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Erling

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Reply with quote  #1 

Hi,

I’m new here and I’ve yet to be diagnosed with H (neurology appointment not available until summer at earliest due to C-virus) so it may be in bad form to post here until I have had a medical consult.  Nevertheless, very similar to Goodfella032 (I have nearly the same symptoms, particularly that feeling of fullness in one ear) I’m looking to avoid making my condition worse until I can see a doctor.

My condition started about 10 days after I had a fall and cracked/bruised a few ribs (did not hit my head).  Having to sleep in a chair and then only on my “good” side for many weeks I developed a sore neck.  I’ve been taking Motrin nearly every day for over a month to deal with the pain (ribs are better, neck is still quite sore).

While I’m a pretty chilled out person (not prone to stress or hypertension), my body feels extremely stressed out as my upper body seemed to tighten up after my fall and has remained that way.

I’m fortunate right now that the only things that bother me hearing wise are my computer keyboard when typing, and the clanging of dishes and silverware (I wear a tight wool hat that markedly improves that when emptying the dishwasher). 

My questions are…

1.  Have any of you had the experience of Motrin or other NSAID drugs exacerbating the H symptoms?

2.  Is physical trauma known to be a possible trigger for the onset of H symptoms even when no head impact was involved?

3.  Is wearing a wool hat a good idea to help alleviate the annoyance of dishes clanging (sensation isn’t yet pain exactly, but its right up to the pain “line” without crossing it) or could that be seen as a “crutch” that I should avoid becoming dependent on.  In other words, might it be better for me to tough it out to try to get my brain to "snap out of it" so to speak?

Thanks in advance… I appreciate those of you who developed and contribute to this message board.

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Cathu

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Posts: 52
Reply with quote  #2 
Hi Erling
How are you?   I'm sorry  you aren't  well.  It sounds  like you have been through the mills.
Glad your  ribs are better...  they usually take weeks  and week.
How  did you fall? what were you doing?  It sounded very traumatic for you.  Was there lots of noise when you fell?
Mine started December 2018  when I had my ears Micro suctions.  Instant  pain, headache, then screaming 24/7 Tinnitus ,  which I measure  to be 80 dB   and horrible Hyperausis.
m I am with you with the Hyperacusis   crockery cutlery stacking dishwashing  is AWFUL..ANd then  there s Vacuuming.... not to mention Lawnmowing (which I haven't been able  to do..)
My adiologist tells me not to wear earplugs too much. I had RE SOUND Ear Defenders made.  and they are great when vacuuming, or if I go into town. Although it s very dangerous, because they block out 90%   of sound  , but I can;t stand any sound  really.  I like birds though. I live in a very quiet area,  so there  are lots of birds.
And ofcourse all noise is SUPer loud, but  I have great difficulty hearing and understanding people.
 I have hearing aids, but it just makes  the noises EXTREMELY LOUD  and horrible. 
I can;t really say too much about medication
. I haven;t had one that  turns  the sound down.
GP  begrudging;y let me see a counsellor and Neurologist.
I had my 5 different ENT appointment right a Ground ZERO at Sydney s  Est Mead Hospital,March 6, which was very scary  to go there at that time.
Nothing they can do for Tinnitus.
Do you have it too?
Its  very hard to **Snap out of Hyperacusis**  and easy to say.    
They don;t understand how painful it is.
 A wool hat would be nice and comforting.
I like wearing the earplugs for noisy jobs in the house, and do them as quick as I can, and only when   I have too.
I use  to soft foam earplugs  if  I have to do a quick wash up.
 I used to love music and sounds. Now it s horrible. 
Has music and sounds changed for you ?
Maybe a lovely relaxing  massage for you?  I have a mat with massagers. and also one you put on  the lounge chair one, which is quite nice.
Maybe one those fancy arm chair massagers might be relaxing.
Perhaps and Chiropractor after  you get  cleared by you Doctor to do something like that.
 How I wish I had never for to that ENT in December 2018. would give my right arm.
I walk 2 x 10 km a day  to try and get away from the sound.
Have you got any tips   that helps you at all?
Take care there
CATH




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Margy

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Posts: 193
Reply with quote  #3 
Hello, Erling,

I also had hyperacusis stemming from prolonged neck difficulties and discomfort over a length of time (a year or more) following repeated oral surgeries.

My neck felt bad for a year or so, and slowly during that time I developed severe hyperacusis. During that time I had minor hyperacusis and only had trouble with a few noises. But over time, with more noise outdoors (much increased population and traffic near my home) the hyperacusis got worse.

I have read everything I can about this and have lived with it for six years. My advice to you is:

You are still early to it, so you can stop its progression by eliminating the noises that bother you and seeking relaxation as much as possible while keeping normal sounds around as usual.

For example, learning how to put dishes away quietly (very possible. I do it all the time, but I don’t do it carelessly, but quietly. ) this is easy to eliminate.

Also, because of your accident, do everything you can to relax your muscles and get your body back to normal comfort. In my experience, this is really an important thing. Get massage, heat on tight muscles, seek out physical therapy if you want, just get the rest of your body comfortable. I put heat on my neck and drink a glass of wine.



Also, get a very quiet keyboard, really easy. Don’t tell your brain to “tough it out,” because that’s what it already has been doing. Just a few little accommodations seems like a very reasonable thing. Most likely, it will get better and you will find that dishes no longer bother you.

I want to emphasize, because of my experience with tightness of muscles and disruption of muscle balance, that it takes a while for everything to relax and resume its usual balance, so work on relaxing and stretching to get things back to normal. This will help with everything.
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goodfella032

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Posts: 19
Reply with quote  #4 
I take ibuprofen now and again for the fullness feeling in my ear. It doesn't seem to make H symptoms worse but I'm not taking alot of it. I also don't think motrin is a known medication that harms ears, but everyone is different. As for H stemming from a non head related injury, I think it's definitely plausible. The muscles in the neck and jaw being injured or sore can lead to ear symptoms, I haven't read anything about H being caused by a non head injury but I think there is definitely a physical aspect of H that I have been trying to manage like jaw pain, neck stiffness, etc. I would start working on relieving the symptoms you're having with your neck and upper body. Take it slow and do some physical therapy at home until you can get to a professional. As for the covering of the ears doing things that you know will make the H worse...most experts I have read and talked to say to avoid using ear plugs if at all possible. I've read that many people start to develop a fear of sounds in addition to their H which feeds into the already physical response to certain sounds. Once our brains realize that certain sounds are painful or discomforting you fear that sound and it feeds into the already existing physical symptoms. It's a viscous cycle for sure. Once our brains are engaged in wondering what every little sound is going to feel like it can get out of control real quick. I'm a fresh case but even in the short time I've been dealing with this I can definitely see that there is a mental side to dealing with my situation.

Thanks for sharing your story and let us know how things progress
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DanMalcore

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Dan
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Reply with quote  #5 
Quote:

My questions are…

1.  Have any of you had the experience of Motrin or other NSAID drugs exacerbating the H symptoms?

2.  Is physical trauma known to be a possible trigger for the onset of H symptoms even when no head impact was involved?

3.  Is wearing a wool hat a good idea to help alleviate the annoyance of dishes clanging (sensation isn’t yet pain exactly, but its right up to the pain “line” without crossing it) or could that be seen as a “crutch” that I should avoid becoming dependent on.  In other words, might it be better for me to tough it out to try to get my brain to "snap out of it" so to speak?



1. Having run this network for 29 years and hearing from people all over the world I have not heard of any results of decreased sound tolerance (DST) from Motrin or NSAID.

2. It is unlikely that your fall, particularly in view of the fact that there was no impact to your head, resulted in the sound sensitivities you are experiencing.

3. It would be better for you to tough it out.  Dishes clanging can be an irritant even for people who have normal hearing.  This fall and neck stiffness has been traumatic and stressful for you.  Neck stiffness is common under stress.  However, I want to be clear, I am in no way discounting your concerns or symptoms.  I think it is highly likely that as your body heals from the injury your ears will settle down.  If they don't, make an appointment with a qualified clinician and have a Loudness Discomfort Level test.  The message board offers a list of qualified clinicians.

[wave]Dan 


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