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emily

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Posts: 28
Reply with quote  #1 

 I have been advised by my audiologist to try out the Neuromonics program (at a unaffordable cost of $6.000.) I asked about TRT and was informed it would take to long. Has anyone heard of Sound Theraphy by Rafaele Joudry ? My main concern is doing  harm to my ears .
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aQuieterBreeze

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Posts: 2,083
Reply with quote  #2 
 From what I have read the neuronomics units (used in neuromonics)
and wearable noise generators used in TRT,
may, at least in some cases - be returnable if one found they did not work out -
but there are time limits - and the devices  need to be returned within a certain amount of time.
So if one decides to try either of those methods, I think it helps to be informed, about whether the units can be returned for a refund - if necessary, AND what the terms of the refund policy are.
I think DRJ recently posted that there is now a fee for returning the neuronomics units -  So it would be best to be very clear on what the policies are.

Did your audiologist make any other suggestions - other than neuromonics?
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saab1216

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Posts: 152
Reply with quote  #3 
Emily TrT started showing results for me in just four months! I couldn't stand the loudness of my own voice to begin with.It all depends on who is telling you this information and what they have to gain by telling you. TRT is much more affordable to try! At least give it a try.
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Johnloudb

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Posts: 1,951
Reply with quote  #4 

Hi, Emily, I don't think the Neuromonics program is designed for treating hyperacusis, but I'm not positive. Is this for hyperacusis or tinnitus? This stuff takes time and I don't think one approach is any faster than the other. It's just about choosing a treatment that is most applicable to you particular challenge. 

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emily

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Posts: 28
Reply with quote  #5 
 Thank-you for your replies to my question.
I have Tinnitus (30yrs) and Hyperacusis (14months) re-posting of my history in "New messages."
 The audiologist didn't offer anything other than Neuromonics, I was informed there is a trial period of 30 days with a refund of $250-300. How can one tell if it working in such a short period of time?
Yesterday I asked for my results to be forwarded to me and this is part of what the audiologist stated in the report to my doctor re -treatment.......

 [ Given the fluctuating nature of her hearing loss and Tinnitus and Hyperacusis this would not be a straightforward course if we decided to go ahead with this and it may not be suitable.]

Its a continuous battle to find the correct help and advice. My world has been turned upside down but I will continue to search.
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Layla

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Posts: 443
Reply with quote  #6 
Hi Emily!

Have you tried to find the causes for your tinnitus and hyperacusis yet? (What have you ruled out?) Have you checked the nutrition/lifestyle connections yet?
You can start with basic home program with pleasant music or the pink noise CD, if cost is a problem. The key is to re-train your ears to liking music/sound again. (Read info at John's website if you haven't yet.)

My tinnitus went away after massage and nutrition/supplements, I still have some h., it's much better than at the start and fluctuating somewhat, connected to stress and amount of sleep, nutrition or loud noises. We are all different, it's important to try to find the factors that could help!

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emily

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Posts: 28
Reply with quote  #7 
I decided to get another opinion and changed my ENT I have an appointment with him next month.
My audiologist phoned me this morning and informed she has got in touch with this ENT discussed my case and he recommended tests for Endolymphatic Hydrops. (and this is before Ive even visited him.) At last someone who is listening.
 The tests include electrodes and one with be placed in my ear canal, it will be a clicking noise and I was told - "It maybe uncomfortable but it is necessary to determine the cause."
Yes Layla, I am on supplements and a healthy diet, I walk daily and listen to soft sounds constantly, gradually introducing uncomfortable ones. Mornings and evening are the worst, I cant stand the sound of my own voice (or my dear husbands) and I'm mentally (sound)exhausted, it is not easy but I'm determined,  that is a normal day.
The fluctuating attacks happen suddenly and are disabilitating...I awake to the most horrendous roaring noise in my head with hearing loss and EVERY sound vibrates (especially low pitched )....this  is my major concern....hence the tests!
At long last movement .....keeping fingers crossed...will let you know the results. Meanwhile "Keep Smiling"  :0)
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