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joseph1

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Reply with quote  #1 
Hi there,

So I have been trying to get down to the bottom of what is going wrong with my ears in terms of ringing and sound sensitivity for a while now and I have been told by numerous professionals to get an open MRI exam. However, due to the loud nature of the test I am really worried about it, and backed out of taking it. Unless I have a brain tumor then I don't really see a point of the test and I know my history of loud music and tmj so I doubt that is the issue. Open MRI's are supposedly quieter and by using ear plugs and muffs i can take the noise down a couple notches, but I am still worried. Does anyone have any thoughts or past experience with this type of situation?

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saab1216

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Reply with quote  #2 
joseph,I wouldnt recommend an MRI unless you are given foam earplugs or ear muffs to wear. I had an MRI and dont did have complications a bit later on. I didnt have any ear protection except headphones with music. At the time,the machine wasnt too loud for me because I was just suffering with tinnitus and a little sensitivity. within only a couple of weeks I had full blown hyperacusis. I am 90 percent cured at the moment.
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joseph1

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Reply with quote  #3 
That's good to hear that your doing so much better. I was definettly planning on being able to wear both ear plugs and muffs or else I would not take the MRI. I refuse to try to solve the problem with unnessisary tests and make it worse in the process
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ontario78

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Reply with quote  #4 
Quote:
know my history of loud music and tmj  


Do you consider this to be your cause? have you seen an tmj specialist?

I also have TMJ long history of loud music etc..
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joseph1

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Reply with quote  #5 
Yes I do consider this to be my cause, mostly the music. I have not specifically seen a "tmj specialist" but my dad is a dentist so we're definetly working on the tmj problems. For me, my right ear is much worse and that is the side with the most tmj issues as well. Ontario, is one ear worse than the other? are your tmj symptoms worse on a certain side?
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ontario78

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Posts: 186
Reply with quote  #6 
Yes. It is worse on one side. Though that is not terribly uncommon with H (from reading)

Well, both my TMJ are messed up, but it is actually my left side that won't open, thus putting strain on my right side..so maybe you are on to something there!

However, I did have my right ear syringed this past summer because it was full of wax and water got trapped in it..so then again, did that leave it susceptible to T and H? who knows!

All you can do is treat the TMJ, and address the H and see what happens. 

I am in same boat, so stay in touch. Please. [smile]

Your dad is a dentist?! Awesome. How is he treating your TMJ?

I have yet to begin treatment. I found a good dentist, she's top of the league here in Ontario, however first visit is $375...money, money, money..why can't I have a condition that is covered under healthcare?!

:S


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saab1216

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Posts: 400
Reply with quote  #7 
Ontario, it is very possible that you got hyperacusis from the ear irrigation. It is a common theme here on this site.cleaning of the ear canal increases sensitivity in an otherwise ear waxed filled canal.As for me, I also ponder the thought of worsening my condition from using wax remover, peroxide and alcohol in one setting. It was my last ditch attept at ridding my annoying tinnitus spike in my left ear. No such luck with Hyperacusis though. Its expensive, annoying and not recognized by most living souls.
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ontario78

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Posts: 186
Reply with quote  #8 
I know saab, so many possibilities.....however, would not explain my symptoms that would come and go in the past, BUT maybe it help set the stage for it to set in chronically?!

Blech-who knows. I'm tired of wondering already..and it doesn't really matter (aside from TMJ)............

......the bottom line is we have it and it sucks, period.

Now on to having it GO!
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saab1216

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Posts: 400
Reply with quote  #9 
right you are Ontario. I feel as if my whole body is shutting down with this and I cant see why. No energy at all. Its as if sound fatigues me or maybe just the stress alone. Im considering the anti depressants but,I fear dependency and nasty side effects. I guess I am ready to throw the towel in soon. I need to be happy again. I think my mind matters most in getting better soon.
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ontario78

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Posts: 186
Reply with quote  #10 
For the first time in my life, I am starting AD's tonight. Personally, I regret not trying them this summer, maybe this wouldn't of happened..but again, who knows..you not believe what I have thought to of contributed to this condition beginning..lol..but you know, I guess that's what we do when something like this occurs..and having anxiety issues does not help! it's like my worst nightmare has come true..but it's all about loss of control..and no one has control really..

I think the fatigue is undoubtedly stress. I really do. I have near lost my mind a few times already. I take a sleeping pill and it only works for about 4-5 hours. At this point, my emotions and fears have completely taken over, I see no way around this..Yes, there are good natural and just as effective (apparently) "anti depressants" If you are interested I could let you know..but for me, I just want a pill and want a break from myself for awhile..lol..well here's hoping anyways!

Anyways, I was reading on another forum (TT) about remeron, and know a couple people taking it..so I figured this would be a good one to try. It doesn't seem to worsen the T..and it helps in sleep..sleep is important!

*Sigh*..now if I could just start TRT! I got the papers from Enza today..so, another step forward!

Hang in there!
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Mummy_D

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Posts: 85
Reply with quote  #11 
Just quickly coz it's late for me here in the uk - I take remeron (mirtazapine in uk) 15mg a night. Really helps with sleep and as it's not an ssri quicker uptake and fewer sides than they seem to have. Weight gain in some but I haven't gained a pound. I think this is helping with the mood. I also take buspirone for anxiety but not seen a change yet. There is no shame in medicating with this horrible illness! We are broken - we need fixing. Period!
:-)
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saab1216

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Posts: 400
Reply with quote  #12 
Amen..thanks to you both.
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Delfade

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Posts: 16
Reply with quote  #13 
Hello saab, can you tell me how you managed to be 90% better? It would really help
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saab1216

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Posts: 400
Reply with quote  #14 
Delfade, using lots of sound exposure and not fearing it. Its painful at times with little setbacks.Im aiming for 100 percent now.You just hsve to retool the brain.Its stubborn. In order to train the brain not to fear sound, you have to expose yourself to everything that is on a normal basis of day to day life.Fear and anxiety over sound causes possible relapses.Also tinnitus induced sound exposure , as in my most recent case of relapse.
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Delfade

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Posts: 16
Reply with quote  #15 
Yes I tried many times to expose my self to sounds. But if the sound was too loud, it will make my H and T worse and my sensitivity to sound will be more.
I'm sure it's not a pshycological issue and i'm so sure it's not fear.
But maybe you have a point in exposing myself to sound, I'm trying it gradually.
Loud sounds will push me steps behind.
Maybe your method will work with others.
But for me, I live in a city and with a noisy family.
Loud sounds hurts my ears.

Thank you. And please saab if you're 100% cure.
Don't forget this forum.

Wish you good luck and a healthy life. [smile]
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saab1216

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Posts: 400
Reply with quote  #16 
Delfade, If you can't expose yourself to most everything, you need to use TRT as your first approach.I was there too.I couldn't tolerate water or my own voice. Pink noise is a gentle approach that can be increased nover time until you can face normal sounds to work with.
As for me, I have a, slightvcase of hyperacusis again but I get painful headaches every day just from sounds.Its horrible either way. My tolerances are re establishing to television and fm radio again thankfully but my ears tire out a lot at end of the day.I dont know how to rid the pain.My head wants to explode right now.
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olms

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Posts: 321
Reply with quote  #17 
Joseph:

Oh, yeah, open MRI's are quieter than closed. Maybe a little bit, but let's talk to someone on the board who has been in one of those suckers.

        Lesky on this board posted only a month or two ago, under title, "MRI....."

        "With sound levels ranging from 85-130 dB I am terrified beyond words. I had an
        open MRI brain done in 2003 and it was a trainwreck and I aborted the scan
        after aprox 60%. And I was in much better shape 10 years ago."

    
     And, of course, the above was with "sound protection" which doesn't work at anywhere close to those levels with h people.

_________________________________________________________________

         OK, what else we got? Oh, OK closed MRI scan:

                       According to GE, "the typical MRI scanner generates 110 decibels of noise
                  when it's hard at work."

                  So, that doesn't work. So, what else?

_______________________________________________________________________


        Board member Ik said in recent post that GE had a new silent scan. Very interesting, except for 2 things, they don't give out any real numbers, as in did anyone ever take a sound meter reading for the new machine? No. 

          It's 76 dBs, but that's according to GE, who made the machine. So, we don't know, but it is more quiet. Except it's not near you, unless you live in Michigan. As of September of 2013, there was only one such machine in the U.S.: Michigan.

       So, that's out. Why else we got? 
______________________________________________________________________

     Like you suggested, don't take the MRI.

        I was invited to take one 15 years ago, went and heard the machine from 10 feet, big mistake. Sounded like 10 vaccum cleaners, and I ran out of there. Doctor gave me an ultra sound instead, took another ultra sound in a month or two, no growth on my kidneys, no problem, didn't need the MRI to start with.

          Doctors order MRI's like they give out Kleenex, they don't see any problem with it. Ask them how loud it is and they don't have a clue, just like you don't. Ask them how many h patients they've seen and they'll say, "What?" Ask them what your sound tolerance levels are, and they'll say, "What is that?"

         See, they were going to put you in that machine without knowing any of that. You were thinking about going into that machine without knowing any of that. Both of which are very risky.     

          Tell them ultra sound, or up your nose with a rubber hose. As you said, there's nothing wrong with you to begin with, but there will be when you finish taking that MRI. Then you'll be referred to an ear doctor who will tell you there's nothing they can do about it, but we still want you to take this battery of tests so we can make some money.

                                         Tom
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saab1216

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Posts: 400
Reply with quote  #18 
I had bad hyperacusis and had to qualify with firearms, which may be much louder than an mri...well yes. I used plugs coupled with ear muffs and had no problems. I have re qualified every year since 2008 with no setbacks .Btw, I shot a 38 special and a 12 gauge shot gun. Oh, and I had an mri without ear protection and my hyperacusis got worse.
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