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Bisch

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Posts: 2
Reply with quote  #1 
 I've had Hyperacusis since 1994. I originally started going to hearing (eye,nose,and throat) doctors and they always told me there was nothing I could do. I didn't even learn of the term hyperacusis until I found this sight. When I brought it up to the doctors they never even heard of the term. I'm currently trying to get disability and have been trying to get evaluated. Some have suggested that I see a neurologist. I saw one years ago and he said he couldn't do anything unless I had an MRI. He let me stand by while it was being used and I couldn't stand the sound for 10 seconds, let alone the 20 to 30 minutes that was needed. When this first happened, I found a doctor who gave me a test that involved inflating a balloon in my ear. He said he was able to determine that I was "recuiting like crazy". Does anyone know what that test might be?
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Bisch
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Johnloudb

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Posts: 1,951
Reply with quote  #2 
If only I had a dollar for every dumb doctor out there. ENTs don't treat or know much about hyperacusis. Same goes for most neurologists.

Do have hearing loss? Do you know what caused your sound sensitivty? So one doctor diagnosed you with recruitment?

Hyperacusis is diagnosed using a loudness discomfort level (LDL) test. If you have hyperacusis then seeking out good TRT help would be the way to go.
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Aplomado

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Posts: 711
Reply with quote  #3 
As John said, make an appointment with an audiologist trained in TRT.  ENTs are worthless with hyperacusis!

Hopefully, you will get some relief with TRT.
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Madmaggot

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Posts: 26
Reply with quote  #4 
I know some people who used drugs for epilepsy and their hyperacussis went. Perhaps investigate this?
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