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skiper

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Posts: 7
Reply with quote  #1 

Hi to all

 

I will try to be short.
 
I am male 45 year old from east Europe. Didn't know for this forum until 2011.
Have diagnosed  hyperacusis in 2004. Also have tinnitus long before hyperacusis.

My hyperacusis comes from listening electronic  music in clubs and in my house.

In 2004. i had  first "sound shock".  After one party i came home, go to sleep a little bit,
after wake up go to bathroom  and after flushing water i noticed that loud unpleasant sound of flushing water.
 
That's how it started. About a year later or less, things settled down on that level that i could go to a movie theater, or listening music in my room on low level. I was continued to go to parties but only on the open air events with ear plugs, but not that frequent as i used to.

And here comes 2007. There was a one party that ruined everything.  On that party i start to use new silicone ear tampons that was often comes out and i constantly had to push them inside ears. That event sealed my destiny. And that was enough to make my second "sound shock". After that event i could not go to movie theaters, no more listen music, TV could listen only on lower volume. Louder people i was avoiding, all in all my life then changed dramatically.

This year 2016 in about mach-april don't know exactly, condition has worsened. I thought that was a setback but now i can see that this setback is permanent. I don't know exactly what was the trigger for this permanent setback. My condition now is that even little loud people must avoid. Sound tolerance has been worse than before.  Don't have social life any more. Sound of my own voice is sometimes loud like never before. Also on my job have to avoid talking to some loud people. On my desk where i work  there is a printed paper with :-- Please don't yell - lower the volume of your voice --
Years ago i was trying with TRT, open headphones with pink noise but it didn't help. I was stuck on one level of pink noise that couldn't reach further.  I was trying also with homeopatic, bioenergy, reconnection, LLLT (tinnitus pen - that even made little damage to me)... don't know what else.
Now i am on NAC and magnesium and listening sounds of rain and water creek on little speakers every time when i'm on laptop just not to be in silence. And when watching TV also listening that sounds in background.
 
 
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Nedcrouch

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Posts: 6
Reply with quote  #2 
I have found a treatment that works for me. Working  with my physician, I described the phenomenon. I told her I felt it was nerve-related, as opposed to auditory-related. (There's nothing wrong with my ears, it's just that when there is a sudden, or unexpected sharp/loud noise, I go nuts.) In discussing it with her, it sounded to her like "over-active" nerves, somewhat the same phenomenon as happens with people with migraines. She prescribed NEURONTIN. It works. Neurontin has relatively few side-effects, is cheap, and has a track record calming nerves in such problems as fibromyalgia. She prescribed up to nine pills a day. I take only three. I can now take those sharp noises as I have not been able to for twenty years (since I was first diagnosed with hyperacusis.) It works for me. 

I suggest you try it. I found a chart on line that proposed neurontin as a last resort, after all the other black magic stuff. The chart was enough for both of us to conclude that we could go straight for neurontin. I've also found that if I go on it for a couple of weeks, I settle down a lot, and don't live in dread that something else is going to happen. I take two with breakfast, and one more with lunch or dinner. that's all. 

Good luck (no, I don't represent neurontin!)



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ned crouch
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skiper

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Posts: 7
Reply with quote  #3 
I've been reading some other posts here about neurontin and i found that
while taking the drug all goes well, but when stop using drug, H coming back. So i don't believe that will be my choice. Maybe if pain become unbearable. Only then. But thanx anyway for advice.
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Nedcrouch

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Posts: 6
Reply with quote  #4 
I believe that if you stop taking the neurontin, your h will come back. When I tried a couple of times to stop, H was right there. However, I have had no reaction to the meds. The treatment (not cure) far outweighs any adverse effects (none for me) or the cost (peanuts.) I just shut up and take them. Then, I can go out to dinner at a noisy restaurant and not worry. I'm 75 and thankfully on practically no meds otherwise. Good luck.
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ned crouch
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Margy

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Posts: 194
Reply with quote  #5 
I have been on neurontin for about 10 years, initially for an unrelated reason. I thought it might help some sciatica I was going through. I don't know if it helped or not, but I stayed on it just in case, and I was over the initial side effects.

I got hyperacusis two or three years ago from combined noise/dental surgery/Jaw muscle tightness/unknown other factor. Nothing to do with neutontin, but I can't get any relief from it. It's hard to tell if it has had any effect. It seems relatively safe, but it hasn't helped me. Still, it might be worth a try if you haven't tried it. The neurologist said it was probably safer than the water I drank!
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