i know people that have hyperacusis and still can go to to partys. I spoke with a dj and he had severe hyperacusis. after he did dry needle therapy the hyperacusis settled down and now he is playing at partys again. 

It must be possible right that there will be a time that i can go to a party?

@danmalcore 

thanks for your quick answer too. i have been to an audiologic. but she didnt treat my hyperacusis. i think i will make an appointment with a doctor who threats hyperacusis.


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bellsareriging

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Reply with quote  #5 
You are very welcome  Thierry,  Dan,  do you honestly  believe that Thierry  will be able to attend Clubs and Party's  at full volume again and  not damage his ears  further, have set backs, suffer more,

Can a  hyperacusis   clinician  Promise  or deliver  such with treatment?


Can we  please have  a " My life and ears  returned to Normal after treatment   &  the  word and sufffering as
 a  hyperacusis  sufferer  was erased  from my life.   For the  sake of a young 25  yr old  please Only  Honest answers.

House of Blues, a chain of music venues owned by Live Nation, will offer Vibes earplugs for sale.

"This move was made to help promote awareness of the issue of noise-induced hearing loss as it relates to live entertainment."

Vibes earplugs, designed to reduce volume evenly in order to preserve the quality of the music, cost $24 and attenuate sound by 22 dB.

It is long overdue that music venues acknowledge and publicize the auditory destruction caused by amplified music events. Hearing loss is not the only result. Hyperacusis and tinnitus can also develop after a night at a concert or club.

We hear from many people who regret their attendance at an amplified event. Even more steps can be taken, including the availablity of cheap or free earplugs with instructions for use, prominent warnings on websites and tickets, and prominent signage telling of the real danger.

[image]
Music fans attending live concerts at the House of Blues national chain of concert halls can protect their hearing without losing the music experience, because Vibes Hi-Fidelity Earplugs are sold at all venues.
hearingreview.com

Bell
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Thierry

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Reply with quote  #6 
@bellsareging 


Do you really think it is not possible anymore to go to clubs and partys (inside with full volume) with 33 decibel custom earplugs?

and do you think i can go to a festival in the summer?

i have been to 2 festivals last summer with my earplugs and i only have been at the back and not continiously in the loud music. I felt my ears after this day but they didnt hurt. it was more that they hurt from the earplugs i had in for 8 hours. the days my ears hurt from the music were the days that i had partys inside like clubs.

i know what you are trying to say that the best is to cancel all the loud places but i think a festival is still possible. 

i have 33 decibel earplugs and im standing in the back. so im not standing in 100+ decibel music level.




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bellsareriging

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Reply with quote  #7 
Thierry  I have found some  case studies for you,

"Although loud music feels and sounds good, it's not good for you."

This excellent story on the dangers of loud listening comes from The Sun Chronicle in Attleboro, Mass.

"Hearing loss is something Kyle Mercier, 21, of Attleboro says he won't worry about until later in life.

"The music I listen to is loud enough to cause damage, but I'll worry about that when I'm 60," he said. "No matter what time of the day it is, I'm listening to my music loudly because when doing so, you really get the full effect of each song."

It's that "concert-goer" attitude that can lead to hearing loss down the road," says audiologist Ann Stockwell, who has many music students as patients.

People erroneously believe that the consequences of loud listening are trivial and distant. However, hearing loss in 40 years is not the only possibility. Loud volumes can also cause crippling hyperacusis and tinnitus, which strike with little or no warning, and are often far more disabling than hearing loss.

"Loud music evokes something in us - it's very enjoyable, and that's why it's so dangerous," Stockwell said. "People wouldn't listen to a jack hammer for hours on end, but they will listen to music for hours on end."

 Thierry, I tend to  research, then gain as much information as possible, I  have the  yrs  to look  beyond  25  for you,  you will Note in the  first  one they mention  the  dangers  of Hperacusis & tinnitus,   this  second one relates to why the young  Like the  music  loud.

It cannot be a  coincidence that of all the  H& T  sufferers  a large  majority are musicians. who Now  only  listen or play music on Low volume.  

I have seen a picture of kids at an out side rock concert, all wearing ear  protection, Noise cancelling  head phones  and listening  to  some  of their own music  on a  low volume.    I believe the  World is finally, but slowly catching up  to the dangers  of Noise  in Our Society's - when  Bands  start  handing out  ear plugs to their  concerts  they already Know the  effect and cause. 

Thierry, I love Music, I am a ' Child of the  70's ' think of some of the music from that era, to name two  Beatles,  Rolling  Stones,  I  never  got to their  concerts  but  I listened to their music,  and  all Music in between, I am a music  girl, if some one  told me at 25  to stop,  turn the volume down, I  would  Kick and buck to the point of ignoring,  stating 60 yrs is along way  away, well I am telling you, that 60  comes around very fast, and how we look after  ourselves  in our  younger  days is how  we will manage the pains of aging. and that goes for Our Ears,



Bell
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DanMalcore

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Reply with quote  #8 
What I am saying is that you need to by placed in the hands of people who know what they are talking about and know how to take care of you. Most audiologist and ENT's are clueless on how to treat hyperacusis, particularly if an individual's decreased sound tolerances continue to worsen. Any clinician can google hyperacusis and make up a protocol with broadband noise and hand you a bill. No one on any message board can diagnose you or make any promises to you. I do believe that your chances of you enjoying a life filled with the sounds you yearn to immerse yourself in again are very good. Now, you can disregard anything I am saying, continue on the path you are on and believe you can do this on your own.
I felt that way back in 1994. I went to my audiologist, told him to order me a pair of specific sound generators and embarked on a sound therapy completely on my own. Running the network I learned of the protocol that was being given to patients and thought I could do this on my own. I got a call from the University of Maryland where Pawel Jastreboff, Jonathan Hazell and Susan Gold wanted to see me since I started this network. I really did not want to put my ears through the noise of traveling from Wisconsin to Maryland but felt it was important to learn, first hand, from experts in the field of hyperacusis what was the latest and, was I self-treating myself properly. I hated the trip but it gave me my life back. This is the same kind of decision you have to make.
It is really all up to you. I don't know you but I do care about you and want the very best for you. Think seriously about making an appointment with a qualified clinician who has been trained to treat hyperacusis. A list of those clinicians is posted on this message board. Dan

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bellsareriging

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Reply with quote  #9 
Dan, In 2014  I  met with  One of the trained  Clinicians, you write about,  took  her advise  as " The Bible

 and the Holy  grail"  every thing she told me  to do I did, including  cognitive therapy,  but  I  soon found

Out that" One size does Not  fit all" - we have to  explore other options, to treat  out Hyperacusis.

For Thierry, I  would like to  see him  do some  research and  give the   club's and Party's  a miss for the time.
 
 Let his ears settle down, his  emotional  state  settle  down, get informed  advise  particularly

regarding His question  when can he go   to Party's and clubs with Noise?

Tips !   try  doing  some research on the Hyperacusis  Research  face-book page.

Question? for all on the Board  has anyone  returned  to a Noisy  venue, Live concert  ?

But !  Thierry  if you think  that a trained  clinician  can help you book an appointment, I doubt  that   they 

will  ever advise  you to  go back  to such a Noisy Environment as Club's and Party's

For  every  success  story  we seem to read about, we also read of the  ones where  their hyperacusis & tinnitus  returned   with  revenge. silence is the most powerful scream.jpeg 

Bell. 




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DanMalcore

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Dan
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Reply with quote  #10 
One size does not fit all.  But I can tell you that running this network for 26 years and communicating with thousands of individuals suffering from DST, most are helped with seeing a qualified clinician.  Not all qualified clinicians are a good fit for every patient.  Such is life...

I have said all I need to say about this.  I wish you well...

Dan


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saab1216

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Reply with quote  #11 
Thierry..I just want to add that...having the right attitude about your health and less on your "fun" is important.First things first...get the proper help. Then,focus on your healing and use of proper protocol.There are many wholesome and quieter things to enjoy in life than clubs and parties.You may even discover a mature outcome from leaving it be. As for me, My focus was solely on getting proper help,plenty of rest and learning to fly solo. It was rewarding in so much, I can now do the once impossible. As a requirement for my security job,I must shoot firearms every year.At well over 120dbs.you would think the worst. I do use earplugs and a set of muffs. I discovered that the ear muffs alone are adequate. I no longer attend loud concerts.Reataurants,moderately loud places
that include a family type environment are my choice. If I want loud music,I do my own thing at home or in the car. It's at my disposal and easily turned down or off. Patience is key and the correct attitude to lead the way. Best to your recovery.
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rodmccain

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Reply with quote  #12 
Hello,  In answer to your question regarding loud places,  the answer I will give you is NO.  I do not believe this is a good idea.  You do not need to be in LOUD PLACES, especially with hyperacusis/tinnitus.   You can have an interesting full life without it!

Even if you are 100% recovered, it can come out of remission.  I communicated with people, that have had this experience.  I also had a mild H with T years ago from a water irrigation.  Since that time I avoided loud places, music ect.  Currently I have severe H and T from an enclosed MRI, with 30 decibel hearing protection!!   I DO NOT have much faith in hearing protection anymore.   Yes...I did have the earplugs in correctly with muffs over them that the hospital gave me. 

It is your choice....but for me personally it is definitely not worth the risk. 

Hope you are feeling better soon!!

Kathy Mc


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xuzo

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Reply with quote  #13 
Quote:
Originally Posted by rodmccain
Hello,  In answer to your question regarding loud places,  the answer I will give you is NO.  I do not believe this is a good idea.  You do not need to be in LOUD PLACES, especially with hyperacusis/tinnitus.   You can have an interesting full life without it!

Even if you are 100% recovered, it can come out of remission.  I communicated with people, that have had this experience.  I also had a mild H with T years ago from a water irrigation.  Since that time I avoided loud places, music ect.  Currently I have severe H and T from an enclosed MRI, with 30 decibel hearing protection!!   I DO NOT have much faith in hearing protection anymore.   Yes...I did have the earplugs in correctly with muffs over them that the hospital gave me. 

It is your choice....but for me personally it is definitely not worth the risk. 

Hope you are feeling better soon!!

Kathy Mc




Sorry to hear that Kathy, do you think you will recover from that MRI? I'm afraid to get one also...
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rodmccain

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Reply with quote  #14 
Thank you for asking.  You are very kind.  The answer is.....I really don't know and neither does anyone else, including the medical community.  My condition apparently is very rare, so I am told.  I believe though, I feel obligated to tell people of my MRI experience. 

I still have some hope, but honestly the longer I have this condition, the less hopeful I feel.

Please take care, and will offer a prayer for your healing.

Kathy
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DrNagler

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Reply with quote  #15 
Quote:
Originally Posted by rodmccain
I still have some hope, but honestly the longer I have this condition, the less hopeful I feel.

I am not in any way trying to be rude, but what exactly do you mean when you refer to "this condition?"

By that I mean: What is your diagnosis, and how confident are you in its accuracy?

stephen nagler

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No bird ever soared in a calm. Adversity is what lifts us.

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janeygirl

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Reply with quote  #16 
I agree 200% with Dan Malcore. I tried to do it all myself and suffered for years. Once I worked with an experienced person who knew Hyperacusis and especially did TRT, I not only recovered but I have been able to live a normal life (including going to regular life events.) I take earplugs to movie theaters in case the noise is too loud but I don't usually have to wear them. I now live a normal life. I expected a 15% improvement but I would say I got nearly 100%. Caution: I had to vet a lot of folks who would have known about hypercasusis. I learned to get a list and start calling and asking key questions. I found several people by asking others and interviewed them via the phone. It worked! Among the best things I've ever done and could NEVER have done it without the support of Dan, this Board and many others! I suffered unnecessarily. 
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Jane Parks-McKay
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rodmccain

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Reply with quote  #17 
Hi Janey,  May I ask what your specific symptoms were, and how long before you sought help?  Also, were your symptoms caused by an "event?"

Thank you,
Kathy
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Thierry

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Posts: 15
Reply with quote  #18 
Thanks for the answers everyone. @janeygirl How was your condition with h before you were helped. Were Some voices painfull to you or did you feel them? And have you done the TRT with ear generators?

I have made an appointment with a clinican on the 28th. I really hope my H gets better too. If TRT with ear generators is the key solution i Will do it. At first i was a little bit scared to wear ear generators. I dont like the idea to wear them and everyone can see you have this in your ear.
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Thierry

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Reply with quote  #19 
And can you tell me Some of your tips or are they too complicated and have to wait for the clinican?
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