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Queenmacha

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Posts: 76
Reply with quote  #1 
Hi,   I've got 2 questions  (A)   why is it that on T V ,  if they are showing some event and there might be flashing lights ,  they warn people about it.   So why do they not warn people with Hyperacusis , about loud shriek noises that rise above your T V's decibels settings and can cause you to jump and cause pain ?.
(B)   And what, if anything , is been done to inform the general public what Hyperacusis is.I was in Craigavon Area Hospital in Northern Ireland for 8 weeks and some of the Nurses had never heard tell of it , and worse still , I was mocked and physiologicly  abused twice by 3 assistant Nurses.    All they got was an admonishment





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joe mc gahan
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Rob

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Reply with quote  #2 
Joe -

No question that hyperacusis is not terribly well known.  I'm not surprised to hear some of the nurses you spoke of had never heard of it.  It sounds like the assistant nurses you encountered should consider a career as wedding planners.  From my perspective, while some doctors are familiar with hyperacusis, most are unaware how to treat it - some clinicians still advise patients to rely on hearing protection.  I also believe there is growing interest in researching hyperacusis and there is more literature available on the subject than when I developed hyperacusis about ten years ago.   

Rob 
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jirimenzel

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Posts: 183
Reply with quote  #3 
Quote:
Originally Posted by Queenmacha
Hi,   I've got 2 questions  (A)   why is it that on T V ,  if they are showing some event and there might be flashing lights ,  they warn people about it.   So why do they not warn people with Hyperacusis , about loud shriek noises that rise above your T V's decibels settings and can cause you to jump and cause pain ?.
(B)   And what, if anything , is been done to inform the general public what Hyperacusis is.I was in Craigavon Area Hospital in Northern Ireland for 8 weeks and some of the Nurses had never heard tell of it , and worse still , I was mocked and physiologicly  abused twice by 3 assistant Nurses.    All they got was an admonishment






The most probable answer to the second question is the terrible standards of research, combined with desperate patients sloshing out money, have led to very sloppy quality on the subject. Hyperacusis is an over-diagnosed term that in truth is probably just a symptom, not a diagnosis, where the real diagnosis most often might be middle ear myoclonus. So the mainstream is now always referring the patients to sound therapy and shrinks and that merely has led to mainstream doctors convinced its just anxiety
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gardennut

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Posts: 140
Reply with quote  #4 
It's interesting that tinnitus is getting quite a lot of attention lately, with new aids being developed all the time. this is probably because it is affecting more people as the age demographic increases.
The incidence of hyperacusis is, as I understand it, much less, so we get ignored. I wish there was a way to inform the general  public about this ailment.
As an aside, the local main branch of the public library in my city has converted to The Place Where no one has to say SSH. They now have piped in music, a piano any one can use, plays performed and musical concerts. I think they still have books.....    We have a lot of noisy construction going on this year as a lite rail system is being built and streets are ripped up. They work all through the winter also. I would think someone would get the idea that people need a place if peace and quiet to retreat to now and then.
Guess I should write a letter to the editor...... Donna

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Donna Keddie
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