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Jennifer

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Posts: 319
Reply with quote  #1 

Hi John,

I was just rereading your story. I didn't realize your hyperacusis had been so severe. I think I first read your story a really long time ago when I was new to hyperacusis and didn' t know much about it. Could I ask you a few questions?

- When you first unplugged in a quiet room, how long did you unplug for?

- When you increased the time every five days, how much time did you increase it by?

- I assume the room wasn't 100% quiet, otherwise you wouldn't have made any progress, and am wondering, what sounds were you hearing? And how loud were they?

- Were the sounds aggravating to your ears?

- Did they cause any pain?

- Did they increase your tinnitus any?

- What did you do about the issue of your parents making noise in the house while you were unplugged?

Sorry to pepper you with so many questions! Thanks very much!

Jennifer :-)

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Johnloudb

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Reply with quote  #2 
That's fine Jennifer, I'll reply ASAP.

John

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aQuieterBreeze

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Reply with quote  #3 
Jennifer,

As i had interned to reply to your other post, in another thread -
but notice you started this one,
i hope you and John do not mind if I reply to your post here.

You mentioned - in another thread -

Yes, I always wear ear protection at home, except when I'm eating.........

At one time you mentioned something about trying to get into treatment,
have you given that any further thought?

About using earplugs all the time - With the ones you use -what is the noise reduction value?
Though I am not in the medical field and don't know what would be appropriate in your situation -
I've heard people talk about weaning off of hearing protection, and wonder if for some people - some in between steps - such as gradually reducing the amount of noise reduction one is using may be helpful...to taper down so to speak.

I'm glad to see you asking John the questions you are. I know it's not easy.
Thankfully i never wound up using hearing protection all the time, but some have -
and some, the ones i have noticed who have put forth the effort to do so -  have been able to turn things around - and improve their tolerances.

In my view- the people with these challenges who have been able to turn things around and improve their tolerance to sound, are the ones who put forth the efforts, and work in appropriate ways to do so. It doesn't happen by itself. But it can happen and there are many around here who are doing much better than they were at one time.

Wishing you the best of everything and much improvement.


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marilyn

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Reply with quote  #4 
P.S.
I remember last December when I started weaning myself off earplugs at home.  My ears felt so strange, almost naked, with out them.  I have slowly weaned myself off when going to stores and driving, as well.  I still don't do 'normal' activities, but life is better, and I am hopeful to keep improving until staying home isn't the norm, but a full life is.

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marilyn

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Reply with quote  #5 
P.S.S.
John, you'd better get on here --- fast!   The gabby women are taking over your thread.

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Johnloudb

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Reply with quote  #6 
Ha, Ha Marilyn   You and Breeze seem to being to okay without me. I'll reply shortly ... got to go do something first.
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Johnloudb

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Reply with quote  #7 
- When you first unplugged in a quiet room, how long did you unplug for?

I had been unplugging my ears regularly for about 1.5 - 2 minutes in a quiet room everyday just to clean the outside of my ear canal. I had worn fitted ear plugs and muffs for 9 months. I just found I could take them off longer every 5 days.

- When you increased the time every five days, how much time did you increase it by?

Just what I could tolerate. I started out very slowly like 20 seconds more at first. Then as I gained confidence I took bigger strides. At the same time I was also cracking open a window open very slowly every week. It helped since I needed sounds all the time. Gradually increasing the ambient high frequency noise of the outdoors helped me handle other sounds a lot.

But, I could have done the same with sound enrichment, and probably should have. Still I'm glad I hear the outdoors all the time.

- I assume the room wasn't 100% quiet, otherwise you wouldn't have made any progress, and am wondering, what sounds were you hearing? And how loud were they?

Interstate traffic sounds, motor cycles, water running in pipes, neighbors AC compressor next door, parents upstairs, dogs barking, birds, etc.

Well, they sounded pretty loud to me at first but I go in that room now and can faintly make out these sounds during the day. It's was silent at night, except when there were crickets.

In 3 months I was back in my bedroom with window cracked open a 1/2 inch.

- Were the sounds aggravating to your ears? 

I would just take off protection and give no thought to what would happen. If a sound was present that was too loud for me I'd put the ear protection back on for a moment. But, usually I could just leave it off as I tried to do more. Not really aggravating, just bothersome sometimes. I didn't push beyond my limits.

- Did they cause any pain?

After I had my ear protection off for about an hour and a half at a time, my protection was just too quiet for me. So, I just left it off. I was enjoying the world of sound again. 

And I had decided once it was off I wasn't going to wear it anymore. So, any sound that came my way I just toughed out, in my room. And sometimes sounds would hurt but I'd just relax about this, and think good thoughts.

- Did they increase your tinnitus any?

Yeah my ears got ringing really good, sometimes. I just relaxed about this and knew it wasn't permanent and would go away. And, once I got ear protection off all the time my tinnitus was not bad at all. 

- What did you do about the issue of your parents making noise in the house while you were unplugged?

Well vacuuming was a real problem for me. I'd have to leave my room if anyone vacuumed the room above me. I got where could handle the lawn mowers passing my room in the first 3 months though. But it was kind rough at first.

________________________________

Okay, that's what I did. And keep in mind I didn't just have sensitivity to sounds. I was also trying to walk more, and brush my teeth more, etc.  because of my global brain sensitivity.

I put up with all kinds of weird stuff like my head ringing or feeling like mush,  heat racing down my back, headaches, spongy feet (it felt like that), pin pricks and stuff. So, I just had to let all my symptoms go and focus on slowly doing more. My back was against the wall, so to speak. I couldn't very well do less.

The sensitivity is what was causing all these problems, so I had to do more, think good thoughts and move forward. 

But, people's situations are different with different challenges. Though, fear anxiety over your symptoms will freeze you in tracks.

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Jennifer

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Posts: 319
Reply with quote  #8 

Hi guys,

Thank you very much for your replies. I'm afraid I'm going to have to keep my responses short because I re-injured an old wrist injury last night (I'm very injury prone) and need to stop typing and get off the computer ASAP to let my wrist recover.

John,

Thank you so much for your responses to all of my questions! I really appreciate your detailed answers. Information like that is really helpful. I'm probably going to be asking you more questions in a few weeks when I get back on the computer.

Breeze,

Reducing the amount of ear protection I wear is a good suggestion. I've actually tried a variation of this without any success, unfortunately, but I've been meaning to try another variation. Thank you for the suggestion.

Marilyn,

I've actually spoken to Dr. Robb a few times and would love to see him, but I can't fly or drive long distances, unfortunately. But thank you for the referral. I actually just sent my records to another TRT provider who was recommended to me and she told me I was too bad of a case and she wouldn't know what to do with me! Ugh.

Thanks again, everyone. Hope everyone's not baking like I am in California right now. Wish I could turn on the friggin fan...

Talk to you guys again in a few weeks.

Jennifer

 

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