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tjl731

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Posts: 40
Reply with quote  #1 

Im having a tough day today. My ears are HISSSSSING off the charts and my hyperacusis is as well. All sounds are exacerbating an already loud hiss to begin with and makes the hissing worse. The sound of typing on the computer, handling my bath towel after a shower, the sound of the water running in the shower, the sound of the water running in the kitchen sink, the sound of wiping the counters with a dishcloth, talking and especially "s" words, and even the sound of my husband rubbing my back when he hugged me!  Arrrgh!  It sounds like someone running their hands through a million tiny crystals today. Its like my ears are hissing LOUD and hearing these sounds amplifies it louder and then when I quit doing the task that makes it intensify it goes back down but is still loud, just not as loud as before the sound was heard. I have my good days and bad days when the tinn/hyper is lower on some days and louder on others but tody, well..this is tiring!!  How you get through and what do you do????

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saab1216

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Posts: 95
Reply with quote  #2 
I feel your pain. Right now I have cotton plugged in my ears to mask the annoying sounds. On bad days,I put the sound gens in my ears and plug cotton around any ear openings that let in sound. This treats the tinnitus and blocks the offensive sounds. I hope this will work for you. I know about those crystal sounds as well. It makes sense to me.
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Paul H
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tjl731

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Reply with quote  #3 

Thanks for your reply.  It is amazzzzing, today my tinn/hyper is low. Yesterday was awful with it. Its like a light switch going on and then off. I know that some days are better than others. Havent had a bad day like that in a lonnng time. Oh I've had some ringing where its high but tolerable, unlike yesterday where it got my attention, I couldnt focus, was distracted, fatigued. It makes me appreciate the good days. When my tinn/hyper is low (I never know til I wake up in the morning) I take a bath so that the sound of the shower doesnt spike it upwards. Besides, the hot bath is soothing for the stress so I figure it wont hurt any I use cotton in my left ear. I find that if I use one cottonball in the left ear it limits the amount of sound into my ears. If I wear no cotton my tinnitus seems to increase. I do the best I can. I am going to a clinic nearby soon to talk to get a second opinion and talk to them about the Neuromonics program they have for tinnitus. It doesnt treat hyperacusis I dont think but instead works on helping you to get your focus off the tinnitus. 

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lynnie

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Posts: 2
Reply with quote  #4 

Hi tjl731,  do you also have hearing loss?  I've had hyperacusis for about 2 years and I totally relate how somedays are worse then others.  I say it feels like someone scratching my open wound with their nails sometimes.  And i always thought it was cause for my frequent exhaustgen (SP)  I have almost total hearing loss in my left ear so tomorrow i have surgery to remove my incus bone.  I just can't stand it anymore.


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lynn fountain
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DrNagler

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Posts: 218
Reply with quote  #5 
"When your tinnitus/hyperacusis is at its worse, how do you handle it?" 

Til, you have pretty much answered your own question.  You focus on the fact that it's going to get better - just like it did with you - and you move on through the day as best you can.  The knowledge that things will improve is a very powerful weapon in your arsenal.

In my opinion.

smn

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tjl731

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Posts: 40
Reply with quote  #6 

Thanks all for your thoughts. What I was really wondering is (even though I know I have my good and bad days) is how do you cope and get through the day when your tinnitus and/or hyperacusis is elevated?  What works for you to help you get through the day?  I did answer my question to some extent in that I know I have good days and bad days so I look forward to the next day and hoping it is better.  Attitude can certainly be key! Some days though it is hard to keep and wondered what coping mechanism do you use to cope on days when you tinnitus and/or hyperacusis is bad?? 

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DrNagler

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Posts: 218
Reply with quote  #7 
I realize that some days it's hard to keep a good attitude, tjl.  None of this is easy.  It's not supposed to be easy.

But you yourself just said that you have your good days and your bad days.  You asked for ideas about how to cope on your bad days, and in my opinion taking full advantage of the peace of mind brought to you by the 100% certainty that there are good days to follow is an excellent coping strategy.  Don't just pay it lip service.  Instead, know it deep in your gut.

At least that's how I see it.

smn

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tjl731

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Posts: 40
Reply with quote  #8 

Thanks for the replies. I deal with menopause as well which can affect ringing in the ears and some days its more difficult to get the attitude out of my head and into my heart that there are better days ahead when I feel at my worst, but I am working on giving every day to God and learning to lean on Him in my heart everday and know He is in control.  Thanks!

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DrNagler

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Posts: 218
Reply with quote  #9 
I like the idea of your giving every day to God.

I love the idea of your leaning on Him in your heart.

And I very much agree with you that He has control.  But He has chosen to give us all free will.  And what we do with that free will - what we make of ourselves and how we help ourselves and others - well He's left that largely up to us.  It's important not to squander the opportunities and the challenges He has placed at our feet.  Your tinnitus and hyperacusis?  You can view them as a curse ... or you can view them as an opportunity and a challenge.

As I see it.

smn

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aQuieterBreeze

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Posts: 2,083
Reply with quote  #10 
I think it is fortunate that as difficult as hyperacusis, and tinnitus can be to deal with,
there are positive steps we can take to increase out tolerances to sound
So that the way we are affected by these challenges can change
in a VERY positive direction
but it does not happen by itself....
though we can be very grateful (and in my view we should be) that we are able to take positive steps to increase our tolerances.to sound.

And there are also steps we can take to make it so tinnitus is not as much of an issue for us  as well.

And there is a comfort in knowing that there are things we can do -
so those difficult days may be fewer and further between
and we will be able to tolerate more in the way of sound, overall.
As as we take steps along that path towards rebuilding our tolerances to sound- things can get better as we go -
and many around here have noticed that,
and are doing much better than they were at one time.

To be able to get better, and see and  hear improvement - is a blessing.
But we need to take the steps that will allow us to do that.........
to rebuild our tolerances to sound,
in ways that are appropriate and beneficial for us to do so.
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saab1216

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Posts: 95
Reply with quote  #11 
Talking and listening to God is much easier for me.People drive my ears crazy! Maybe God is telling me something!
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Paul H
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