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trixie

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Posts: 3
Reply with quote  #1 

Hi there

I am a tinnitus sufferrer of 15 years and a hyperacusis sufferrer as well (although getting better). I believe I also have tensor tympani syndrome which to me is stressing me out more than the other two. I have read the article on Myriam Westcott but she makes no mention of a treatment plan. Is there any treatment for this condition? Please do not tell me I have to live with it ....I have heard that one too many times which has caused me extreme anxiety.

Any useful links and 'good' advice would be appreciated
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Rob

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Posts: 4,049
Reply with quote  #2 
Hi trixie.  This link to Klochoff's paper on tensor tympani syndrome may provide you with some additional information.  Klochoff named the condition.  It sounds like you ought to be evaluated by a knowledgeable doctor to see if you have it.

http://www.tinnitus.org/home/frame/Tensor%20tympani%20syndrome_Klochoff.pdf

Rob
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Febrele

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Posts: 85
Reply with quote  #3 
Hi trixie,

You are saying you are getting better... Just curious... You are still getting better after all those years? Its still possible to get better after 15 years?
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trixie

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Posts: 3
Reply with quote  #4 

Hi Febrele

Yes, my hyperacusis is getting better and that happened once I stopped avoiding noise. I slowly built up my tolerances a little at a time.  The pink noise CD helped as well.  As for my tinnitus it's still there but doesn't bother me that much

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trixie

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Reply with quote  #5 
Hi Rob
Thank you for that link from Klochoff.  I don't think I have Tensor Tympani Syndrome as I don't experience the 'fullness, tension headache or vertigo'.  So do you have an idea what my condition is called....my ear or eardrum seems to flutter when hearing certain noises, deep voices in particular. It appears to be sensitive to these. 
Thanks again
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Rob

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Posts: 4,049
Reply with quote  #6 
Trixie -

You may be describing some form of myoclonus, where the middle ear muscles are causing the fluttering, but you need a doctor to make that determination.  With an accurate diagnosis, your doctor can recommend an effective treatment.

Rob 
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