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rodmccain

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Aplomado

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Reply with quote  #2 
I am not familiar with the reverse hearing aide, but nature noise is useful for desensitization (I seem to have better luck with pink noise myself, though I have used both).

With my pink noise / nature noise protocol what I do was listen to the noise for 30 minutes a day, starting low.  When my ears are comfortable with the volume, I raise it one decibel (I got a cheap decibel meter on amazon).  Sometimes it would talk only a few days to adjust to the slightly louder sound, sometimes a month.

As I can successfully up the decibel level, the pain ebbs.

This protocol does work for me, unfortunately I have had many releases do to car horns, screaming children etc and have had to restart the process repeatedly.  It is very frustrating.  Your results may vary.
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rodmccain

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Reply with quote  #3 
Hello all,

I would like to add to what my husband posted.  PAIN IS NOT THE ISSUE WITH ME. I still have occasional problems with this though.   Example:  breaks on the garbage truck, from a distance caused a sharp little shooting pain in my left ear...very briefly.   With onset I would say it took under a year before that burning searing pain subsided. 

My ISSUES NOW ARE,  amplified hearing, (pretty much all environmental sounds) hearing frequencies that I never noticed before, (they are very loud) and bad, chronic T, which worsens still with normal environmental noise.  

I have been struggling with this for almost five years now!  I have tried many desensitation sounds at home, and with nature.  I only get so far....then back where I started !   This has been going on for 4 1/2 years.  The first six months my hearing was so bad I could not stand any sound at all !!

I have become despondent, high anxiety, hopeless, and pretty much a recluse, which I am not suited for !   At this point, I have even considered that I may be better off if I no longer were a resident of planet earth.  Well... I may have said too much, but that is the reality of the situation.

I also have become somewhat bitter.  How ironic that an enclosed MRI at a hospital, (spinal) that was way too loud for me, even though I had adequate hearing protection, and caused what l am really starting to believe is a permanent hearing injury, so much grief, and harm.  Now there is NO ONE in that community that can effectively help me. 

I want to add a thank you to everyone here that has responded with suggestions.  THANK YOU VERY MUCH!   I do appreciate your advice.

Kathy Mccain





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Aplomado

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Posts: 710
Reply with quote  #4 
I am glad pain isn't an issue for you... that is one think to be grateful for. I have pain hyperacusis.  I am in the odd situation that sound therapy clearly works for me but I have had frequent relapses do to loud noises.  If the burning pain for you has subsided, that is progress you have made at least.

Sound therapy does decrease amplified hearing for me (your results may vary).

I have been dealing with hyperacusis for about 5 years also.

Sound therapy is just about the only demonstrated treatment for hyperacusis caused by loud noises that I am aware of.  It is possible there is some modification of sound therapy that you may find helpful (starting slower and quieter, maybe) but that is a guess on my part.
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Aplomado

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Reply with quote  #5 
I just finished the article (I couldn't read it yesterday).  It is a good article.  Like I said, I am not familiar with the device used, but everything looked reasonable esp the sound enrichment.
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AlanUK

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Posts: 3
Reply with quote  #6 
Hi Rod and Kathy,

Thanks for your posts and honesty.

Don't give up and never lose hope. Things will get better.

Don't take what doctors say as gospel.

Sounds and noise, although they may be uncomfortable can in no way damage your hearing.

The pain, uncomfortable as it is, is just muscle tension, temporary and meaningless. Like muscle cramp / tension in your neck or shoulders ...

Maybe develop yourself an exercise programme. Get your body moving, work on your core, maybe a jog in the park. Exercise will lift your mood and spirits ...

Develop good relaxation techniques, dont worry about how well you are doing, tense then relax all the muscles in your body.

Next, go out into sound situations, view sound situations as territory lost, territory that is rightfully yours and that you are claiming back. Fear and tension come from lies / incorrect thinking that pops into our minds, a bully that the more you stand up too will flee. Use cbt to challenge and put right thoughts. Is noise really the culprit or can thinking hard about bad experiences give you that muscle tension / pain in the ear as well?

Develop 'bouncebackability', recovery isn't a straight line. Keep on keeping on, you are retraining your 'sound system' your ear - brain process and telling your body no matter how much it protests with muscle tightness, sensitivity, feeling sick, depression, no hope, panicc attacks - thanks, thanks for trying to protect you but ultimately this is all a false alarm ....

Sounds and noise are also like the cold water of the seaside, dipping your toe in now again and you wont be able to swim. Jump right in and soon you don't notice the cold ....

God Bless you guys! Alan [smile]


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