The Hyperacusis Network Message Board
Sign up Latest Topics
 
 
 


Reply
  Author   Comment   Page 2 of 2      Prev   1   2
Johnloudb

Registered:
Posts: 1,951
Reply with quote  #51 

I agree Breeze, desensitization needs to be done slowly. TRT isn't about hurting yourself, it's about gradual desensitization. 

Yet, ears do get hurt and setbacks happen. And when  ears get hurt it's important to know how to handle it. For instance hurt ears need sound enrichment, and ten second exercises are helpful to. 

Ben,

Awhile back I brilliantly decided to slam a door to test my tolerances. It was a loud door and I was a bit over zealous. It hurt my ears and head pretty good. But, I just took it easy with sound for 3 - 4 days and gradually worked my way back. Was very careful with doors and dishes for a couple weeks, but I didn't completely avoid these sounds. And within a month I was about back to normal, even handling my dad slamming a door in my face a couple times without setbacks. Slamming doors are still a bit above my tolerance, so I usually cover my ears if my dad is about to close a door and I'm nearby. He's often in a rush and tends to slam doors and I never know how loud hard it will slam. I occasionally close doors hard myself and am surprised how well I handle it. There's no way I can completely avoid these sounds without becoming a neurotic mess, and ear protection would do me no good unless I wore it almost constantly. Not going down that road again.

Ben, I hope your plan is not to completely avoid every sound that has hurt you, cause you'll likely just end up wearing ear protection constantly. Many examples of that on the board.

Occasional use of ear protection can be helpful though, as others have mentioned.

John

0
Johnloudb

Registered:
Posts: 1,951
Reply with quote  #52 

Quote:
Originally Posted by Breeze
To spend time in environments one IS able to tolerate as one works in appropriate ways on being able to tolerate more in the way of sound can be helpful.

Yeah, I agree. 

0
cbBen

Registered:
Posts: 1,378
Reply with quote  #53 
No that is absolutely not my plan. My recommendations to the group at large do not necessarily shed light on such things.

Thanks!

__________________
Please resist the temptation to pick apart my post by quoting it piece by piece.
0
Johnloudb

Registered:
Posts: 1,951
Reply with quote  #54 

Okay, I'm glad to hear it. I don't really see where were the disagreement is then. 

Just so you know, when I first started TRT my ears hurt all the time. And, as I worked on desensitization an my ears got stronger, that went away. I have many symptoms that pop up and persist for many months, they all eventually go away, and I think it's really important not to distress and dwell on it ... just focus on doing slowly doing more.

Good luck in your treatment.

John

0
Marilyn

Registered:
Posts: 194
Reply with quote  #55 
I agree.  Ben has always been one of the people here I consider very level headed and always look forward to reading his posts.

I know when I've had a set back such as the global hypersensitivity, I had to work through it (and still am) before I wanted to fully discuss it on the message board.  I know Ben will successfully recover from the bad set back he had, and knows exactly what is right for him.





__________________
~ Better days are ahead! ~
0
cbBen

Registered:
Posts: 1,378
Reply with quote  #56 
Yes John I agree with that approach.  I don't advocate holing up in silence.  Among other things, it's not good for the tinnitus.

__________________
Please resist the temptation to pick apart my post by quoting it piece by piece.
0
LynnMcLaren

Registered:
Posts: 7,990
Reply with quote  #57 
This thread has really taken off, (((( Smiles ))))

I was reading one of Debbie's posts and noticed the discussion on the life and death aspect of the possibly consequence of having this disorder.
It is very devestating to come down with Hyperacusis as well as very reactive or 24/7 disturbing tinnitus.
My tinnitus now is very very different then it was back then.
I don't like it at times but it's not as noisy as it use to be and sometimes I don't hear it or forget about it it's a waaayyy different situation then when H or T was a very big problem for me.
I was also one that felt alone and misunderstood and on the verge of the edge at one time and scared others around me as I expressed to others in my family twice once with the tinnitus and then eventually with the hyperacusis that this situation was more then I could bare/handle..
I felt like I could no longer go on I asked my husband to please help me with this.
My family was not sure what to do to make it go away at that time or really understood it. It was a process that did take time one I had to endure. 
The only thing that kept me from going there held me back is my faith my belief in a power bigger then me which for me is my Christian faith which helped me endure it go throught it and past the worst of and without that and even to this day, it puts things more into perspective for me.
It's a great stablizer on the issue of suffering ,enduring and overcoming the obsticles that befall us all in this life.
It held me together at my worst of, but yes..
I came face to face with that question as others have as well with the immense suffering involved. Especially when it's severe or prolonged..
Those issue's can come up.
The worst of, the pain, real bad setbacks or collapses can lead one to a very bad state emotionally and put one into a state of distress and dispare so in quote I do believe.. 

Quote:

Sometimes it is a good idea depending on ones severity and ones condition not to overdo it or push it to the point of being toooo brave.
Because of the amount of time it can take toward seeing improvement which could be extended in some cases which could be emotionally devestating to the person suffering with it, in this type of state of being.
Remember, we all did come down with this condition in the first place we didn't just imagine it. It's a real thing!   
          

Quote:

Yes Su, and Ben.
life or death.   yes, i think so.  I probably would not be here today if not for a caring dr who found ways to help deal with the depression due to H and T. How many people do we not know about who couldn't take it?  I communicated with some who were close to the edge.  When i don't hear back from them, I wonder.      Devastated lives----yes,  Different lives -- yes.

I, too, find this discussion refreshing and truthful.

__________________
Take Care

Lynn
0
kimberleydust

Registered:
Posts: 91
Reply with quote  #58 
Hi Lynn
I fully agree with you - H & T is scary stuff and has the very potential to take one to the edge...my thoughts have gone there and it has also only been because I too have a Faith that keeps me going.  One certainly needs to treat it carefully and no matter how we feel others may think and feel we must reach out and get help - anything! However it helps just do it....distraction is needed...and if you are already prone to depression, anxiety etc the impact is even greater...I find it SO important not to get fatigued - this is my biggest challenge as I have so many things that contribute to fatigue even besides the noise sensitivity.  As individuals you have to do whatever works for you no matter what others may think.  Get them to think about the worst possible thing that has happened to them and multiply it - then maybe they may begin to get a feel what it is like...

I feel I am starting to lift up out of this latest setback - taking it very very slow...I believe total rest from the outside world and its noise has helped a lot...in my own safe place I have been playing various nature sounds and wearing protection when I have needed to - probably about 20% of the time during the day only.  Understanding friends, all of you good folks and plenty of good nutrition, natural anxiety 'medicine' and distractions have all helped.

Lou

0
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.



This message board is for informational purposes only. It is not intended to substitute for any medical advice. MANDATORY BOARD ETIQUETTE: 1. No personal attacks. 2. No profanity or use of inappropriate usernames. 3. No self solicitation of goods or services. 4 No discriminatory remarks based on race, gender, or religion. 5. Prohibitive postings include the following: discussing or suggesting the intent to end one's life, moderating or actions made by the moderators, and/or revealing personal information (full names, address, phone number). Rule infraction may result in either a warning or ban, depending on the severity. Kindness matters.