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Thierry

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Reply with quote  #1 
Im thinking of doing TRT to reduce my H. Is it possible to do TRT without the in ear generators. I know it it the best to do it with them. But i dont want to wear the generators during the day
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DrNagler

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Reply with quote  #2 
The TRT protocol for hyperacusis requires the use of wearable broadband sound generators.

There are other effective approaches to hyperacusis desensitization (e.g., the Hyperacusis Network's Pink Noise CD), but if you are specifically going to do TRT for hyperacusis desensitization, you must use the wearable devices.

stephen nagler

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No bird ever soared in a calm. Adversity is what lifts us.

- David McCullough quoting Wilbur Wright
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Thierry

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Reply with quote  #3 
Do you know all the approaches besides the pink Noise cd?
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DrNagler

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Reply with quote  #4 
All of them? No.

Rob probably knows all of them, but I do not.

stephen nagler

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No bird ever soared in a calm. Adversity is what lifts us.

- David McCullough quoting Wilbur Wright
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Thierry

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Reply with quote  #5 
OK Thanks for your answer!

I have another question. On the tinnitustalk forum they strongly adviced me not to listen to white or pinknoise through earbuds But Only use ear generators or a soundmachine (machine or speakers cd)

Why not the earbuds if i put it on the lowest level?
It looks like it is the same as ear generators?

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DrNagler

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Reply with quote  #6 
I suspect it's because they want to discourage you from occluding your ear canals.

stephen nagler

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No bird ever soared in a calm. Adversity is what lifts us.

- David McCullough quoting Wilbur Wright
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debk_1

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Reply with quote  #7 
I bought the BOSE noise-cancelling EAR BUDS for my Tinn//hyperacusis.  Now I read that I should NOT be putting earbuds in my ears??  Is this true?  Mine came on with a neck injury where the nerves travelled up to my ears and scalp so the heavy overhead ones look like they would hurt to wear.  Yet, it also hurts my ears to have ear buds in for very long.  What's best???
PS - I have the pink noise CD which I also was listening to with earbuds.  Ooops?  Should I just play it on a regular CD player?  thanks!!  Deb
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DrNagler

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Reply with quote  #8 
What's best in a given circumstance really depends in large part on what your diagnosis is and what you are trying to achieve. For instance, there is nothing wrong with using a BOSE noise-cancellation unit with earbuds if you are on a plane and want to protect against noise-induced auditory damage, but earbuds are not such a great idea if you are doing a hyperacusis desensitization pink noise protocol or the like.

stephen nagler

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No bird ever soared in a calm. Adversity is what lifts us.

- David McCullough quoting Wilbur Wright
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debk_1

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Reply with quote  #9 
Thank you for your response.  For 18 yrs, I've had reflex sympathetic dystrophy coupled with fibromyalgia.  Nerve pain, nerve pain throughout my 4 extremities.  5 yrs ago, in a freak incident, I flipped my head/neck, went home & vomited for 2 days from pain....and then tinnitus and hyperacusis set in.  I also have severe TMJ, which I know causes ringing in the ears but the TMJ was not a big deal to me prior to the "incident".  I have not had formal therapy training, as it is not covered by medical insurance and my understanding is that it is quite expensive.  I thought I had "worked thru" the insanity of it all by saying "well, you're still alive, so it's clearly not killing you....move on, girl!"  Then the beginning of October hit, I shut all my windows in the house, and for whatever reason (dental work, new crown put in???) it just took me down again!!  All this time, the noise and pain had never left me.  I had simply made a very conscious decision to move forward (& leave the kitchen when my husband was clanking dishes!).  After these past few months, however, I am re-thinking my need for training.  I know there is no "cure".  That bothers me.  If I pay thousands of $$ here in Minnesota, I'd like to be cured!!  Yet....the shock of leaving the house to go to the stores or, God forbid, a restaurant does require me to wear my Bose earbuds, for sure.  I'd like to say that I think it's just unfathomable to me why medical insurance does not cover the cost of something that can be so crippling to so many people's lifestyles.  Deb
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Aplomado

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Reply with quote  #10 

Sound therapy can be done with sound generators, music, pink noise, nature noises etc.

Some things work better for some people.  

I think the sound generators are very helpful.

I also listen to pink noise for 30 min a day at slowly increasing volumes.  Having quiet noises in the background all day is a good idea too (pink noise/nature/water sounds).

The pink noise cd comes with instructions.

Rob can tell you about music therapy.

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Aplomado

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Reply with quote  #11 
TRT typically isn't covered by insurance as it is "experimental."

Some people are pretty much cured.  Some improve a little.  Some people improve a lot, though not quite cured.  Some people don't improve at all.  You don't know until you try.

Most people do improve.
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DrNagler

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Reply with quote  #12 
Quote:
Originally Posted by Aplomado
TRT typically isn't covered by insurance as it is "experimental."

That has not been my experience.

Sometimes carriers refer to various effective treatment protocols as "experimental" in the hopes that those who are covered by those carriers will not pursue reimbursement. Indeed, I am aware of an individual whose carrier not only reimbursed him for TRT, but also covered cross country airfare and hotel.

When I myself was a TRT patient, my carrier reimbursed me for 80% of treatment expense, although I had to cover transportation and hotel out of my own pocket.

In my personal opinion, the fact that our healthcare system is lacking in many ways should not be viewed as some sort of indictment of TRT or any other treatment for any given malady. Each should be considered on its own merit.

stephen nagler

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No bird ever soared in a calm. Adversity is what lifts us.

- David McCullough quoting Wilbur Wright
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Aplomado

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Reply with quote  #13 
Dr. Nagler, my insurance didn't pay for mine.  

The quotes around experimental were meant to be sarcastic, as I think it is not experimental it can work.  I think you misunderstood me.  TRT has been helpful to me.

I thought is was stupid that blue cross would pay money for MRIs that showed nothing in me, and worthless ENTs, but wouldn't pay for something that works, in my experience.
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DrNagler

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Reply with quote  #14 
Quote:
Originally Posted by Aplomado
Dr. Nagler, my insurance didn't pay for mine.

Sometimes it's a matter of how your TRT clinician codes it. In any event, insurance carriers are definitely not on your side!

Quote:
The quotes around experimental were meant to be sarcastic, as I think it is not experimental it can work.  I think you misunderstood me.  TRT has been helpful to me.

Good to know that TRT was helpful to you. It was helpful to me as well.

Quote:
I thought is was stupid that blue cross would pay money for MRIs that showed nothing in me, and worthless ENTs, but wouldn't pay for something that works, in my experience.

The MRI and ENT exam revealed very important negatives; in that sense I would hardly call them worthless. But I do understand your point.

stephen nagler

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No bird ever soared in a calm. Adversity is what lifts us.

- David McCullough quoting Wilbur Wright
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janeygirl

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Posts: 142
Reply with quote  #15 
I hesitated in many ways to do TRT because of the cost and because I thought I could do it myself. NONE that I tried worked. As I look back, my decision to do TRT AND an experienced well-known place was an excellent decision. It's funny after it was all said and done, I looked at the bills and thought gee, I suffered for ten years because of this amount. If I had submitted the bills the center gave me to my insurance for "out of network", I probably would have been able to get reimbursed some but I didn't. I was just so excited and beyond myself that this was working and I was going to get my life back. 
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Jane Parks-McKay
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elizo

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Reply with quote  #16 
Hello janeygirl,

May I ask you what your TRT clinician told you about what you were doing wrong and why you couldn't do it for yourself?
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rodmccain

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Posts: 225
Reply with quote  #17 
Hi Janey,

It is so good to hear that you have had a complete recovery,  but I believe we need to keep in mind that TRT simply does not work for everyone.  I believe it all depends on the symptoms, the severity, and the reason ( if known) as to how you acquired this horrid condition.  It is not a "one size fits all" condition, as we are finding out. 

It would help if you could tell us your specific symptoms.  I know you traveled by jet, so that indicates to me your symptoms were different than mine.  I can not travel, as jet is out of the question for me.  I am pretty much housebound, except for when I NEED to go out...Dr appt ect.

Again, I wish to thank you for sharing your personal experience and your recovery!  It it always good to read your posts!

All the best,
Kathy Mcc

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Aplomado

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Posts: 711
Reply with quote  #18 

Kathy,

Remind me- have you been able to try some sort of sound therapy?

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rodmccain

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Posts: 225
Reply with quote  #19 
Yes...thank you for asking.

All the best,
Kathy Mc
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