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goodfella032

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Reply with quote  #1 
Hi everyone. I'm new to this site and was looking for some advice from those who've been dealing with this condition that I'm 99% sure that I have. I spent some time in a loud night club on 3/8/20 and left with tinnitus in my ears. As the following week progressed I started to develop sensitivity and discomfort for loud sounds and also normal sounds like dishes clanking, car engines, my refrigerator compressor, etc. Sometimes even talking with someone provides discomfort. I also developed a fullness in my ear that is more prominent in my left ear most times which I'm thinking is the Tempor Tympani (sp) muscle that is associated with this condition as well. As I write this today the tinnitus is still there and seems to get worse when exposed to many sounds for long periods, sometimes just talking to my wife or kids. The fullness also seems to follow into my right ear sometimes if that ear is feeling overworked

Unfortunately I picked a bad time for this to happen as I had an appointment with my ENT on 3/19 that was canceled due to the pandemic. They rescheduled my appointment for 6/1 that I'm hoping won't be canceled but we'll see.

Through my research on this condition I am wondering what I can do in the meantime to not exacerbate my condition and also what I can do to help start my recovery process, I've read alot about the pink noise generators and wanted to get some informed opinions about whether I should start that process before my appointment, I hate to just sit here and wait until 6/1 to get started on a potential recovery. I am in Michigan and we just had our lockdown extended until 4/30. I figure I'm in the house already so I should get going on something,

I'm 45 years old and married with 4 children and I need to do my best to get this recovery period started for both mine and their sake. I also own my own small home improvement business and this is beginning to affect that too as I have to talk on the phone regularly and deal with what are now annoying, stressful sounds. The stress and anxiety that this has caused has no doubt made the condition worse but I'm working on taking this one day at a time which is easier said then done. I've noticed I'm tensing my shoulder and neck muscles more and also clenching my teeth which is not helping either,

Any advice anyone can give as to my first steps given my situation would be greatly appreciated. Thank you
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Steve2017

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Reply with quote  #2 
You'll get some good advice on here - in the meantime de stress, plenty of relaxing breathing, try not to worry, there is a decent chance this will pass if ears weren't damaged. Its probably the fast lane of life you've been in recently, adrenaline through the roof... Plenty of chill out now and lose any fear, it doesn't help... There is relaxation techniques on my website here, regards Steve.

http://www.strengthinminds.co.uk/relaxation.html 

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s simpson
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goodfella032

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Reply with quote  #3 
Thank you Steve for your input and for the link I appreciate it! I will definitely try those techniques.

As far as ear damage, I really don't feel like my hearing is any different besides the tinnitus which is a hissing and more of an annoyance and the fullness which kinda makes hearing muffled sometimes but that comes and goes depending on my exposure to sound.

I had a hearing test in 2015 which showed minor hearing loss in high frequencies on my left ear only but I never really noticed it. Obviously a new hearing test will see if anything has gotten worse since then,

Thank you again for your response!
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Steve2017

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Reply with quote  #4 
You're welcome, just take it easy in the slow lane for a while if that's possible with a family at home - but make some time for 'you' as in take a drink to another room and say to all - this is my time this next half an hour, several times a day if you want to - then practice meditation, its not complicated, just deep relaxation. health is important customers can wait, ive been self employed all my life so I know wages have to come in, but make them wait, just spend a few days in deep relaxation, then review it. Good luck - others on here might step in with advice... 
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s simpson
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goodfella032

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Reply with quote  #5 
Thank you Steve I appreciate your insight. You are right I do need to relax even if it is with craziness in the house and in society. Take care and I'll take any luck I can get!
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goodfella032

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Reply with quote  #6 
One more thing I'd like to add is that this aural fullness I feel mostly in my left ear and sometimes in my right feels like a clogged eustacian tube sensation. When it's at its worst it feels like I just got off a plane or I just drove through the mountains. When I swallow I feel that popping sensation but no relief. It also usually coincides with my sinuses on that side feeling full and that side of my nose being plugged as well. Very strange,
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Steve2017

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Reply with quote  #7 
You might find when you come out of the fast lane and relax, the fullness might go... Others here know more about fullness of the ear I never had that problem - just relax now enjoy each day with everything on hold...
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s simpson
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JW

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Reply with quote  #8 

Quote:
Originally Posted by goodfella032
Hi everyone. I'm new to this site and was looking for some advice from those who've been dealing with this condition that I'm 99% sure that I have. I spent some time in a loud night club on 3/8/20 and left with tinnitus in my ears. As the following week progressed I started to develop sensitivity and discomfort for loud sounds and also normal sounds like dishes clanking, car engines, my refrigerator compressor, etc. Sometimes even talking with someone provides discomfort. I also developed a fullness in my ear that is more prominent in my left ear most times which I'm thinking is the Tempor Tympani (sp) muscle that is associated with this condition as well. As I write this today the tinnitus is still there and seems to get worse when exposed to many sounds for long periods, sometimes just talking to my wife or kids. The fullness also seems to follow into my right ear sometimes if that ear is feeling overworked

Unfortunately I picked a bad time for this to happen as I had an appointment with my ENT on 3/19 that was canceled due to the pandemic. They rescheduled my appointment for 6/1 that I'm hoping won't be canceled but we'll see.

Through my research on this condition I am wondering what I can do in the meantime to not exacerbate my condition and also what I can do to help start my recovery process, I've read alot about the pink noise generators and wanted to get some informed opinions about whether I should start that process before my appointment, I hate to just sit here and wait until 6/1 to get started on a potential recovery. I am in Michigan and we just had our lockdown extended until 4/30. I figure I'm in the house already so I should get going on something,

I'm 45 years old and married with 4 children and I need to do my best to get this recovery period started for both mine and their sake. I also own my own small home improvement business and this is beginning to affect that too as I have to talk on the phone regularly and deal with what are now annoying, stressful sounds. The stress and anxiety that this has caused has no doubt made the condition worse but I'm working on taking this one day at a time which is easier said then done. I've noticed I'm tensing my shoulder and neck muscles more and also clenching my teeth which is not helping either,

Any advice anyone can give as to my first steps given my situation would be greatly appreciated. Thank you

 

I am in the same situation and welcome any advice from those with experience. please. If we can avoid loud noise can we wait until out of quarantine or does every passing day/week count towards deterioration? Any do's or don'ts in the meantime?

The internet makes this whole thing sound so awful. Very intimidating.

Dan/Rob thank you for putting this together.

 


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JW
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Steve2017

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Reply with quote  #9 
Thanks for your kind reply JW - and welcome here... We need to raise the 'human energy vibrations' for better health with all. Stress increases T and H so I just want to show all here a new page I added yesterday to my website, because if we can sleep better then our body is more able to cope...

I was using the sleep info for my talks and was a delay adding it to my website, on now though...

More positive messages please everyone, if anyone's got anything to say, with all we are having to deal with right now.

http://www.strengthinminds.co.uk/better-sleep.html

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s simpson
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Steve2017

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Reply with quote  #10 

I just would like to share with you all here - my journey to here now. Difficult journey all the way - difficulties for me really started in 2010 - overdoing it and stress levels through the roof, driving up a motorway one morning, just getting ready to go over a big motorway bridge and nearly fainted - I got over it 'God' only knows how, but that started several years of panic attacks when driving. Got control of that over several years, then the T and H kicking in, nearly killed me, I was for the off, even witnessed my spirit leaving my body - so anyone thinking we don't have a spirit think again...

Then I felt a hand on my forehead and recovered 'so fast' - not my time, people to help... Just have to say here no ending it as in cutting life short, not the way 'cost for that', we find a way to see it through - look for light, don't give up looking.

The reason for telling you this is ive seen some dark times in my recent life, 66 now so ive been there - the one good thing about darkness in your life, light appears if 'you look' for it - research 'the power of your mind' - keep screen brightness and time spent online down to keep T lower, eyes will adjust.

I want to help people here more than another forum i'm on at the moment because especially new people here looking on with new T and H problems have no one to turn to, because the expensive professionals are not available at the moment with all thats going on. But i'm here 'at no cost' a 'self healing' specialist with all ive gone through and learned with my 3 years research into the power of your mind and self healing.

All I ask is something in return, occasional thank you this section on the website helped and why! So I in return I can learn whats helping people... So often in this materialistic world people take and don't give back - thats about to change with all thats going on in our world right now...

So, no throwing at me I can't take anymore can't cope going to end it, Samaritans offer good help with that - any problems or thoughts on it all here though, please share and lets lift the energy between us on here, as in helping each other...

The last two people on here have lifted my heart, made me realise I and other members can help people here, time will tell if any interest - we shall see what transpires...

It would be nice if this website gave an hour editing time, colouring is brilliant though with the gentle on the eyes background colour.

So any new people out there looking on, sign up get involved...


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s simpson
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goodfella032

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Reply with quote  #11 
Thank you Steve for sharing your story and link to the new portion of your website.

I agree our minds can help guide us through hard times and also make hard times worse if we let it.

Unfortunately with my situation as there was a direct cause for my T and subsequent H (loud noise), I also need a game plan for the physical side of this issue as well as the mental which you have offered.

I am grateful for anyone in life that reaches out to help those in need while expecting not much in return. We are all in tough situations right now in the world, but life still must go on even with existing or new ailments we face.
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Steve2017

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Reply with quote  #12 
Such a nice reply, thank you... With the physical side research 'raising energy vibrations' - some of this is on the website, but so much more if you look online... nice and easy now enjoy researching, important that enjoying it - increases human vibrations - yes all energy vibrates, and you and I are 100% energy - and the chakras you might see mentioned on websites 'exist' 7 of them - energy centres, 'important' energy centres for good health...

Others on here will help on the technical side as in T and H online products to assist controlling issues, but put the effort in research, and less TV and facebook etc, and you'll see rewards as you get stronger mentally/physically - be strong in mind and body will improve so much.

And rest when your body is telling you to rest - as in taking your mind away from emails etc, proper rest. Jigsaw puzzles and reading books/magazines are good - not violent/aggressive films or TV news, read a book a nice one, positive energy, give your mind a rest from any aggression while you heal.

And remember to be 'in the moment' to appreciate little things that make you smile, this is so important, even simple things, noticing wildlife or flowers, yes change from the mad materialistic world we live in - but follow these suggestions, and just watch improvements in your strength will come, then stronger to deal with anything else...

You'll be amazed at what can be fixed using self healing energy... take care... We see if others sign up and join us online here on this fine forum...

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s simpson
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SalFaz

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Reply with quote  #13 
Your symptoms sound identical to mine when it started in Oct 2019. I did go to an ENT, audiologist, did CBT etc. I have a 6 year old and spent time with him and his activities and tried to use as little ear protection as possible per the audiologist. I also constantly listened to soothing sounds at a low volume like ocean sounds. I did take ear breaks as needed to wear ear muffs or go into a quiet room. By late Dec 2019, my hyperacusis was mostly gone. Sadly it came back early Feb 2020 after going to an arcade with only intermittent ear protection and now it’s worse than ever.

So my tips would be:

1. Try to expose yourself to some level of sound everyday
2. Don’t be afraid to pop in plugs or use ear muffs as needed when your ears have just had too much.
3. Listen to a soothing sound on your phone etc on a low volume 24/7.
4. Don’t rush back into loud things like an arcade! If you do, wear ear protection

Since I’ve relapsed, I’ve come to a lower sound location for a few weeks to try to rest / rehab my ears. I am using ear protection when I feel like I need it. Like I will do 10 min in a car with no protection but when my ears have had enough, I’ll put in protection. Or I’ll stand by the door to hear the bath run to my comfort level (roughly 64db) To flex my are and then wear ear muffs as I get closer. Same with walking outside. If a siren etc passes, I def plug my ears with my fingers. I’m currently avoiding loud places, which is easy due to CV.

Good luck. This journey is for the strong.
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goodfella032

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Reply with quote  #14 
Thank you SalFaz for sharing your story and for your advice I greatly appreciate it.

Did you also have tinnitus with your H? If so, did that go away too when your H went away?
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SalFaz

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Reply with quote  #15 
I've had tinnitus for decades but have mostly habituated. When my H disappeared, I was not aware of my tinnitus at all. At this point, it's back and similar to yours - seems to flare up when I've had too much exposure to sound but it always goes back to baseline (like it was higher yesterday evening but now back to baseline).
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goodfella032

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Reply with quote  #16 
Thanks for sharing. I had tinnitus from a non noise related event (medication) in 2015 that took me almost a year to habituate. Strangely though my tinnitus now is the exact same tone even though this time it was noise induced. The T I can deal with if I have to its the H that is so frustrating.
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SalFaz

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Reply with quote  #17 
goodgella032 - what have you decided to do for treatment?
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goodfella032

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Reply with quote  #18 
Hi SalFaz

I’ve been trying to relax over the last couple of weeks now that I’ve got my mind wrapped around what I’m dealing with. I reached out to a prominent audiologist and expert in the field and got some good insight on the condition.

I haven't started any sound therapy as of yet as I'm still fearful that I may make the issue worse. I've been resting my ears when they feel fatigued and getting to a quiet spot along with focusing on lowering my stress and anxiety. I still think that ultimately I will need some sound therapy so now I'm looking for someone who specializes in hyperacusis treatment near me. Unfortunately as of right now I haven't found anyone close.

How are you doing?



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SalFaz

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Reply with quote  #19 
Hi there,

It’s evident to me that I have to start sound therapy. My past 30 days in relative quiet that consist mostly of being in a bedroom working and taking 3 hrs of low volume zoom calls, having a quiet family dinner, and going for a nighttime walk have not moved me forward at all - in fact, probably the opposite. I’m thinking deep commitment to pink noise might be my only way out. I’ve been doing short durations of pink noise on my computer daily, but haven’t committed to the full program.

Mind sharing what the audiologist told you?
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SalFaz

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Reply with quote  #20 
by the way - I'm speaking to the head of audiology at Stanford tomorrow and can keep you posted 😉
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goodfella032

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Reply with quote  #21 
Hi SalFaz

Shoot me an email if you'd like at zed03222@gmail.com and we can compare notes in the future.

I've edited my prior response asking to share what the audiologist told me as what she offered me was advice, and that is technically on topic.

First and foremost she relayed how much that stress can exacerbate H. She advised me to practice mindfulness and offered a suggestion of a website that could help, Look up Dr. Jennifer Gans for the site. She also explained that she believes calming the central nervous system down is important as H is typically from an increased gain in the brains auditory system. As for my aural fullness, she recommended targeting relief on the jaw and following some tmj protocols and TTTS protocols to help relax and heal the structures around the ear. As for resting the ears, she recommended to try not to avoid sound and stay engaged with the world, but when ears are feeling fatigued to step away and give them the rest they are requiring. She also offered a link to a clinic in my region that could help. I found that she offered some good first steps and put alot into perspective.

Obviously each person is different and there is no silver bullet for this condition. I think in my case dealing with the anxiety and stress will be a huge factor in how this turns out. The sound therapy is the next step I am weighing at this point.

Keep in touch with your discussions with the audiologist if you feel like sharing.

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Margy

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Reply with quote  #22 
As for me, I’ve had it for six years, and I’m still interested to hear what a Stanford doctor has to say.

Keep us posted.
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SalFaz

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Reply with quote  #23 
Margy, will do. Have you tried TRT or pink noise? What caused yours?
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SalFaz

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Reply with quote  #24 
Head of Stanford audiology made it sound so simple - just keep doing "interval" training with sound and don't hide from it. For instance, 10 min with my son, then take a break in another room. Do not wear plugs or muffs. Just says gradually keep re-introducing sound. Says my ear fullness /tightness etc. is just because my ears are working harder than normal. 

Says I should def get a audiogram. Did not think I need an LDL test. He said sound expousre doesn't matter if it's pink noise or just any noise that I like. 
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goodfella032

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Reply with quote  #25 
Thanks for sharing SalFaz

So based on your experts opinion you don't need a continuous stimulation through sound therapy like many on this site have mentioned? As in 6-8 hours straight each day of sound therapy like pink noise or similar. I guess the audiologist I spoke with basically said the same thing....don't hide from sound, rest ears when they feel fatigued.

As for the aural fullness, I have been waking up the last couple weeks or so with the fullness in my left ear right out of bed. I guess this suggests that ear hasn't had sufficient time to recover overnight.

Based on your audiologists opinion I definitely don't take enough breaks. Since there is really no normal since this started its hard to know where the line is between enough and too much

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SalFaz

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Reply with quote  #26 
Same for me - I often wake up with itchiness deep inside. But honestly I'm not doing much soundwise each day so I just try to ignore it. 

So no, he did not recommend pink noise or TRT. But I still think I might do that b/c the gentle exposure he suggests is what I have been doing and I'm not necessarily making gains.
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goodfella032

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Reply with quote  #27 
Yeah I think that interval method can work but it could take a long time.

Perhaps as others have suggested that have succeeded sound therapy for a dedicated time each day is the next step. I think I'm going to try the over the ear method to start. If this can speed up the recovery than I'm all for it. Keep in touch
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Curry

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Reply with quote  #28 
After reading your topic and reading the experts you spoke with, the audiologists recommend not to use pink noise and to just live our life normally until we feel that our ears may be in pain and stay away from any sounds until we feel it's safe again to go out and listen normally? Am I correct?
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goodfella032

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Reply with quote  #29 
To a certain extent yes. I think with my case because this is still a new issue, so that's why the recommendation to take it slow at first. Don't avoid sounds but don't overdue it when you you are engaged in the world. For others depending on what caused their H or how long they've been dealing with it I think that would play a part in the steps to take to recovery,
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Curry

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Reply with quote  #30 
I've had this for about a year, and from what I can say, I've had ups and downs with it. I've only done Pink Noise for about a couple weeks and I stopped using it. Then ever since I've been only listening to natural environment sounds exactly like what the Stanford audiologist said.

Last night, after I came home from my work, I had a setback and I really thought my ears were going to act crazy, but right now it's resting, so I hope they'll be okay.

With this issue, it's really crazy. I actually didn't know what was going on at that time and I was scared for my life. There are some things that I can't bear still, but we'll get through it.
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goodfella032

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Reply with quote  #31 
Thanks for sharing Curry.

May I ask what caused your H or how it started?
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Curry

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Reply with quote  #32 
Don't know. It just randomly happened...
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goodfella032

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Reply with quote  #33 
thanks for sharing...

This is definitely a strange condition in that different causes lead to the same types of symptoms.

It's hard to stay positive but I really think that there is a related mental aspect to all of this and staying positive is key to progress.

Keep in touch
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SalFaz

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Reply with quote  #34 
I do agree mindset is critical. I did an experiment yesterday - took a low dose cannabis gummy and it ended up affecting more than I expected. That said, when I went outside, cars weren't too loud, birds didn't bother me, the shower was bearable, crinkling bags were ok etc. I mean I could tell things were still a bit loud, but they didn't BUG me or make me feel majorly startled like usual. Today I just tried a quiet store and it's back to voices and the car feeling too loud. So my goal is to find the right balance of cannabis to help temper my reaction. My ears (specifically left) still feel itchy, fluttery, and weird around the cartilage so I realize this is true "H" (not just caused by anxiety). But it felt pretty wonderful yesterday to have the edge off.

PS I am in a legal cannabis state [wink]
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goodfella032

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Reply with quote  #35 
Great to hear that the gummy took the edge off. Thanks for sharing your experience with it,

SalFaz may I ask what caused your H?
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SalFaz

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Reply with quote  #36 
I think it’s all about finding the right THC / CBD Combo. For me, I’ll take higher T over H any day.

My origin is complicated. Perfect storm. Decades of concerts and T for prob 10 years. Lifetime of TMJ. Then took the antibiotic Cipro in nov 2017 and it destroyed my body to the point I now have fibromyalgia, neck issues, and an anxiety condition. I started to have ear fluttering / fullness / itchiness in March 2018 and then H came on after a concert Oct 2019.
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goodfella032

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Reply with quote  #37 
Thanks for sharing SalFaz...sounds like a storm for sure. It definitely seems like the H coincides with other issues that are occurring in and around the neck area, it's like the whole head and neck area get out of whack and it just takes one straw to break the camels back.

Stay strong and let's work on progressing out of this mess!
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