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linda1016

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Reply with quote  #1 
A month ago my ear trouble started out with a blocked ear which turned into Tinnitis.  ENT Dr  gave me hearing test which showed diminished hearing in left ear.  I then had an MRI which he said was fine.  By this time I now have Hyperacusis (sound sensitivity).  With all three of these things, hearing loss, tinnitus and hyperacusis I also have severe ear and head pressure.  I feel headachy and terrible all the time, shaky and weak and I'm getting very discouraged.  It's depressing because my quality of life has been affected, and I worry about my husband having to deal with all of this.  How does another person understand how we feel?   It doesn't show on the outside except that I am not joining in life activities anymore like I used to, staying more to myself.   I always enjoyed life and my relationships so much  I don't even enjoy my church services now, the music and voices are so loud to me. 

Has anyone experienced these things?  Has anything helped?  Thank you in advance for any encouragement you might have for me.  God bless.

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ontario78

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Reply with quote  #2 
Hi Linda, welcome :-) though sorry you had to join. I understand how you feel, who knew ears could cause so much grief?! First of all everything you say sounds right on for Hyperacusis, headache, ear pressure etc..I know what it feels like to withdraw from people, friends, family, church..I haven't been since it began and it's tough..hang in there, more experienced people will be along to give you some sound advice. I reccomend seeing an audiologist who is familiar with all three or your conditions. In the meantime, do your best to try to stay calm and get sleep, sleep is so important. A nice soft waterfall sound, or rain, whatever you can tolerate, not enough to overpower your tinnitus though..and when I am having a hard time, my doc also prescribed me zopiclone, a very light sleep aid, in fact so light, I wake up around 5 on it..lol, but it's non addictive so that is good.Hang in there.

Sarah
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linda1016

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Reply with quote  #3 
Thank you Sarah for your kind words and encouragement.  It is difficult but I will try to stay calm and think about the good things in my life.  I wish you the best in your own journey.  Feel free to share what you are going through.  Take good care.
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Johnloudb

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Reply with quote  #4 
Hi Linda,

Your symptoms are not at all unusual for some with sound sensitivity. I don't what cause your hyperacusis, but MRI machines are very loud and can make hyperacusis worse. Were you given ear protection during the MRI?

But, do seek TRT help as soon you can and get on a forward moving path. Sarah's advice is very good.

 I suggest reading the message to newcomers in the link at the top of the message board. See the link with list of TRT trained doctors too.

Most people can make very good progress and many make a full recovery. It does take time and good help is so important.

John
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linda1016

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Reply with quote  #5 
Thank you John for your advice.  I will read that New Members posting and get moving forward on this.  
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saab1216

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Reply with quote  #6 
Linda I am curious...Before your hyperacusis have you been struggling with anger ,depression or great anxiety,loud sounds,music at all? Im not pressing into your personal life but I was reading that many can actually get hyperacusis from such things as this. I myself have suffered from this from 2008. I was healed pretty much for three years until recent mild depression from change of season. I do think mine was initially caused by earbuds blasting too much music from my mp3 player. But,this time,it seems related to depression. Do not despair,it is highly treatable and I am almost fully back to my "normal" state. You will just need a lot of patience to get through the first few months. First off,concentrate on remaining calm,get sleep aids if you can,take supplements including Magnesium and Lipo flavenoid. these will help circulation in your ears. get plenty of rest!!!!!!! Use any soothing sound possible to ease any pain,burning,fullness etc. It feels horrendous but these things will all pass! Your ears are not damaged!. hearing loss created tinnitus,tinnitus created hyperacusis.  Please read all you can about this using research on DR.Dr.Jastreboff and hyperacusi/TRT tinnitus retraining therapy. It will help you understand what is going on. Dr. Jastreboff pioneered the treatment to hyperacusis and believes It isnt ear damage. I can attest to this because i got better and so can you!.
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ontario78

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Reply with quote  #7 
Great post Paul! Happy to see you are feeling better [smile]

I second what Paul says, great suggestions.. 

I am still new, still learning, realizing I really need to get desensitization down right and work on sound enrichment. 

To Paul, as you know, I was in major depression and anxiety when mine started..no doubt it contributed.
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saab1216

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Reply with quote  #8 
Thanks Ontario, I am here to help pull us out of the mire.
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Mummy_D

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Reply with quote  #9 
Hi all
I wasn't aware I was depressed but I definitely had huge amounts of stress in my life (three Babies in four years, house on the market, up feeding baby five times a night) when I got this. I had also worn ear plugs to sleep at nought for twelve weeks as baby was in our room and I am such a light sleeper. The depression quickly followed when I got it so whose to say I didn't have post natal depression already and just didn't realise it. Anyway I guess regardless of the cause the treament is the same? Hang in there -
Like Paul says the first few months are the worst. I am in month four and already a couple of sounds are bothering me less (paper and plastic bags, water).
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saab1216

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Reply with quote  #10 
Mummy, I do think stress was the first for me followed by depression. Too many stressful events at once and then tinnitus. Then back to hyperacusis. Yep, some plastic bags bother me too especially the real thin kind used for lunch meats.Running water at the tap is an issue especially if someone else is running it from a few feet away.Right now, Ive been playing a song over and over, with headphones,trying to become tolerant of the darn cymbles in it.I get really persistent in challenging my ears but today the burning feeling came back.I get symptomatic right before dinner too. Now for a glass of wine. It helps numb the pain and relax me too
I read somewhere about hyperacusis being predominant in women who are under stress.I have been on this site since 2008 and I see it holds true. Just a thought.Im an exception I guess.
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linda1016

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Reply with quote  #11 

Saab1216 . . .  before my hyperacusis I did not struggle with anger, depression or anxiety.  None at all.  Life was so good.  I did not experience loud sounds either, except at a concert last summer, it was unbelievably loud and my husband and I had to leave after 4 songs.         I will try not to despair, but it’s all very confusing to me.   I have read that TMJ could be one of the causes of loss of hearing, tinnitus and hyperacusis.  But I wonder how I find out if it is?  Do you think the MRI would show this?  The ENT Dr said nothing about it.  Perhaps a dentist would need to investigate this?  I had some problems with TMJ in the past so that is why I am wondering about this as a potential cause.  Thanks for your suggestion of Magnesium and lipo flavenoid.  I will try these.  You say they help with circulation in the ears and I noticed that I had a very good day the day I worked out at the gym.  I’m attributing it to helping with circulation.  I need to get to the gym more often.  I’m glad for you that your hyperacusis got better.   Thank you so much for your comments.


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linda1016

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Reply with quote  #12 
MummyD ..... well that's good that some sounds are getting better for you.  That's encouraging.  I need to hang in there. 
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saab1216

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Reply with quote  #13 
Linda, I am certainly baffled to the mystery of how your hyperacusis started.I can at least vouch for doing tge "damage" to myself. Its true that tmj can be tge cause.Do you remember first getting tinnitus before the sensitivity? It seems tovalways stem from that.aThe limbic system in our mind perceives it as a threat and goes on high alert, hence loudness, , sensitivity and perceived pain. I am finally understanding this fir once in my life. The brain actually sends thecpain signals from yhe fear of sound.My counter attack is to ignore some of tge discomfort andcre train my brain not to over react.Its so challenging at times, , especially when I get tired.
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Mummy_D

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Reply with quote  #14 
Linda - just out of curiosity, you didn't wear ear plugs before you got t and h did you? For example at night for sleeping? Also have you had blood tests etc for Lyme disease? Try to stay positive, I am still in the early stages (4 months in) and I have already noticed some changes in where I feel the pain (further out in my ear) and the noises that cause pain. Saab is right - relaxing into the noise is absolutely key. That is the only way to retrain the brain that the sound is not harmful. I think they do take a while though for the message to sink in! Slow work!
Ps head pressure, feeling weak and shaky are all classic anxiety symptoms which classically goes hand in hand with the onset of h and t. I am suffering terribly with the same plus palpitations and hot flushes.
I do hope you start to feel better soon
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saab1216

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Reply with quote  #15 
Mummy, Im proud of you for listening to me. I actually have overcome most sounds today except the rain as I was driving home. Its time for me to listen to rain a bit more. Yes, the brain is stubborn. The brain causes all of the unnecessary pains associated with the sounds it "fears" It is our job to keep the pain thresholds low while trying to re establish our mindset. It helps to also challenge the sounds that may cause slight discomfort. this is all about checks and balances. Healing never goes in a straight line,there are many little setbacks in between. Most get discouraged and discontinue. I never stopped trying and am moving slowly ahead. Im able to listen to fm radio all day now. Its still a little brassy sounding but it no longer hurts. head pain was at a minimal all day today and yesterday for the first time in months.
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ontario78

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Reply with quote  #16 
I'm having another setback today. I knew last night when I went to bed my ears were hurting. I pushed the envelope too far yesterday. I hate setbacks, I really do. They depress me big time. However I know they happen. I just feel like whenever I try to challenge my ears a little bit, I pay BIG TIME. I don't know how to find a balance.

It seems as soon as I start to feel good and positive, I get in my mind, that I can go for walk or do something "normal" and my ears don't like it. I don't want to feel trapped indoors and I don't want to overprotect. I am not going to analyse what set me back either, could be a number of things from yesterday...

Quote:
But I wonder how I find out if it is?  Do you think the MRI would show this?  The ENT Dr said nothing about it.  Perhaps a dentist would need to investigate this?  I had some problems with TMJ in the past so that is why I am wondering about this as a potential cause. 


I would not have an MRI, though it is the best for TMJ diagnosis. I also have severe TMJ, can barely open my mouth and some days it's hard to distinguish between TMJ and H. I am pretty certain my TMJ caused my H and T. My tinnitus came first.
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saab1216

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Reply with quote  #17 
My ears and scalp hurt every day now. Its the unexpected loud and sudden shifts of sounds that keep setting me back after feeling somewhat better each morning.
This is weird, when I stick my finger into my left ear canal and move my jaw, I feel like a crackling of bones. Only when I put my finger directly over the ear canal and not the jaw.After doing this jaw movement a few times, pain shot up to my scalp and ear sensitivity got worse.
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ontario78

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Reply with quote  #18 
Hi Paul! TMJ and ear pain go hand in hand. (it can also cause chronic ear pain)

TMJ can refer pain to alot of places. It can also cause nerve pain and sensitivity to sounds, tinnitus etc..

Perhaps you also have a bit of tmj dysfunction, maybe worth investigating..

however I also read that TTS can cause jaw pain.but certainly not crackling of bones..
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saab1216

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Reply with quote  #19 
Its actually a clicking of cartilage on outer portion of ear canal. Dont know what it is.perhaps tensor tympani movement? If thats the case, nothing can be done, just suffer.
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phacker

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Reply with quote  #20 

Ontario,

I am really sorry that you have had a set back.  We all want quick results to cure us from H & T and it is hard to be patient and positive because most things in life we get much quicker results.  It is going to get better and once again when you are ready you will be outside enjoying life. 

Warm Regards,

PH

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ontario78

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Reply with quote  #21 
I don't know Paul, my ears made all sorts of noises long before T and H started, including clicking. Plus moving my joint around, including eating makes my pain and ears more sensitive. This is how it began for me was by eating. (chewing)

You should at least do some investigating of TMJ. 

I am sorry you are suffering [frown]
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ontario78

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Reply with quote  #22 
Thanks phacker! What a nice post! [smile]

You are right in that we want quick results. Patience is certainly a virtue with this condition!

How are you doing?
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saab1216

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Reply with quote  #23 
Thanks too phacker and Ontario. I notice that sometimes my condition improves while i eat from jaw movement. I wrote off TMJ because my once horrible dentist. "checked" me for TMJ in approximately 2 seconds. He felt my jaw and asked me to make chewing motions. "Nope" ,he said. no TMJ.  The pain on my jaw ,just under my ears, gets pain now and then but, what is causing the pain? hyperacusis or TMJ? I cant blame everything on sound exposure can I? I admit that sound exposure does aggravate the TMJ symptoms too. When I put pressure on these jaw points,I get shooting pain to scalp,especially my left ear which always rings. as I mentioned. How long does it take to be tested for TMJ?: ps. now left ear is burning from doing pressure point massage.

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ontario78

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Reply with quote  #24 
Quote:
He felt my jaw and asked me to make chewing motions. "Nope" ,he said. no TMJ. 


LOL...I had the EXACT same experience many years ago.

TMJ is another tough condition. Various treatments, various beliefs of causation and whole lot of dentists pretending to be "specialists" For this reason and because I did not suffer too much before this year, I never had mine "treated" aside from watching what I ate and regular massage. I was doing o.k (but clearly was worsening) until this past summer while riding on our motorcycle, we hit a pothole and my neck came down hard, and then from there my TMJ worsened. So since September I've been a mess! Muscle wise in my neck and face (spasms) TMJ and neck, nerve pain, migraines, and now hyperacusis and tinnitus..though the T was there mildly for awhile.

Do you have any muscle issues? in your neck? shoulder? back? wake up with headaches? clench or grind your teeth? 

My advice if you suffer with above, is to find a good Neuromuscular dentist in your area and have them test you. They use a special xray to see, along with descriptions of symptoms. Also, I would recommend cranial sacral therapy, and trigger point massage. Otherwise just google some local TMJ dentists and see if you can find good reviews from patients and go there.

It's worth a shot. IMO, I think the treatment of H is multifaceted and we need to address more than just the ears or desensitization..just from research and knowing my own body and how I react..I mean, how did we all get here? Plus from reading the archives it seems many took different paths towards healing and recovered..it really depends why you have H I think..but TRT clearly is the best treatment there is. I just think for many, and depending on severity and phonophobia etc..we must also use other therapies in conjunction with TRT..

 Sometimes and more lately, I feel that because of my TMJ, this is going to be very difficult for me to overcome, without really good TMJ treatment, if that indeed is the cause..I don't understand why my ears went from being sensitive once in awhile to "chronic" it scares me and makes me think there could be either major inflammation, my disc has completely deteriorated, or else my nerve is inflamed and or damaged. I have my paper filled out for my dentist and I am booking the appt on Monday. Apparently she is the best in my entire province. She is also very expensive.

Just today I spoke with a girl online who said she had the TMJ surgery and before that had severe H. Now she is o.k.
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ontario78

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Reply with quote  #25 
Wow! that was long winded answer to your question eh? lol 

Quote:
 now left ear is burning from doing pressure point massage.


I get that now too!! 



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Mummy_D

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Reply with quote  #26 
Paul. Thanks for the message. Sorry to hear you are in pain today. I can't offer much about tmj I'm afraid as it's another condition I had never heard of until this h and spending so much time then googling (Dr Google has a lot to answer for in increasing anxiety levels IMO!). But great news that you are making progress faster this second time round! I am fully into mindfulness meditation now and it's helping with relaxation. My issue is that I can't avoid loud noise with having the kids and a German shepherd dog. I would constantly be putting plugs in and out - so hence my ears burn like fury night after night. I do wonder if I would make more progress by going away to a cabin in the woods on my own for a month! A fine balance it seems between exposure but not tipping over the edge. I haven't found the right mix yet! Anyway it was your messages of support to my husband that got me through crisis point (I mean very dark days) early this year and for that I will be eternally grateful.
Ontario - sorry to hear you are having such a bad day. Hugs to you!
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ontario78

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Reply with quote  #27 
Quote:
Dr Google has a lot to answer for in increasing anxiety levels IMO!


Yes, Dr Google is evil.

Thanks Natalie [smile] 
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saab1216

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Reply with quote  #28 
Ontario, I really hate to think that this is all from sound exposure but it may be just that. First off, my symptoms dont include headahes in the morning but quite the opposite. Each day at work, my ears respond somewhat ok but in intervals, they get worse, I get tired, irritable. It seems that while I eat or shortly thereafter, I feel some relief for a short time.When night time comes, I know right away that Ive exposed too much sound all day.My scalp burns more than the usual, my ears burn, throat pain, neck pain and sometines shoulder . All I can do is sleep until feeling better but never 100 percent, the next day.Last night,I slept to pink noise instead of the usual rain sounds. .I woke with increased sensitivity and ringing.
As for history. I have a misaligned curve in my neck, periodantal disease with very sensitive teeth.I notice teeth hurt most on my bad ear side. (Left ear). Left ear constantly rings now but didnt before this setback.so, Ive tried everything from physical therapy, massage, sound therapy, , Chiropractors etc. But, I dont believe I was ever properly diagnised for tmj. There was however, a strong indication of pinched nerves and arthritis in my neck. I jogged an aweful lot each time I got my bouts of hyperacusis but, I also listened to comfortably loud music, not too extreme.It does make sense that sound therapy alone may not be enough and this condition stems from a tangible source of damage.whether it is pinched nerves or mal aligned joints, it is an area of concern to find out.Im just discouraged that my symptoms never entice a doctor to research and confirm on why I have hyperacusis. They all just dont dig deeper into helping it.They massage and manipulate everything involving symptoms but never aim at the bulls eye. They possibly dont have concerns from ignorance or time to open a medical book to read about hyperacusis. Some heard of the word but that's sadly all.There are never any attempts to cure me from this, just soothe my neck pain.I then find myself driving 45 minutes home from the drs. Office , hurting from road noise and wind. All counter productive. I will at least try to keep narrowing down the good drs from the bad. I will also be checked more extensively for possible TMJ.....now Im longwinded too lol
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phacker

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Reply with quote  #29 
Hi Saab,

I am also sorry to hear that you are having a bad with pain.  I have been impressed with your courage and will power to take on and challenge H. 

I agree that many doctors in the medical profession treat the symptoms with medication and do not address or look for the root cause of the medical problem. And sometime we end up with worse problems from taking the symptom medication. There are some great doctors out there who care and will not stop until they find the underling issue or keep sending you to a specialist until the problem is diagnosed.  I know, I once had one but he passed away from a medical problem a couple of years ago and he was only 45 years old. The way I did find this doctor was by talking to people. I have been trying to use the Internet to find a great doctor, but it does not appear to have much value.

I have been reading Jastreboff book and he notes that the origin of H in many patients is unknown but the common causes are sound exposure, head injury, stress, medications, and Lyme disease.  There are also some medical conditions linked to decreased sound tolerance.

PH
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saab1216

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Reply with quote  #30 
Thanks phacker.The problem with hyperacusis is that its insidious. It has too many disguises to hide behind. Many doctors just pick and choose which card to play and never really go far enough. Im sorry to hear about your dr. Passing away.How tragic.
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mariont

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Reply with quote  #31 
Quote:
Originally Posted by ontario78
[I have my paper filled out for my dentist and I am booking the appt on Monday. Apparently she is the best in my entire province. She is also very expensive.



Hi Ontario78...I am in Ontario as well and have been suffering terribly since September.  I was wondering if you could tell me who this dentist is and in what part of the province she is located.  Thank you.
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ontario78

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Reply with quote  #32 
Sure! here is the link

http://www.tmjtherapycentre.com/patient/centre/tmj-sleep-therapy-centre-eastern-ontario

Also she cured a dentist that my husband worked for, after she suffered for 20 years. There is also testimonies on you tube.

I am sorry to hear of your sufferings. I too have been really suffering since September.
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saab1216

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Reply with quote  #33 
btw,my hyperacusis is almost a non issue in the morning so,I can rule out TMJ. Mine just gets worse with cumulative sound exposure all day until it wipes me out. The next day and the next. vicious cycle
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ontario78

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Reply with quote  #34 
Mornings are pretty rough for me, then within an hour, I get better..Evenings rough again. It's like clockwork.

Yea maybe not TMJ, you feeling better after eating is also good sign [smile] it could be you have a mild case too, but no big deal. Hard to say.

I've been doing trigger point therapy for about 3 weeks now and it seems to help. I just follow the Clair Davies manual. The hard part is being consistent.

Do you have any other pain besides burning? How bad is the burning? Mine travels down my neck alot.

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saab1216

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Reply with quote  #35 
yes Ontario, I get the neck pain too. I actually slept with very soft rain sounds with no treble!!!!! I woke up with fresh felling ears and low tinnitus. that darn pink noise is too harsh on me to sleep to. You should find the MOST comfortable sounds to listen too. I push the envelope too much with tv and fm radio. Its why my head kills me at the end of the day. Im going easy with sound today
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ontario78

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Reply with quote  #36 
me too. I am quite severe in symptoms today...possibly worse than ever. [bawl]

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TundraStar

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Reply with quote  #37 
Quote:
Originally Posted by linda1016
A month ago my ear trouble started out with a blocked ear which turned into Tinnitis.  ENT Dr  gave me hearing test which showed diminished hearing in left ear.  I then had an MRI which he said was fine.  By this time I now have Hyperacusis (sound sensitivity).  With all three of these things, hearing loss, tinnitus and hyperacusis I also have severe ear and head pressure.  I feel headachy and terrible all the time, shaky and weak and I'm getting very discouraged.  It's depressing because my quality of life has been affected, and I worry about my husband having to deal with all of this.  How does another person understand how we feel?   It doesn't show on the outside except that I am not joining in life activities anymore like I used to, staying more to myself.   I always enjoyed life and my relationships so much  I don't even enjoy my church services now, the music and voices are so loud to me. 

Has anyone experienced these things?  Has anything helped?  Thank you in advance for any encouragement you might have for me.  God bless.


Hi Linda1016. Welcome to the forum. I joined a couple of weeks ago. I have had slight hyperacusis and tinnitus for a few years, but have postponed getting treatment until about 1 1/2 month ago when i began TRT. I had a slight setback at my first check up, but im sticking through with it, and am going for a check up next month too. Hope its more positive. Just ask if there is anything on your mind. :-)
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saab1216

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Reply with quote  #38 
Tundra ,Please keep us posted on just how your audiologist treats your case of hyperacusis. I too,have a mild form but its at a standstill and effectively ruining my joy. Its probably what experts would call a severe case of misophonia. (with head pain and anxiety). Thanks![blinkphones]
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Relivmika

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Reply with quote  #39 
I am so excited that I found this forum!  When I was going through a difficult time with Acoustic Shock Injury in 2006, I did search on the internet, but I don't remember this forum.  I read many articles on the website.  I had a very severe case - I was pretty much disabled, and officially got disability benefits for two years until I found relief through the best nutrition products.  I used to have severe pain, tinnitus (I still have a little bit), and I wore ear plugs (and ear muffs when I went outside) 24/7 for six and half years.  Even subtle noise from the air bent, fan, computer bothered my ears.  I used to become physically paralyzed with noise... my hands start to shake, and I lose balance and collapse on the floor.  I went to 30 doctors and tried many different medications, supplements and therapies.  With the nutrition, my body can cope with many weird symptoms, and my sensitivity and pain are well under control.  I still have some sensitivity, but I can live pretty much normal life now.  My injury was severe, it damaged my auditory nerve, so I was sent to neurologists by ENT doctors.  My neurologist look at the products and told me to continue taking it.  I don't know if it is going to help you or not, but I recommend everyone to try it.  Our body performs miracles with proper nutrition.  I wish you luck - I hope you find relief.


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lird12

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Reply with quote  #40 
Quote:
Originally Posted by Relivmika
I am so excited that I found this forum!  When I was going through a difficult time with Acoustic Shock Injury in 2006, I did search on the internet, but I don't remember this forum.  I read many articles on the website.  I had a very severe case - I was pretty much disabled, and officially got disability benefits for two years until I found relief through the best nutrition products.  I used to have severe pain, tinnitus (I still have a little bit), and I wore ear plugs (and ear muffs when I went outside) 24/7 for six and half years.  Even subtle noise from the air bent, fan, computer bothered my ears.  I used to become physically paralyzed with noise... my hands start to shake, and I lose balance and collapse on the floor.  I went to 30 doctors and tried many different medications, supplements and therapies.  With the nutrition, my body can cope with many weird symptoms, and my sensitivity and pain are well under control.  I still have some sensitivity, but I can live pretty much normal life now.  My injury was severe, it damaged my auditory nerve, so I was sent to neurologists by ENT doctors.  My neurologist look at the products and told me to continue taking it.  I don't know if it is going to help you or not, but I recommend everyone to try it.  Our body performs miracles with proper nutrition.  I wish you luck - I hope you find relief.

What supplements did you exactly take from Reliv? I am looking at the website now. Thanks
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Relivmika

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Reply with quote  #41 
I started out with the basic nutrition. My friend recommend also to hydrate my cells for better nutrition absorption. One month later I added 2 more functional formula to deal with specific issues I was dealing with. My friend encourage me to stay on - I almost quit because I had to go through detox from all the meds. Each person is different, so you should be assessed for your needs - they don't charge for that. The company has 11 patents now, and I wish someone would told me about it, so I didn't have to suffer for six and half years. But they don't run ads... They were on the national news few times. I will look it up and post it later.
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Relivmika

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Reply with quote  #42 


There are others, but somehow I cannot copy and paste.  I will send it to you directory later.  To get the best results, you need to talk to people who used it successfully...  My friend introduced me to many people with ear and nerve issues, so you know what products to try.  It's not medication, but simply the best nutrition you can get for your body.

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Relivmika

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Reply with quote  #43 


Here is another TV clip I found.  Believe it or not is up to you, but I know that it helped me.  It is not cheap crap like you find at a vitamin store.  It really works.  I was spending so much more on medications, other supplements  and treatments (probably total $70,000 or more in 6.5 yrs), and not getting better but getting worse.  I think nutritional approach is way better.  Feed your body with good nutrition and see what your body does.  After I tried as a retail customer for a month, I became a distributor to save me 40%.  I think my four products cost about $150 or less per month.  It's worth every penny to me, and I am really thankful for the life-changing products.  Again, this is not something you do on your own, you have to work with people who successfully used the products.  If you just buy it on line and don't talk to people, you are most likely to fail - because it needs to be used correctly and there might be trial and error til you find the perfect combination.  That's why you don't find it at the store - because the followup by the distributor is  outstanding.  My friend who introduced me to this company is a retired doctor, and there are so many people in medical profession who are involved with this company.  If you see bad comments about the company on the internet, it was written by former distributors who got kicked out by the company for misconduct or competitors.  Go to good resources to check out the company and the products.  There are eleven patents to prove the products are unique and special (there are less than 20 patents on food products in the U.S.).   Good luck to you - hopefully you can have a normal life someday.  That's all I hope for you...because I have been through what you been through... maybe worse.

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pmn100

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Posts: 79
Reply with quote  #44 
So you're a new sign up to the forum, heavily promoting a product and directing people to your profile page where you have an affiliate website whereby you receive commission for selling the product?

Call me cynical, but I've seen this type of underhanded promotion before.  Some people like to prey on the most desperate because they know they have more chance of parting with their cash.  Not saying this is what Relivmika is doing here, but it can be so subtle these days people should be warned.
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dylan

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Posts: 139
Reply with quote  #45 
Relivmika's last post has been deleted by the moderators and the website link removed from the profile. Advertising a product you have a financial stake in is not permitted here.    
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Relivmika

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Posts: 7
Reply with quote  #46 
I think I should describe what I went through, so people might better understand my motive of trying to tell people about what I tried and got great help with.  I am originally from Japan, and worked as an over the phone interpreter for 10 yrs for the largest company in the field in the U.S.  The company was testing a new internet system, and I was selected as one of the 100 people out of 2000.  I worked from home.  The system was faulty, and had a lot of noise, and I live by cellphone towers and radio towers.  I later learned that the internet phone system is not approved by FCC.  Not sure what happened, but one week into using the new system in April of 2006, I had a severe shock into my right ear, and I jerked.  I had massive headache, and just collapsed after the call.  Gradually, my ears started act strange, and pain started, and everything started to sound too loud.  It was like everyone was shouting into my ears from the headset.  One month into working with the pain, I was talking to a HR person from the company over the phone, and my body started to shake, and I could not stand up.  I thought I was having a stroke (my mother is disabled after 3 strokes).  I was taken to an ER, and had a diagnose of labyrinthitis (inner ear inflammation).  However, it was not just labyrinthitis, my auditory nerve was damaged so severely, I lost balance, could not eat, could not tolerate any sounds.  I went to many ENT doctors, and finally referred to neurologists.  I had diagnosis of vestibular neuritis, hyperacusis, acoustic hypersensitivity, tinnitus, virtigo, cervical radiculopathy, neuropathy, and told I should be better in 6 months.  My condition improved over time, but I never got back to normal in 6 months like the doctor predicted.  I developed osteoarthritis in my neck from nerve damage.  I wore ear plugs for six and half years, and stayed in bed almost all day for six and half years.  I tried to keep my job, working from my bed for 3 hrs a day (actual time on the phone had to be less than 1 hour, and I had to use speaker phone, still a lot of pain).  I eventually lost my job and applied for disability.  I had three children to take care of, and I wasn't able to do much.  I regained my balance, and able to drive short distance, but after I have some activities, I always had to lie down. With the noise, my nerve sent out signals to my muscles, and my muscle would tighten, and eventually pinches my nerves, and my body starts to shake, and I collapse on the floor.  I was on a lot of medication to deal with the pain.  None of the doctors have seen anyone like me.  I contacted the audiologist in Australia who studied Acoustic Shock Injury, but there was no one I could go see in the States.  She invited me to come to Australia, but long travel would have been impossible for me.  I have tried everything - last medication I was given was for Perkinsons, and it had a warning label of "possible death".  I did physical therapies, chiropractic adjustments, acupuncture, massage, etc.  I could not do TRT because that is the noise hurts my ears - white noise.  I don't know anyone here has gone though severe symptoms like mine, but I understand what it is like to have hyperacusis, tinnitus, etc.  It drove me nuts.  I tried to be more neutral with my first post.  I only replied to the person because she asked me what I used.  My motive is to help people, and I was trying to be helpful.  I thought that is what this forum was for.  Thank you for reading my post, and before you delete it again, think about the someone who might be helped by my post.
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