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Posts: 24
Reply with quote  #1 
From Hyperacusis Research: 

For those with a diagnosis or self-diagnosis of hyperacusis and ear pain: Please take our survey! 

This is your chance to participate in important research.

The survey will take approximately one hour. It will provide researchers with a fundamental understanding of what hyperacusis is really like and will reveal common themes to help understand the mechanisms of hyperacusis.

We have designed this survey in conjunction with Sanford Research, which runs a rare-diseases registry.

You can find the link to the survey on the home page of our website at, or at the link above.

Thank you to all participants!

Posts: 13
Reply with quote  #2 
I  took  the survey, I  hope  I can make a  difference in the world  of  Our    of suffering  [blinkphones] and  I am  tired  of the  " quiet"    and  so sad  that  many have read your request   and   only a  bare handful  have left a  response,

How  will we ever find a CURE  if we don't  act Now, if that is  the  Hyperacusis Research   are asking for  us to  complete  a Survey for  God's sake,

do it, and then go  sit somewhere  Quiet and   think  to yourself  I Hope  by  doing this

I have made a difference  to  someone  that is suffering just like me.

Loren Eiseley
“Once upon a time, there was a wise man who used to go to the ocean to do his writing. He had a habit of walking on the beach before he began his work.

One day, as he was walking along the shore, he looked down the beach and saw a human figure moving like a dancer. He smiled to himself at the thought of someone who would dance to the day, and so, he walked faster to catch up.

As he got closer, he noticed that the figure was that of a young man, and that what he was doing was not dancing at all. The young man was reaching down to the shore, picking up small objects, and throwing them into the ocean.

He came closer still and called out "Good morning! May I ask what it is that you are doing?"

The young man paused, looked up, and replied "Throwing starfish into the ocean."

"I must ask, then, why are you throwing starfish into the ocean?" asked the somewhat startled wise man.

To this, the young man replied, "The sun is up and the tide is going out. If I don't throw them in, they'll die."

Upon hearing this, the wise man commented, "But, young man, do you not realize that there are miles and miles of beach and there are starfish all along every mile? You can't possibly make a difference!"

At this, the young man bent down, picked up yet another starfish, and threw it into the ocean. As it met the water, he said,
"It made a difference for that one.”
Loren Eiseley

Posts: 32
Reply with quote  #3 
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