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catalma

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Posts: 6
Reply with quote  #1 
Hi everyone,
I woke up December 9, 2013 to my right ear making a swishing noise like an ultrasound or washing machine and the left ear making an owl hooting noise whenever I would stand up or turn my head. Now it seems my brain liked those noises as they stuck around and have changed into gregorian chants and white noise, while the left ear still swishes and I can hear my blood moving around if I stand up, bend down, or change pillow positions.
Well being ignorant to all of these ear problems, I freaked out and went to an ENT off the bat who told me it was possible ETD and to wait it out. My hearing test was good but I was still worried. Next came the MRI a few weeks later and I was unable to finish it due to the loudness factor. I was in about 15 minutes the first time. Another ENT heard my symptoms and started me on Prednisone which I could not take after the first day. Next came the CT scan which was normal. Sometime between the first MRI and CT scan I developed this popping sensation in the left ear(owl hooting ear) and it is still doing this to every little noise including grabbing my keys, or shuffling paper. It sounds like a broken speaker and the right ear now has a mild version of it. I can also feel my ear vibrate after touching it, although it is always a delayed reaction. Seems like nerve damage?

Unfortunately,I went back for the full MRI with contrast in February and I feel that is when I really damaged something. I have so much regret and I feel so foolish. I feel lost and hopeless and have no idea if my symptoms would be made worse by TRT or if I even have hyperacusis. Also, when people talk to and suddenly elevate their voice or emphasize a word, my ear reacts and feels like it is wounded and dancing around. Any help would be amazing at this point. I am currently seeing a neurotologist but they have no TRT. I do know places that do. I have to also add that every time I swallow it sounds so loud in my ears, as well as eating and drinking. I also trigger the left ear problems by talking. I also hear my eardrums pop out randomly and my ears feel full from noises, eating, etc. Thank you anyone.
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olms

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Reply with quote  #2 
catalma:

Were you around noise? Taking a new medicine? One suggestion might be to stop taking an MRI every time a doctor, none of whom know about noise and hyperacusis, suggests another one.

(see the topics on MRI now on this page and page two of this website, as in, look up your sound tolerance level on front pages of this website, then note the volume (over 100 decibels) of the MRI, and you're going to see before going into the machine that it's going to be too loud for you. You'll know this before the doctor knows this, because doctors don't know hyperacusis, but you do because you may have it.)

There are some things you can do. So how did you get the ear problem?

                             Tom   
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catalma

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Reply with quote  #3 
Thanks for your reply and trust me I will never do one again. I had people pressuring me to do the MRI w/contrast because of the pulsatile tinnitus, which is the reason I went back in. I regretted it immediately. I really don't know why they would suggest that knowing I had just developed tinnitus in December. To answer your question, I had been taking stomach ulcer medications last fall, but not the week I developed tinnitus. I did take an Aleve the night before waking up to the T. And that's what I remember about December. Also, two weeks prior to the tinnitus (end of Nov) I was struck in the back of the head by the end of a metal clasp that closes off a grocery store checkstand. None of the ENTs thought that was relevant as it didn't show anything on the scans for them to see. I just wish I at least knew if things are worsening, stable, or getting better slowly. I keep expecting to wake up to hearing loss as these hair cells finally die of trauma or something. I just know that the possible "hyperacusis" or auditory damage has really taken the lead as the most bothersome now.
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olms

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Reply with quote  #4 
catalma:

1. "I did take an Aleve the night before waking up to the T."

2. "Also, two weeks prior to the tinnitus (end of Nov) I was struck in the back of the head by the end of a metal clasp that closes off a grocery store checkstand."

I was told medicine and noise can cause these ear problems. 

I would think a blow to the head could be added to that.

Just out of curiosity, how did you get "struck in the back of the head by the end of a metal clasp that closes off a grocery store checkstand"?

You might have a law suit. You might ought to be checking into this before things go cold. You might ought to get a good lawyer, male or female, as you choose. You might ought to check around with people and ask, "Who's a good lawyer?"

Maybe a lawyer (male or female) you know and trust, or who someone else knows and trust, could recommend a good law suit lawyer.

You may need to take some tests from ear doctors. Uh, oh. If you do, be careful. Tell them you don't want any loud beeps in your ear to see how well you hear, or what level your tennitus is, if they can test that.   

I'm sorry to hear of this. You sound like you have a good attitude and that you're going to make it. You're still walking around and you have a good attitude.

What is your sound tolerance level? Look on the first page of this website "decibel chart" or something, ,where the decibels of various things are charted. Look to see where you start having trouble tolerating certain levels of sound, and that will be your sound tolerance level.

That way you'll be able to tell about that situation. You can compare that to the way you were tolerating sound before the accident. Get people who know how well you tolerated sound before the problem, with the way you tolerate it now based on the sound chart just mentioned.

Get these people's names who knew your sound tolerance levels so you can give them to your lawyer should he or she ask for them.

I think you need to stay positive, and I think you are. Think of what you do have. I put my ears under a moist heating pad and it temporarily helps with my sound tolerance levels, again for an hour or two, and it boosts my spirits, because I know I'm doing something besides worrying and complaining. 

A heating pad on my ears expands the blood vessels, and brings more oxygen and nutrients to the injured area, in this case, the ears. I have an "extended heating pad" of 22 inches in length, and it wraps around both of my ears, one on the pillow and the other end around the back of my head to the top ear.

I put a partial phone type book or smaller size brouchure, on the top ear to help hold it down.  

I try to stay under the heating pad for from 15 to 30 minutes, and even longer helps me more. When I'm having a crisis, loud sound, etc., I really take comfort from the heating pad, for it lets me know I'm doing more than just worrying and complaining. I tell myself, "If you're this bad off, get under the heating pad," and I do.

It helps heal my psyche as well.

A good time to get under the heating pad is before I get out of bed in the a.m. I moisten the pad, for moist heat helps me better than dry, squeeze out the excess water, cut the heating pad no high, and just lay back on the bed, where I'd be anyway while I try to wake up. So that's 30 minutes or more right there.

At night, same thing. Under the heating pad for 30 minutes. I'm not doing a lot of work there, I'm just laying there in bed where I'd be anyway.

During the day, I put sliced hot pickles (Wickles is what I use) on my breakfast and lunch, and the heat from the hot pickles does the same thing as the heating pad: expands the blood vessels to the ears. I don't put too many hot pickles on my food for it causes me stomach problems.

I can also do another heating pad session or two at noon or thereabouts.

What I'm doing there is trying to get through the day in 3-4 hour increments. And if I can get through one day, then maybe I can get through 364 more and I will have made a year.

What also helps is to try to help others, through volunteer work and such. For by helping others, I feel like I reverse the negative feelings about my situation into a positive feeling by helping others. Like I'm trying to do right now.

                        Tom
        




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Jewel

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Posts: 13
Reply with quote  #5 
Hi Catalma

I'm no expert on this subject having only learnt of hyperacusis and the network in the last month but I too did the rounds of ENTs and audiologists and had an MRI only to find my intolerance to noise getting worse.  Your symptoms are quite different to my own and obviously you need to rule out any physical reasons for what has been happening with your ears, but there is also a good chance that your ears are fine and that you are suffering from hyperacusis.

The best two pieces of advice I found on this network were:
1. Read the chapter by Pawel and Margaret Jastreboff  that is referenced in the intro pages of this website (they provide the link to it); and
2. Find and visit a hyperacusis specialist.

I had to take a 4 hour interstate flight to find someone in Australia but boy it was worth it.  I feel 500% better now that I understand what has happened to me and what to do about it.

I have made references to what I discovered in another message.

If you have hyperacusis its manageable but you need to speak to someone who understands.  The anxiety is almost worse than the symptoms!
 




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Jewel
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catalma

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Posts: 6
Reply with quote  #6 
Thank you for your reply. I don't think I can get on a plane like you but I do know of some local TRT. Glad you found your help. I have my second appointment with a neurotologist on Thursday. She is going to check my Eustachian Tubes out by way of my nose. I don't mind that at all, but I deeply regret all the ear pressure tests, MRIs and CT scan. I developed many eye floaters too after the CT scan. I wonder if the radiation of the CT scan affected my ears from healing as well. I want to treat my anxiety first off like you said and then look into TRT or Hyperacusis Therapy. I do worry that it may be too soon to throw sounds on the wounds-so to speak. What do you think?



To Tom:

The metal clasp was broken (I wasn't aware) and I lifted it to walk under and it snapped back and hit me in the center back of the head. I was working at the store assisting adults with disabilites whom we find jobs for. Basically I was their job coach and although I did not work for the grocery store I worked there during the shifts of my clients. I will definitely try the heat therapy. It sounds very soothing. Even the steam treatments I have done have helped me.
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Jewel

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Posts: 13
Reply with quote  #7 
I think that the most effective way to deal with your anxiety is to find out what's going on with your ears - whether it hyperacusis or something else.  If its the former then noise enrichment therapy is the way to go and the sooner the better.  If you find out its hyperacusis and not somthing else then you will believe that the sound therapy is the best thing because you'll come from a point of understanding, you will also understand its not doing further harm and will go for it. Find a specialist. If they are too far away for you to travel to maybe they will talk with you by phone, Skype or email?? Its worth asking. And read that chapter.
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Jewel
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catalma

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Posts: 6
Reply with quote  #8 
I will do that. I am on the mobile version of this site and I am still having a hard time finding stuff including the loudness chart and all of that. Do I just search it, I wonder? Thanks again Jewel.
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Jewel

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Reply with quote  #9 
Go into the Message to Newcomers in the New Messages section of the Forums and the link to that chapter is given there (its the second link listed).
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Jewel
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ontario78

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Posts: 186
Reply with quote  #10 
Quote:
I have to also add that every time I swallow it sounds so loud in my ears, as well as eating and drinking. I also trigger the left ear problems by talking. I also hear my eardrums pop out randomly and my ears feel full from noises, eating, etc. Thank you anyone.


I have all these symptoms as well, including your other ones. I am 3 mths in basically. I have seen ENT now, and Audiologist and had my ldls tested. I am waiting to see TRT as well. For me, it will be mths and mths.

Anxiety really makes symptoms worse, do your best to remain calm and find ways to relax. If it gets too bad, you could try a medication. That seems to help many people. Of course what you first need are answers, so getting to an experienced Audiologist would be the best place for you. However, make sure they administer an LDL test, before any other test. 

I should also mention, I actually haven't even thought about how loud eating is lately, so I am suspecting this symptom has gone away. My ears do all kinds of weird things..look up TTS and hyperacusis or tinnitus, you gain some insight of that is going on with your ears.

The fullness usually subsides after time, maybe a few weeks, that seems to be standard. 

I know it's alot to take in, very overwhelming, I am still asking questions 3 mths in. I live in Canada so everything medically is slooooow, and TRT won't see me, until I have all these ENT tests done..

Try not to overprotect your ears, don`t resort to wearing earplugs ALL THE TIME..it will make your ears more sensitive, HOWEVER, do protect yourself from loud noises, until you see an knowledgeable clinician.

Good Luck!
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catalma

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Posts: 6
Reply with quote  #11 
Thanks so much. The loudness in my ears is very disturbing so I will be extremely happy if that goes away when eating, drinking, and swallowing. So you have the popping and broken speaker sensation or just TTS? I also have a really ugly pulsing sensation in the other ear along with little screaming grinding chant-like noises in the ear with the noise distortion. I wonder if why I have the distortion in that ear is because the tinnitus is so bad or vice-versa. My neurotologist did mention TTS so I tried muscle relaxers and checked my palate and it does not coincide or twitch. The pills did not help so I am leaning more toward some type of acoustic trauma, although the audiologists I have seen don't address this noise distortion or possible hyperacusis at all. My current neurotologist is going to do a re-examination tomorrow and maybe she will finally see something. Fingers crossed for any help. I have a medical insurance called Kaiser and they pretty much treat you like cattle. Appointments are cut very short and they don't care about tinnitus or hyperacusis other than giving you a handout on ignoring it. If only it were that simple. It looks like I will be going to University of San Francisco and paying out of pocket for their audiology testing and TRT. I called them and they are booked up until July. Shows just how prevalent these issues are. Keep me updated on your progress.
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Melly1313

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Posts: 8
Reply with quote  #12 
i can hear myself eat, drink, when i swallow is very loud, moving my eyes. I suspect a fungal infection behind it. I speak several languages, started to read. In East of Europe every pacient with such symptoms, like tinnitus or autophony, they check for bacterial and fungal infection. Through tympanocentesis they analyze the fluid, in case bacteria with antibiogramm, to find the right antibiotic, in case fungal infection, they start special suction for cleaning, drying ear, special drops for fungal infection also treatment for systemic fungus. 

Massive fungus infection, like aspergillus or candida can cause of such symptoms. And with right diagnose and treatment , the symptoms vanish.


I went to 4 californian ENT's, none had the idea to perform such a test. 

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