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Shayshay

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Reply with quote  #1 
Hello I am new here and wanted to share my story. I gradually got hyperacusis , at first it was little stuff here and there (that I didn't notice then that I now know what it was) like at work closing cabinets were a bit louder then usual and washing dishes or using vacuum cleaner. I'm a Housekeeper. Then I went to the Beach with a friend about 2 weeks ago and they brought a dog and when he would bark in the car I had to cover my ears cause it hurt. After I got back from the beach , I used a riding lawn mower (very loud) for about an hour or so. That night my ears felt very full and weird like a buzzing sound and I felt like I was like trapped. Weird feeling. The next morning my Aunt had kind of rushed in the door and I felt a sudden jump within myself and my ears hurt from just her opening the door fast, then I noticed in the way she was talking was loud to me....( Anxiety kicked in full mode) it is usually when people first start talking to me and then it's like ok unless they raise their voice a bit my ears hurt. Anyways after that every sudden noise are like 10 time louder!!! I went in full panic mode that day , so much anxiety that my chest was like going to cave in...I immediately looked online putting in sudden noises or louder noises are way louder then usually....hyperacusis. I read a horror stories and good stories ...by the way I hope who ever reads this doesn't tell me anything to over the top scary because my anxiety just can't handle it right now. So anyways I set up a appt with an Audiologist and went on Thursday, they did a couple of test and I was told that I have slight/mild hyperacusis. She was very nice and talked to me for what seemed like a good couple hours. Told me about pink noise and I downloaded an app with her , she told me for now I need to listen to this throughout the day and I bought filtered earplugs there but was told only to use in loud situations. Also about anxiety exercises because anxiety can make it worse ..which I try but I the next day went to a clinic I have appt with them next Friday to get on meds. any meds that I should not take while I have this? So I can let them know. Audiologist is sure that I will get better and also reassured me that if it doesn't there is TRT therapy that she provides etc. so for right now I have to just try my best to be in same environments , calm my nerves..she kind of explained that it's also brain kind of deal that since those loud sounds at first we're irritating you , that everytime you would get annoyance with them your brain was kind of training to always be annoyed at louder noises like that and is trying to protect you cause you didn't like them so now I have to try and be I don't know how to put it..like take the noises in a bit better and don't run away from them unless very loud of course. Anyways I'm really hoping that I get better because I sometimes just want to cry from the panic of it getting worse and I feel I'd be better of dead then have to deal with this 😭😭😭😭
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saab1216

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Reply with quote  #2 
Shayshay
From what you describe, definitely sounds like classic hyperacusis. Fortunately, you made a wise decision by going directly to an audiologist. Do you have any idea what may have caused it? ANY loud but unusual sound exposure? Did you have an MRI to rule out anything else within your auditory system? Did the audiologist do an LDL test? What were the results?
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Shayshay

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Reply with quote  #3 
Thanks for replying. I went over the calendar and days (schedule at work etc) and It was basically (I think) the loud running lawn mower ,something was wrong with it and I rode it for like an hour (Audiologist says since I rode it for so long like that,that's what could of caused it) then the next day I went to the beach and that's when the dog barked directly in my ear and that's when I had to hold my ears cause it hurt so bad. Then it was that night I had felt different and fullness in my ears , that I never felt before (feeling it this morning though [frown] ) No I have not got an MRI . I've been reading the MRI horror stories on here...need to stop that. Is LDLs the frequency Hz test? If so yes I did, I'll take a pic and send it

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Ghirin11

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Reply with quote  #4 
Hello,
I am also new to the chat. I have been experiencing ear fulllness and sound sensitivity since October 2016. I started with an ENT that diagnosed me with Eustachian tube dysfunction. He put tubes in December 14, 2016. After one week I had no relief at all. I went back to him at the third week mark still complaining of my symptoms. He said the tubes were just a test and apparently I didn't have the Eustachian tube dysfunction but was unable to offer any advice or referrals on how to relieve my symptoms. I have since been to three chiropractors an acupuncturist and a cranial sacral specialist. I still have not experienced any relief whatsoever. Every day is a struggle, I can't go to restaurants, social events, parties, concerts, or plays. The time I look forward to the most is when I'm going to bed. I even went to Massachusetts Eye & Ear and saw an Otolaryngolog. She did a CT scan and ruled out superior canal dehiscence. She also had nothing else to offer me. She said I could have an MRI but didn't really feel it was necessary. I am so frustrated with going from doctor to doctor with no answers. I have not yet seen an audiologist to check my LDL's however I did have a hearing test in Boston that revealed hearing loss in my left ear which is my bad ear. Most of the people on this board talk about sporadic fullness however mine is constant and gets worse obviously when I'm exposed to irritating sounds such as dishes lawnmowers washing machines and even my husband's voice by the end of the day. I would say mine came on gradually because for approximately two years prior to the onset of fullness in October, I noticed I was getting more irritated in loud restaurants and didn't want to go to any sort of events with crowds at all. I've had a few bouts of vertigo which at one time I went and saw a hearing and balance specialist, she diagnosed me with the Beneign Positioning vertigo. She performed head positioning maneuvers that helped move the crystals and that seemed to help. When I described my adversity to going to loud restaurants she said it sounded like I was experiencing migraines and to try Excedrin migraine. I do go to work every day in a fairly quiet environment and the past month I stopped wearing any sort of ear protection at all after being told by the doctor in Boston that it's best not to. I began an antidepressant as after seven months of this. II was pretty low as you can guess but I didn't get any relief from my symptoms . I didn't really think I would but I knew that I had to get out of the deep dark hole I was in. The antidepressant has helped with that however these constant feelings of fullness and sound sensitivity take over your life and what makes it worse is people don't really understand it because we take hearing and sound for granted. I used to love the sound of the birds and now it drives me crazy. I have even contacted the doctor in Florida (Silverstein), tthat does the oval window reinforcement . Don't know if I will go through with it but I was just grasping at anything. I've never had anything this long and debilitating in my life. The irony is I also have a condition called Osteogenesis imperfecta which means fragile bones. Along with that comes scoliosis, broken femurs, back pain, joint pain but nothing compares to this. It robs you of your life and there is nothing you can take to get a few hours of relief. Just constant. Luckily I don't have tinnitus constantly, just on and off for an hour or so but the feeling of blocked ears and the vibration in your head and feeling like you're underwater constantly is maddening!!! Sorry to go on and on but just needed to vent.

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Mona Ghirin
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saab1216

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Reply with quote  #5 
Mona and Shayshay...Welcome to the Network. Just reading your stories, made me reminiscent of when I went through the same journey as you.Countless visits to the chiropracror...ENT dr...physical tberapy..etc. I did go to a TRT specialist /Audiologist with my onset of hyperacusis and tinnitus in 2009. She sold me wearable sound generators and prescribed using them for at least 6 months to a year. My issues were a lot like yours. Ear fullness,pain,horrible anxiety and finally horrendous misophonia .Birds were not my dearest friends either. I had some luck with the wsgs as far as them taking my focus off of my tinnitus. The real charm about the wsgs was, that in time,I realised that they took my ear fullness away. It was when my ears were subjected to silence for too long,the fullness and pain crept in. Of course, loud sounds hurt too but, the fullness did subside with wsgs and a steady diet of nature sounds. I used a smaLl stereo headset everyday after work with my mp3 player and played rain and/or ocean waves.I figured that my wsgs could only go so far in retraining my tolerances but not to every high frequency ie...birds..whistkes...bells...squealing truck brakes etc. So, I collected sounds from YouTube and played them back to myself everyday. I used birds the most. I had real difficulty with the sound spectrum in the highest frequency as I mentioned. I figured that if I could adjust to birds,then, everything else would fall into place. Months of sounds and musical selections were my choice to beat this. I did eventually beat it.
The thing to consider most is training your paranoid brain to accept sound again. It's in a fight or flight mode and "Stuck" there. You need to unlock it again. It's reassurance of sound therapy at your own comfort and volume level. It was a good measure of discipline for me to turn the volume up a bit more each week..each month..to a" Normal" volume. I actually made sounds a game. I challenged everything. My daily jogs across a traffic laden bridge,became a huge obstacle at first but ,in time..I had no real issues other than a passing motorcycle or ambulance siren. (I plugged ears for them). I eventually bought myself my dream machine. A 2006 Saab convertible in shiny black. I drove country roads and eventually 3 hour trips each way. Yes. I had many migraine headaches...stiff neck...pressure..isolation and sadness. That car made me strive all,the more to get well. My kids also kept me busy being an Explorer on the mountain trails or taking long bike rides.
I didn't give into depression. I enjoyed the sunshine and the rain.I kept listening and listening to sound and at days end I retreated to a quiet place with my wsgs. It was the hardest thing to conquer in my life but, It can be beat when you believe in those who have walked the line. If you fear sound and hide...it wins. Don't let it..
Paul H...the ex saaber..now a jeeper.
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saab1216

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Reply with quote  #6 
Shayshay sorry...I read right past your post. Yes, you have a degree of hyperacusis as seen in your LDL test. I also had a ,loud sound exposure that spiraled me into hyperacusis. I can blame my ignorance on the overuse of mp3 player while mowing the lawn and online video gaming which both were entirely new to me at the time.It was no doubt an acoustic shock to our system that set us into hyperacusis mode. You too can challenge yourself and see progress. I have a lot of posts here on my 4 to 5 year bout. I also posted my story somewhere on the site. I hope you can benefit from reading them. And yes,an MRI can be disastrous. I had one done with tinnitus and the aide placed earphones on me with loud music. Bad mistake. If earplugs are an option take it. But, since you mentioned the loud sound exposure,my uneducated guess would be that it was a cause of your hyperacusis. I do personally believe that some of us are more susceptible to hyperacusis when we are at a chemical low...feeling depressed or mentally/physically exhausted. Stress plays into it.
I do welcome you to the site. There are good stories and sad stories. But...many of the posts you see here are no longer here because they got well and moved on. I see a lot of people improving. All my best to you. Paul...ex saaber...now jeeper
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Shayshay

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Posts: 9
Reply with quote  #7 
Thanks so much for replying to me as I feel alone and it's nice that someone cares and shares their story as well. I will go and look at your story, thanks and I'm happy to hear you beat it and it gives me hope! I am since I left the audiologist been listening to pink noise and nature sounds like birds and waves etc. there is this app that she had me download that I can listen to ,the pink noise and also add other nature sounds to it as well. So I've been playing it all day long , even at work I have it playing on my phone. Right now as I'm typing this I am listening to it. I am a housekeeper so I work alone and so I don't use the earbuds I just have it playing on my phone. Is that ok? Or should I have earbuds in with the nature sounds? I just have it playing on my phone everywhere I go...work and even at home around people and my nieces lol and In the car. I've been noticing to that the more I am in silence the more my ears feel full and the sounds are louder. So I'm guessing that's why it's worse right when I wake up and before I go to bed? I'm trying my best to be around sounds like with family and outside and stay away from silence but sometimes I feel I need to retreat cause after awhile the louder social time gets me exhausted. It's so crazy that this can happen to someone ,I've never felt this way before as if it's almost a crisis in my life. As you said it's a degree of hyperacusis and so did my Audiologist,say it was a mild case. That makes me feel better and that I WILL overcome this because I just have to...no isn't an answer for me right now. Also I was stressed out around the time it happened and always had some anxiety problems in my life. You said you went jogging a lot and that helped. Does that help? Should I start jogging or walking outside more cause if so I'm in!
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Shayshay

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Reply with quote  #8 
Mona have you tried the sound therapy , broadband noise /nature sounds? Ive been listening to it ever since I left audiologist office ..All day and even when I sleep I have it on. I here this is supposed to help us. We have to try are best to beat this. I'm sorry that you have had to go through lots of doctors etc and the tube thing, I can't believe they put it in only to test to see if it was...that's scary! I'm going to try my best to keep doing sound therapy and breathing exercises . I go to the doctor this Friday to try and get on anxiety/depression meds as I feel it will help...because breathing exercises just isn't cutting it. Does anybody know what meds we shouldn't be taking with hyperacusis? I would hate to take something that makes it worse for some reason :/
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saab1216

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Reply with quote  #9 
Shayshay In order to truly benefit from sound therapy..you need to use a direct approach. Simply having sound in the background may benefit your anxiety but in no means,will it retrain your brain. I used soft foam..headphones that sit on the ears..not completely cover the ears. By doing this,you can still allow outside sound to come in. Just playing soft enriching rain or running water directly into your ears may offer a most soothing response. It may take away the fullness and pain in minutes to an hour. It depends on how often you commit to doing it. Music...if tolerable is also beneficial in strengthening up your ears. I personally used bands like Fleetwood Mac as it offered less harshness in some of its selections. I'm not even a huge fan of soft music but...back in 2009..it was my only option. I used a music protocol that I found here on the network. It's been developed by one of the pioneers of this group.His name is Rob. I don't know if he's personally active at the moment but,he was an extreme help to me along with John Loudb;Debbie;A Quieter Breeze and Lynn Mclaren You may find a few topics they shared with me. Hope they help.Please keep in mind that they may not be active on the site but info is still available. Please DO NOT detract from sound therapy as your number 1 offensive tactic. Many others do offer extensions above and beyond the pale. Sound is essential..anything else will just benefit your anxiety which isn't a bad thing either.
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Shayshay

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Reply with quote  #10 
Ok I will start using ear headphones more and thanks I'll look them up , thanks again [smile]
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saab1216

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Reply with quote  #11 
This worked for me. Please give it a try. http://www.chat-hyperacusis.net/post/a-music-protocol-for-hyperacusis-and-phonophobia-2339312
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Shayshay

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Reply with quote  #12 
Ok will do , thanks!!
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Shayshay

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Reply with quote  #13 
All in all what helped you the most? I read your story. Was it the TRT or sound therapy? Both, I'm guessing. I would like to do the TRT but I heard it's a lot of money. I guess time will tell what I need to do ...and yes I see lots of different approaches and I'm trying them all as in sound therapy and no ear plugs unless very loud (I bought some and wear them when I'm vacuuming and doing laundry at work). I get tempted to wear them when I'm driving but I don't. This is all still new to me and I'm trying my best everyday to figure this out. I had to have someone go grocery shopping for me as I'm to scared to go into Walmart because a gas station to me was loud and scary. I will start doing the one cd a day by rob , thanks for sharing
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saab1216

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Reply with quote  #14 
Both helped. If some situations are too scary..have you considered a little cotton ball in each ear? It was my little cheating method while shopping. You sound to me like a real proactive pursuer. Keep up the great work. It's long and painful but worth the results. Many little setbacks too.
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Ghirin11

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Posts: 17
Reply with quote  #15 
Saab1216,
I can't thank you enough for providing me with hope and a plan. I have been dealing with this alone for 8 months and thought I must be crazy. I did come to the boards and read but since my head was reeling with no real diagnosis and the run around I was getting from the plethora of doctors I had seen, I never would write and reach out for help. When I finally decided I needed to focus on my symptoms, it was a no brainer. They matched everyone's here on the boards and I needed to talk to folks that are experiencing these bizarre symptoms. I will make an appointment with an Audiologist trained in TRT. The one thing that baffles me is that since reading on the boards not to escape sound by wearing ear plugs I haven't worn them for 1 1/2 weeks straight. It isn't easy but I work in a guiet office all day other than the guy in the next cubicle that has a very loud deep voice (luckily he isn't there the whole day). I did notice the more I hid from sound the fullness and anxiety was stronger. I thought by doing this I would habituate quickly but have found the sensitivity and fullness have not changed at all. I guess there is no fast way with this condition. Is it harmful to force yourself to endure sounds such as vacuum cleaners without ear protection?
I found it interesting when you mentioned your dream machine "the convertible Saab." We have owned Saabs for 27 years but never a convertible. That was our dream car as well. We came close to buying one but couldn't do it. We stuck with the 9-5 wagon, 900 sedan, 9000 CSE and currently a 9-5 sedan. Kids kinda dictate our choices in car!!! We are empty nesters now but this Spring our dream machine changed to a 2006 Four Winns Funship!!! We have been out four times. It is a great stress reliever. Thanks again for your support. It's meant the world to me!!!!
Mona

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Mona Ghirin
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Ghirin11

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Reply with quote  #16 
Shayshay,
Thank you for your response. As you will see from post above I have been forcing myself not to wear plugs all the time. I hate it but was feeling just as bad if not worse by wearing them. I would say the anxiety got worse because I would feel like I was destined to a world without sound and that just put me over the edge. I am going to try Saab1216 method. As far as medication goes, I was desperate so I started cymbalta about 3 months ago. It helped with the depression but not at all with the hyperacusis symptoms. I take 60 mgs daily. I have vertigo today so typing is a challenge. Thank god I have the day off because I am on a computer all day at work. I hope and pray we can overcome this. Keep me posted. I need to lie down for now, vertigo is getting to me. Thankfully this only the fourth time I've gotten it over the last 8 months. We'll chat again.
Mona





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Mona Ghirin
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