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debIam

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Reply with quote  #1 
Dr N,  I read your posts on Marilyns Misophonia thread with great interest.  I don't know if you've ever said what field of medicine you practiced..doesn't really matter.  I have found your insights and thoughts regarding the brain, autonomic/limbic systems really very interesting.  And helpful on a number of levels.  My own clinician (an Audiologist) is hugely interested in, and enthusiastic about, the brain.  It's plasticity...it's ability to "rewrite" if you will... it's programming.   For example...stroke patients at one time were written off as not reparable..mentally or physically.  But now we see that with intense therapy, both physical and brain work...that many of these people can make incredible comebacks. 

My clinician has thoroughly discussed with me how to "talk to my brain" in positive ways in order to rewire/reprogram.  An example... during my last visit... I told her that my "screaming mimi tinnitus" was better.  She smiled and said...let's rephrase that to "my tinnitus is better".  She said that my "negative" phrasing could trigger my brain to actually produce "screaming mimi tinnitus".   She's very excited by the dynamic processes and research into H &T as well as other related brain processes. 

 I have found our discussions opening up doors to retraining myself in other areas of my life.  Although at one time I was fearless...I have been a fearful person for a number of years now...  jumpy unless I was in a place I considered safe.   My physical responses to someone suddenly moving or speaking were at times extreme.  My husband walked up behind me once and said hi and I nearly burst into tears from fright! 

I'm getting to my point...really!  To further illustrate where I'm going with this:  I was being prepped for a surgical procedure and was given a valium.  I was fairly agitated before taking the pill.  After a bit... I was calm and thought to myself... "So THIS is what it's like to not be afraid". 

That was a significant "aha moment" for me.  To realize that it was possible to not always be afraid.

Ok...now to my point.  If I am understanding you correctly,  fear is a huge component in H.  Fear of sound...because it might physically hurt, fear that sound will make the H or T worse, fear that sound will cause damage. 

Fear.  Fight or flight.  Just days prior to my H... I was awakened by a very aggressive fire alarm in our apartment building.  It was excessively loud and extremely strident. I'd been subjected to that horrific alarm once before and it nearly drove me and my poor cat insane trying to get away from it.  It was also loud enough to cause hearing damage as well because repairmen would wear airport type ear protection.

Because some kids in our building thought it was great fun to set these alarms off randomly... I could never go to bed at night without having earplugs on the night table.  I seemed to be in a hyper aware state  somewhat like a new mother with a baby, or a good mammal listening for predators.

I realize that there are people on this board that come to H & T due to physical issues...brain tumors, injuries etc.  But, if I understand you correctly,  the fear factor does still play a significant role in H/T.  It would seem to me then, that alleviating fear might play a big part in treating H/T?  Yes? No? Maybe?

What makes me ask this is an article I recently read regarding people suffering from IBS (irritable bowel syndrome).  There was a study that seemed to indicate that IBS was in the brain... the brain was reacting to gut stimulus in an inappropriate manner.  The bowels of the participants were structurally normal and it appeared there was no physical reason for their IBS.  But I believe FMRI's showed abnormal brain responses to normal stimulus and that caused the brain to send out distress signals to the gut. 

Also, a number of soldiers with PTSD   are presenting with many symptoms that we on this board discuss as well as others.  

My question to you is,  do you suspect or think that there is more brain involvement than we are aware of?  And that with further research... might not the brain be  reprogrammed to eliminate a number of illnesses?

I apologize if this was rambling...I think in "spirals"!

deb


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DrNagler

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Reply with quote  #2 
Deb posted [in part]:

My question to you is,  do you suspect or think that there is more brain involvement than we are aware of?  And that with further research... might not the brain be  reprogrammed to eliminate a number of illnesses?

..................

I am a "never say never" type of guy.  But from a practical standpoint I think what you describe is pretty unlikely.

smn

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debIam

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Reply with quote  #3 
Could you elaborate a bit?  Why would it not be practical?
Research limitations?  Or perhaps the brain itself might not be as strong an ally in healing as I wondered?

I enjoy your analytical approach.
deb
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DrNagler

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Reply with quote  #4 
I do believe that the brain can be a strong ally in healing.  But your question referred to "elimination" of illness.  To me that's another story.

smn

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debIam

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Reply with quote  #5 
Ok, perhaps "elimination" is the wrong word.  Perhaps I'm not asking the question correctly.  If the brain is a strong ally in healing...in what ways can the ordinary person use his/her brain to heal the body?  Aside from the usual suggestions of "meditation", yoga, etc. 

I'm asking, because I'm genuinely curious about how much power our brains actually have with respect to health and changing our lives.

deb
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DrNagler

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Reply with quote  #6 
The most effective approach for which there are legitimate data in the peer reviewed scientific literature would be cognitive behavioral therapy.

smn

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Cheesecake

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Reply with quote  #7 

Just to butt in... I've read recently on BBC news that there is an ongoing study about the role of the mind in cancer patients. From what I can remember I think they were taught to picture their tumours being destroyed, and I think it was something to do with picturing lights. Can't find the link but was interesting to read. Would like to know the results I think it was a 5 year study

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debIam

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Reply with quote  #8 
Cheesecake, feel free anytime to butt in.  I didn't mean for this to be a one sided "chat".  I also read of an article about the role of the mind with respect to cancer.  I don't remember if it was BBC or not. 

I've read many stories by cancer survivors who've used images to "attack and kill" their tumors.  And...there are lot's of stories about the placebo effect.  

I am keenly interested in studies that show what the brain/mind is capable of.  It is exciting...although I do understand the need for legitimate data. 
d
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Cheesecake

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Reply with quote  #9 
Yeah I too find it interesting, the power of the mind is pretty scary. I've always been a pessimist and I think this has probably directly affected my health. I've just started reading a book about mindfulness based cognitive therapy so gonna give that a whirl!
Hope you are well Deb and the WSG's are still benefiting you, my first TRT appointment is not far off now...

Take Care
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June

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Reply with quote  #10 

Hi there.  You might also consider checking out  Dr. Bernie Segal’s books on his experience with cancer patients that document the body-mind-soul connection.  Although I am not well versed with his material I have often heard references to Bernie Segal.  Have a good day.


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debIam

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Reply with quote  #11 
Hi June,  I've heard of Dr.Segal but have not read his books.  I have read some of Deepak Chopra's works and find them interesting.   I watched a program this morning on the "power of the mouth".  It was in a spiritual context...but the message was universal.   What we say seems to have a connection to the mind/soul/body (brain?). 

My TRT clinician is very big on watching what words come out of your mouth!

Hope you are doing well.
deb
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June

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Reply with quote  #12 
Thanks Deblam.  I am glad you have connected with a good TRT professional.
Take care,      June

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