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Den

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Posts: 7
Reply with quote  #1 

I have both tinnitus and hyperacusis and just received my "Pink Noise" cd which i 've just used for one hour. After stopping the cd player I notice that my tinnitus seems somehow "louder" Is this common? Am I doing something wrong? Any suggestions?

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Rob

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Reply with quote  #2 
Hi Den.  Welcome to the board.

Can you give us an idea of the volume you're using when you play the CD?  Is it loud enough to cover your tinnitus?  Or does it blend with your tinnitus so you can hear both the pink noise and your tinnitus?  Or is the CD played very quietly so you have to strain to hear the pink noise?

Rob   
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Den

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Reply with quote  #3 

I was playing the Cd at a low level just so I could hear it but also hear surrounding sounds per instructions that came with the cd ie. Girlfriend talking but my tinnitus level (a tone) is so loud it almost drowned out the pink noise itself. Once I stopped the cd, my tinnitus "appeared to be louder than before using the "Pink Noise" Am I doing something wrong or is this "appeared Loudness" merely a psychosomatic response to a new sound and the tinnitus should "calm down" My hyperacusis is usually not a problem at home (except for the ocassional loud barking dog or low flying airplane but I run a wine shop and tasting room and all the compressors running ( to keep everything cool) are sometimes so intrusive I must take a 1/2 a Xanax and use earplugs just to get by until I return home but once there it is my "sanctuary" from intrusive sounds.

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aQuieterBreeze

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Reply with quote  #4 
Hi Den,

Others know a Lot more about the pink noise cd than I do .... (and about these challenges as well)

But I wonder -
When you tried the CD - were you using open air headphones, or an external source for the sound?
What were  you playing it on?

Do you have extra bass or sub woofers  turned on with what you are playing it on?
(If so,  I wonder if  it may be helpful  to turn any subs or Added bass - OFF?)

you mentioned-

 My hyperacusis is usually not a problem at home (except for the ocassional loud barking dog or low flying airplane but I run a wine shop and tasting room and all the compressors running ( to keep everything cool) are sometimes so intrusive I must take a ½ a Xanax and use earplugs just to get by until I return home but once there it is my "sanctuary" from intrusive sounds.

How is your sensitivity to sound? Did playing the cd seem to have any effect on it?

Also, did you try the cd fairly soon after removing your earplugs, (If you had been wearing them that day ) verses waiting awhile first?
I ask because using hearing protection can make us more sensitive to sound, I notice that when i remove hearing protection - my ears are a bit more sensitive for awhile.....
and though i would not know, i wonder if that may have something to do with what you noticed?

Hope your tinnitus  settles back down soon,
I've had mine get very loud at times, and quiet back down ......
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Den

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Posts: 7
Reply with quote  #5 
Thanks for your response. I was using a portable CD Player and may have; come to think of it,  had the mega bass switch on. Yesterday (at work) I didn't use earplugs (it's only certain days that the hyperacusis acts up enough to warrant earplugs, don't know why, it may be anxiety) I was using open air earphones. Again, once I stopped listening to the cd I thought my tinnitus had gone up in volume and as I said in my earlier post, perhas it was a psychosomatic response to a "new sound" but then I don't know as my tinnitus never gones down in volume, not  in the three months I've had it.
Any one have a similar response when just starting out withthe Pink Noise CD?? 
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Rob

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Posts: 4,049
Reply with quote  #6 
Hi Den.

What you're describing isn't uncommon.  You might lower the volume of the CD very slightly and then just give it some time.  Things should turn around for you. 

Rob
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Den

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Posts: 7
Reply with quote  #7 

Yikes! This is my second day using the Pink Noise with a cd player and "open earphones" I adjusted the voluime so that I could hear both my tinnitus and the pink noise as well as other sounds.After stopping the cd my tinnitus level has raised atleast 20% What's going on? Any one have any ideas???Will my Tinnitus volume level go back down?

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migrainegirl

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Posts: 137
Reply with quote  #8 
I experienced a temporary increase in tinnitus after starting TRT. My doctor said that was normal because as my ear was adjusting I could "hear" it better. Not sure why. But it was transitory and did go away.
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Den

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Posts: 7
Reply with quote  #9 

Thanks for all your responses. Just three weeks ago I had severe tinnitus but no hyperacusis then wham. I'm 67 years old and cannot afford the Hyperacusis treatment clinics recommended by Dr. Jastreboff so I bought the pink noise cd have tried listening for several hours. I became really worried when the sound increased last night. Thanks migrainegirl for your information. I'll start using the cd again tonite when I get in from work. Again a BIG THANKS to all of you for responding to my concerns.

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aQuieterBreeze

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Posts: 2,083
Reply with quote  #10 
Hi Den,

You mentioned -

Just three weeks ago I had severe tinnitus but no hyperacusis

May I ask how long you have had tinnitus? What you mention makes it sound like it could be three weeks, or perhaps quite a bit longer.

About the pink noise cd -

Are you using it shortly after you get home, or waiting for a while?
If you are trying it shortly after getting home, I  wonder if it may help to allow yourself  some time to relax for a bit after work first?
To allow any increase in stress and/or sensitivity (that may be from sound exposure while at work) to dissipate for a little before trying the cd?

Also if you still  have difficulty, I wonder if trying it for less time to begin with may be appropriate?
And/or perhaps trying it over external speakers, verses the headphones for now?
Though as I mentioned. - I've not tried the pink noise cd and others know a lot more about the cd, and about these challenges than  I do......

----------------------------------

 My challenges are from being around loud sound -
 and though it took a long time for my t to give indications it would get quieter over time - it did.
 It started out so loud it would keep me awake at night and wake me up if I could get to sleep.
 
My tinnitus also fluctuates in accordance with and in reaction to sound, though over time it seems to do that much less.
 
When my hearing/ears get  more sensitive to sound - than they usually are, among other things my t will also seem louder at those times, but mine settles back down -- and I've had that happen many times.
 The increase in sensitivity to sound I notice,  at those times also settles back down.
 
 
 In my view,  checking the settings one uses for sound, when listening to music or other sound/noise,  - and  turning any sub woofers and/or added bass (such as a "bass boost" setting )OFF may be helpful for people with these challenges,
when listening to music or other sound as well such  as on tv, car radio - stereo, computer or whatever the source  ..... - 
Especially if one is having a difficult time tolerating music or other sound. 
But then I am still more sensitive to bass, and if I was not able to turn that stuff off - if i had it - i would not be able to listen to the music i am able to these days.

I've not tried the pink noise cd, but when I first started listening to music again, after not being able to do so for a long time (not because of my t, but because my hearing/ears were so very sensitive to sound) .....some things  I tried to listen to made my tinnitus  more noticeable ...so I choose selections to begin with that I was able to tolerate that helped to minimize that.. Now I can listen to a lot more in the way of music than at that time, and rarely notice it having any effect on my tinnitus - and the music sounds beautiful.
(and I am also able tolisten to many things that i thought at one time - I'd  never be able to listen to again)

While these challenges can be difficult, there are ways through them.

If the pink noise cd still seems difficult, maybe leaving it on for less time to begin with, and working up to longer periods of time, over time would be helpful? Though as I mentioned, others know a lot more about it than I do.


Just my thoughts though, others know alot more about these things than I do.
(And I would ask Rob what he thinks would be helpful.)

Wishing you much better days and much improvement
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Den

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Posts: 7
Reply with quote  #11 
I've had the tinnitus for 3+ months and at first it was variable, louder in the daytime, softer towards evening. Then I saw a Tinnitus blog that offered a technique to stop or atleast quiet the sound where-in you cup your ears with your hands and with your forefinger and index finger ,thump on the back of your head. The comments along the blog said it worked great and many people claimed they were cured of their tinnitus but when I performed the maneuver (the thumping on the back of the head) the result was an immeditate increase  in the volume of my tinnitus and it's never gone down from that day.The hyperacusis started more recently and has grown in my sensitivity to sound. Just two weeks ago I could deal with sounds that now
create real problems for me. I'm hoping the pink noise cd will begin to help although as I mentioned in a previous message I did have problems the last two night with my tinnitus increasing after using the cd
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aQuieterBreeze

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Posts: 2,083
Reply with quote  #12 
Thanks for your reply,

You mentioned -
I did have problems the last two night with my tinnitus .....

Did your t settle back down yet?

You also mentioned-

The hyperacusis started more recently and has grown in my sensitivity to sound.

Do you have any idea what may have caused your hyperacusis?

 You mentioned-

Just two weeks ago I could deal with sounds that now
create real problems for me

What sounds seem to be  more difficult?

With hyperacusis being around sound that is too loud  can make other sound more difficult to tolerate  for awhile. Taking it easier soundwise when necessary can be helpful.

Something else that can easily and very understandably go along with these challenges is a fear and/or  dislike of sound ....
And understanding some things about all these challenges can be helpful

There following  website that has a lot of good information,
(including some articles that can be downloaded, and also some excerpts from a book on TRT, that can be downloaded as well.)

http://www.tinnitus.org/home/frame/THC1.htm
The Tinnitus and Hyperacusis Centre: home of TRT
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Den

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Posts: 7
Reply with quote  #13 

Tinnitus hasn't settled down because I work in a noisey environment. A Wine shop/Tasting room connected to a convenience store so there are a number of very loud compressors going almost constantly. I'm currently wearing earplugs which I will remove when I get home and then I'll play the pink cd after dinner once my ears are feeling better.

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