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Sadears

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Posts: 62
Reply with quote  #1 
Hello all. My name is Adam. I am hoping some of you are doing better now than you were a few months ago, but unfortunately that is not always the case.

Some may remember me, some wont; I was a very frequent member on the forums last year when I first developed Hyperacusis..or at least, what I think is hyperacusis. I was playing in a punk rock band while trying to understand and manage the condition. I've been doing DIY pink noise therapy since October 2014.

From October to the present, I noticed a slow and gradual improvement with my decreased sound tolerance, and the accompanying symptoms that followed. While many setbacks occurred along the way, all in all, I always managed to crawl back to a manageable state.

My biggest struggle other than the H itself was the fact that I had developed this condition whilst playing in a band that I had very recently got together and was starting to gain momentum. Initially I was shocked and confused to what was going on, and brushed it off as some trauma that would fade away in a few weeks. That was definitely not the case.

From research I did on my own, and for the information on this board from many of the folks that frequent the site, I learned how to treat my condition, to understand it, and to realize my lifestyle was certainty not helping my case..that is, being a musician who plays in a loud punk rock band frequently. 

I've seen countless doctors, all of whom did nothing for me because they couldn't or dismissed my case as something inferior. The only thing I ever got back from a doctor was a hearing test that came back normal. They all gave me totally wrong advice.

I've experienced every symptom from ear pain, aural fullness, throbbing, headaches, dizziness, vertigo, anxiety, de-realization, tinnitus..the list goes on. Not all at once, and not always severe, but after loud sound exposure and/or setbacks, they were pretty bad.

I continued to play with the band up until this past August. Things weren't going great internally within the band,  and my Hyperacusis wasn't the worst it'd been, but I realized that I would never fully recover, or have a chance of recovering if I didn't stop playing and focus on whatever I could do to get better. So I quit. And being the guitar player and singer who wrote the songs, the band dissolved after my departure.

I had taken a month-ish break last year during my initial development of H, which greatly helped, but my symptoms soon returned after having continued to play in the band. I never got a chance to fully focus on recovery because I was always dedicated to practicing.

So here I am today, just over a year later..still doing sound therapy, and while much more knowledgeable of the condition, I am still struggling. It's been about a month since I stopped playing with the band, and this has been the first month in a year that I felt little to no irritation from sound or pain in my ears on an almost daily basis. I felt great. Like it was working. I've been able to do things I thought I could never do again, like playing guitar everyday, or listening to music in my car everyday.

More recently I developed a cold/ear infection of some sort, which set me back in a different way..I am still trying to get better, but overall my ears don't feel as bad as they used to.

With this progress and no dedication, I agreed to play a house show my friend is hosting on Halloween with some friends, just playing covers. I was excited. And after a practice yesterday, which I enjoyed and felt mostly fine the whole time, I sit here tonight with my ears throbbing, sore and full. So I guess I'm not ready yet. Didn't really give myself enough time. My fault.

I guess I'm here to say that if you have patience and don't give up that it can get better. Educate yourself and don't listen to the doctors. They are almost all wrong. Sound therapy works. 

But at the same time..I'm still struggling myself..wondering if I have to give up my dreams of being in a band. Because as of right now, I could never tour.

Best wishes and luck to you all, I hope my knowledge can help some of you.

-Adam


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Paulbe

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Posts: 176
Reply with quote  #2 
I remember you Adam.  I've sometimes wondered how you were doing.
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DrNagler

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Posts: 291
Reply with quote  #3 
Quote:
Originally Posted by Sadears
I am hoping some of you are doing better now than you were a few months ago, but unfortunately that is not always the case.


To All -

I am just going to take one sentence from Adam's post and explore it.

The point I wish to make is that everybody can be doing better now than a month ago. Everybody. Hard to believe, but it's true.

It may not be true if you view your entire life through the prism of your auditory system.

But as challenging as hyperacusis, misophonia, tinnitus, and related maladies may be, it is important not to let them blind you to the rest that life has to offer and to what you have to offer the rest of life.

I received a beautiful Rosh Hashanah card from a close friend a few days ago. Here is what it said:

This Year may we laugh more and worry less.
This year may we praise more and criticize less.
This year may we help more and ignore others less.
This year hug and kiss more and roll our eyes less.
This year may our words be sweet like honey instead of stinging like a bee.
This year may we recognize that our glass is half full.
The roses are fragrant.
And the coffee is worth stopping for.
May this year be a year of Health growth and love.


So how can you be sure that you will be doing better next month than last month? Well, in my opinion the one absolute guaranteed way to add meaning to your own life is to make a difference in the life of somebody less fortunate than yourself. If you can commit to devoting just a few hours each week to making that sort of difference, and if you can make keeping that commitment your top priority, then I promise you that you will be doing better next month than last month. Even if your hyperacusis isn't doing any better, you will be doing better.

Just a thought ...

stephen nagler

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No bird ever soared in a calm. Adversity is what lifts us.

- David McCullough quoting Wilbur Wright
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DanMalcore

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Dan
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Posts: 1,456
Reply with quote  #4 
I love it.  Thank you Stephen...

Dan

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"Yesterday is ashes, tomorrow is wood, only today does the fire burn brightly"
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Kevin

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Reply with quote  #5 
Quote:
So how can you be sure that you will be doing better next month than last month? Well, in my opinion the one absolute guaranteed way to add meaning to your own life is to make a difference in the life of somebody less fortunate than yourself. If you can commit to devoting just a few hours each week to making that sort of difference, and if you can make keeping that commitment your top priority, then I promise you that you will be doing better next month than last month. Even if your hyperacusis isn't doing any better, you will be doing better.


Dr. Nagler makes a good point, and there is certainly truth to this.  As a Christian, it reminds me of the two great commandments from God - Love God, and love others, in that order.

When you put the needs of others ahead of your own needs, there's a reason that feels good - it's what we were designed to do.  When you are helping others, it takes the focus off your suffering.

This world will always have suffering until it's end, and hyperacusis is just one of the countless manifestations of suffering.  
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