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Kasandra

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Reply with quote  #1 
Dear Frends,
I am new to this group.  I have had tinnitus for several years now.
How I got it was bending down and petting my dog.  When I got up I heard all kinds of sounds.  Then it went to a hissing sound, which I mostly live with now.  Sometimes it is a high pitched pericing sound.

Now, my husband has tinnitus also, but he can mask it with noise.
My tinnitus goes up if I go in a room with TV, fans, air conditioner, or radio.
It will go down when I leave the room.

I a wear a musicians ear plug in my T. ear. When I go out. Even road sounds while I am in a car can bother it.  I take it out when I am in a non-loud situation.

It especially gets bad with the pitches of music. Whic makes TV intolerable.

Now, I have been to the Oregon State Research center, and after going twice, I was told that I had a very rare form of "reactive T."  And that I should stay in quiet places and introduce sound very slowly.  And to wear my earplugs at the number 24 range when I go out.

Has anyone heard of this type of tinnitus?
And if so, what do you think? 

Thank you in advance,
Kasandra

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Sandra Saenz
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Rob

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Reply with quote  #2 
Hi Kasandra.  Welcome to the board.  I hope you find this thread helpful. 

http://www.chat-hyperacusis.net/post?id=4283879
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Johnloudb

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Hi Kasandra,

Rob posted some very good thoughts in that thread link, which I happen to agree with. Trying to avoid your tinnitus, by avoiding "problem" sounds,  will only cause you more problems, like increased sound sensitvity.  

ENTs often tell people tinnitus is permanent and a result or hearing loss. Not true. Tinnitus can accompany hearing loss, but it's not permanent and it won't affect your hearing. This site ( http://www.tinnitus.org  ) is a good place to read about the mechanism behind problem tinnitus. 

While lots of things can cause tinnitus, worrying about it prevents habituation to the sound. And you're not alone. My tinnitus also changes with sound, activity level, emotional state, but I rarely even notice it. 

I also have hyperacusis, and my story (link in my signature) explains why ear protection hurts. If you've been using ear protection a lot for some time, you should gradually use it less. 

Best,

John

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DrJ

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Reply with quote  #4 
I have to say that I believe that OHSU is using the term reactive tinnitus and if they are, then this speaks volumes to the appropriateness of the term.  OHSU has been regarded as THE Tinnitus Clinic of the western world since the 1970s when Jack Vernon began his important work in this area.

I guess I would say, if the shoe fits, then why not wear it? These are ground-breaking times for T and H, and new terms must arise to help us all move forward towards the 'cure'.

Our own likes and dislikes are not really able to dictate what others do or say, most of the time, and I suppose flexibility is the key and remembering to mention the positives as much as possible.....there are so many positives, esp for Hyperacusics.

Dr J

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Marsha Johnson
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