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Zwalraven

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Posts: 41
Reply with quote  #1 
I feel like pink noise is making me worse. Is this just part of the process in the beginning? I've been doing it for about 2 weeks now. Almost 24/7 along with watching TV at about 60db where I normally do and I am experiencing aural fullness and inner ear discomfort. I can only go around people or the outside world for about 2 hours at a times and then it takes a out an hour to recover when I'm back in a sound controlled environment. Is this normal? Or is sound therapy just not going to work for me. I am unemployed so TRT is not an option.
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Zach
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ontario78

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Posts: 186
Reply with quote  #2 
Hi Zwalraven, sorry to hear you're unwell [frown]

Are you using the network cd? in any regard, I believe you are supposed to start slowly, working your way up. 24/7 is alot. Keep your t.v low for now..

I can't offer any other advice, because I am unsure myself..it's like constantly "feeling" my ears out in situations. I for one, have not made any progress..or, when I do, I lose it..always.

I am waiting for TRT and just doing what I have learned, or what I think is right..
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Zwalraven

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Reply with quote  #3 
Yes it is the network CD. I can't afford TRT. It's like you have to be rich to get treatment for this, and I am not. So the network CD is the only hope I have.

Zach

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Zach
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ontario78

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Reply with quote  #4 
The therapy is expensive, it sucks, I know. 

Didn't the cd come with a protocol to follow?
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ontario78

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Reply with quote  #5 
It's possible you can't handle the pink noise cd. You could start by only playing it for minimal amounts a day..then work your way up. I know some people use a (music) cd they can tolerate rather well and play it very, very low, then gradually increase it every few days, maybe every week? Only played once a day though. Also, you could get yourself a tabletop device and play nature sounds in the background. You have options. Hang in there.

I forget, do you also have T? Kpin still working for you?
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Zwalraven

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Posts: 41
Reply with quote  #6 
Quote:
Originally Posted by ontario78
It's possible you can't handle the pink noise cd. You could start by only playing it for minimal amounts a day..then work your way up. I know some people use a (music) cd they can tolerate rather well and play it very, very low, then gradually increase it every few days, maybe every week? Only played once a day though. Also, you could get yourself a tabletop device and play nature sounds in the background. You have options. Hang in there.

I forget, do you also have T? Kpin still working for you?


I play the pink noise at barely audible volume. It says on the instructions work up if you need to, but Jastrboff recommend's doing sound therapy 24/7. So I am confused. I don't want to overprotect. 60 dB is not supposed to be able to cause harm. Kpins still control my panic disorder, but they are not helping the nerve pain the way they once did. This whole thing just sucks, and I know this board doesn't like negativity, but I am not seeing a silver lining as of yet with.this deal.

Zach

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Zach
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ontario78

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Reply with quote  #7 
Quote:
This whole thing just sucks, and I know this board doesn't like negativity, but I am not seeing a silver lining as of yet with.this deal. 


My sentiments exactly.

Though I haven't ordered pink noise cd yet. Maybe someone else will chime in.
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phacker

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Posts: 143
Reply with quote  #8 
Hi Zach,

As you know I am just starting TRT this week. I had been watching most of my TV with no sound and using open caption.  I also use ear plugs going out to places like the store, restaurants, etc.  I have exposed myself to sound as little as possible.  Leaving the house is difficult for me as this time. I can not use my left ear to talk on the phone or I will get pain.   

My TRT audiologist noted TRT treatment is a Marathon not a sprint. In a Marathon we need to train our body to run a long race.  If we ran a marathon without training, we would have serious issues. 

He noted at some point in the future to start decreasing the use of ear plugs, but I should continue to use the ear plugs if I felt that I needed them.  He wanted me to start using the TRT behind the ear units about two hours a day with or without sound. I am to put the sound level at the volume that I am comfortable with he did not care about how low the volume was. He wants to ease me into this program, so that I do not have negative feeling or problems.  


If I stooped using the ear plugs, turn up the TV volume, start TRT 24/7 my body/brain is going to go into overload, and I am going to have problems and negative feeling about the program.

I also have a tendency to push because I so much want to get better.  I over did it yesterday as I was testing my left ear and using it a little to talk on the phone. Today I have some ear pain in my left ear and had to cut back on the noise generators.

Start slow and do what your are comfortable with and train you hearing to run the marathon. With the use of the network CD, you are doing TRT.  TRT is a 6 month plus program and you may need to build up to the 24/7 sound.  

Stay positive because when you recover from this, you will be telling stories about H & T and if you need any help or want to chat you have my email.   

Regards,

PH  
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Zwalraven

Registered:
Posts: 41
Reply with quote  #9 
Quote:
Originally Posted by phacker
Hi Zach,

As you know I am just starting TRT this week. I had been watching most of my TV with no sound and using open caption.  I also use ear plugs going out to places like the store, restaurants, etc.  I have exposed myself to sound as little as possible.  Leaving the house is difficult for me as this time. I can not use my left ear to talk on the phone or I will get pain.   

My TRT audiologist noted TRT treatment is a Marathon not a sprint. In a Marathon we need to train our body to run a long race.  If we ran a marathon without training, we would have serious issues. 

He noted at some point in the future to start decreasing the use of ear plugs, but I should continue to use the ear plugs if I felt that I needed them.  He wanted me to start using the TRT behind the ear units about two hours a day with or without sound. I am to put the sound level at the volume that I am comfortable with he did not care about how low the volume was. He wants to ease me into this program, so that I do not have negative feeling or problems.  


If I stooped using the ear plugs, turn up the TV volume, start TRT 24/7 my body/brain is going to go into overload, and I am going to have problems and negative feeling about the program.

I also have a tendency to push because I so much want to get better.  I over did it yesterday as I was testing my left ear and using it a little to talk on the phone. Today I have some ear pain in my left ear and had to cut back on the noise generators.

Start slow and do what your are comfortable with and train you hearing to run the marathon. With the use of the network CD, you are doing TRT.  TRT is a 6 month plus program and you may need to build up to the 24/7 sound.  

Stay positive because when you recover from this, you will be telling stories about H & T and if you need any help or want to chat you have my email.   

Regards,

PH  


Thank you so much, that's exactly what I'm going to do is cut back to 2 hrs and day and even more if I need to. Doing it without the headphones seems easier to start. I did it w phones yesterday and it was painful after the fact. Thank you again for the support.

Zach

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Zach
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