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keith

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Reply with quote  #1 
I have been listening to the pink noise CD through headphones for a few weeks now and have built up to sessions of 1 hour long. I have the volume at a fairly low level so I can watch TV while wearing them. The problem is I have noticed my tinnitus has increased slightly since starting with the pink noise. Its not bad but the whistling is louder. Is this normal? should I carry on as I am? or make some changes?

How did others find there symptoms when starting out with TRT?

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Debbie

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Reply with quote  #2 
Hi Kieth,

Sorry it's taken a few days for anyone to respond.
It is common for people to report here that Pink Noise or the noise from WSG's (used in TRT) cause tinnitus to increase.
I would experiment with the duration of listening & the volume to see if there is a point at which the tinnitus is not affected.
Some who have come to this board have stopped using broadband therapies because of this.
I personally used, & use other forms of sound therapy instead of broadband, so I'll leave it to those who have had this same issue with Pink Noise or TRT to tell you more about how they responded to this issue.

Debbie

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cbBen

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Reply with quote  #3 
My tinnitus increased the first few days of using WSG's but then calmed down to its baseline.
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LynnMcLaren

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Reply with quote  #4 
Hi Keith, (((( Smiles ))))

As Debbie expressed..

Quote:

It is common for people to report here that Pink Noise or the noise from WSG's (used in TRT) cause tinnitus to increase.



I really struggled with it as I had problem tinnitus in the first place that only got worse overtime before I tackled sound therapy..
But it did not stop me from trying to proceed with a therapy anyway.
I just had to do it at a very very low volume not just because of the T but my H was very bad at the time too..

As she also mentioned..

Quote:

Some who have come to this board have stopped using broadband therapies because of this. 


It can make one not want to do it, to go through it but..
A person can come out better with it in the end.
One really needs to tack their H first..
No matter how awful it may be.
Just take it slow and easy and build up to it..
There's a big storm out here..
Really big..
Hopefully the rain will make my tree's green again. (((( Smiles ))))

Try To Stay Well 

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aQuieterBreeze

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Reply with quote  #5 
Hi Keith,

I'm not in the medical field and have not tried the pink noise cd-
but wonder what you would notice if you were Not watching/listening to the TV at the same time?
While it could be the pink noise - I wonder if it could also be the TV - (or the combination) as some have noticed their t seems to react to the sound otf the TV as well. And for those with hyperacusis  - it is not unusual for many  to mention that the sound of TV is difficult to tolerate.

Is the increase/ difference in tinnitus that you mention noticible to you, after you have the headphones off for awhile? (Or is it something that seems present all the time?)

If I remember right (and please correct me if I'm wrong) you started listening to the pink noise in your car, and seemed to do all right with that. So if the t increase seems to be too much - I would wonder about trying it over some external speakers, at low volume,  for awhile and see if you notice a difference.
And then maybe after a little while you'd be able work your way back to the headphones again?
Just a thought. 

When I started listening to music again, some selections I listened to made my t more noticuble-
so I chose selections to begin with - that minimized that. And after awhile, I was able to listen to alot more in the way of music without noticing it having an effect on my tinnitus. And these days I can listen to even more, and at more volume as well. And many times (which is most of the time) don't notice any effect on my tinnitus.at all.

It's been  a little while since your post - hope you are doing better with this by now.
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markbergemann

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Reply with quote  #6 
My tinnitus got noticeably louder, maybe twice as loud, during the initial few months of pink noise therapy.  That was 2 years ago.  The tinnitus has stayed at that louder level, but my hyperacusis remains in a very livable situation.  I can easily live with very loud tinnitus, but I was at the point of becoming a hermit due to hyperacusis.  I now live a close to normal life, but must be ever careful, especially thinking happy thoughts about sound and potential sound.  I have found that is key to improvement and to avoid backsliding.

I self treated my hyperacusis using the network's pink noise CD.  My hyperacusis showed massive improvements every 2 or 3 weeks for several months.  Because of that quick improvement, I never did contact a professional.  I would advise others to contact a professional.  The pink noise is just part of treatment, and it must be used properly.  Happy thoughts about noise are even more important than the pink noise.  That's my experience.

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markbergemann

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Reply with quote  #7 

To expand my previous post, I do not normally notice my tinnitus.  Now that I think about it, it has probably decreased in volume this last year, but it is very difficult to make that comparison.  What I can say with certainty, is that during the first months of pink noise therapy the tinnitus was much more noticeable all the time.  Now the tinnitus is normally not noticed by me, which is how it has been for most of the last few decades.


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keith

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Reply with quote  #8 
Mark,
Thanks for your thoughts. My tinnitus has become much more noticable but like you it is not a major problem.

I also agree about the positive thoughts. I have just completed a course of CBT which has really made me aware of just how afraid of sound I had become. I have now learned to use positive thoughts and breathing to try and combat this. Sometimes it helps and I manage to calm down and stay in control and sometimes the situation just is to much for me and I have to get away from it. I think with time I will improve with this.

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Rob

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Reply with quote  #9 
The use of pink noise or the broadband noise emitted by the WSGs does not commonly cause tinnitus to increase, but it can and obviously does happen in some cases.  Typically, the tinnitus reverts to its previous level within minutes or hours.  cbBen's response is another common experience; that is, the tinnitus may increase or seem to increase for a short length of time but returns to baseline in short order and remains there.    
 
Keith, it's important to distinguish between using the Network's pink noise CD and TRT.  These are two different approaches.  The reason I put it that way is that while it is certainly true either can be used as part of an larger strategy to re-establish tolerance of sound, the broadband noise on the Network's pink noise CD is not the same as the broadband noise emitted by the wearable generators used in TRT.  The bandwidth of the pink noise CD is far more ambitious than that used in TRT; on the other hand, the wearable generators by General Hearing Instruments (as an example) have increases in amplitude (volume) at a couple of frequency points that are significantly more ambitious than the presentation on the pink noise CD.  It is possible that the wearable generators would not increase your tinnitus, even though the pink noise CD does, and I'd suggest that if the use of the pink noise CD results in the same increase of your tinnitus over a period of time and becomes problematic for you, keep in mind that you have other options.  
 
It's really great that your work with CBT helped you to become more aware of your fear of sound.  Those feelings are not uncommon for folks with hyperacusis to develop, understandably so.  Replacing cognitive distortions regarding sound with more realistic thinking can be an excellent way to put the brakes on the fear.   
 
Rob 
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markbergemann

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Reply with quote  #10 
This past summer I noticed my hyperacusis slowly getting worse.  Then after a 15 minute exposure (before I put in earplugs) at a church where the music and PA was too loud my H was much worse.  What I realized is that I had been slipping into fear of sound again, after having gotten past that fairly well before (I thought).  I again worked at treating sound as my friend and made steady improvement back to where I was.  I have since improved beyond where I had been plateaued, I believe due to more vigilance in not fearing sound.

Today I reached a milestone. I watched Avatar without wearing earplugs. First time I was able to accomplish that in years.

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Mark Bergemann
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Rob

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Reply with quote  #11 
Mark --

That is fantastic news that you could watch the movie without hearing protection.  I remember the first time I was able to do that again.  I went to a very long, boring movie and had the time of my life because I could tolerate it without wearing hearing protection during the film. 

Great work.  That's a real milestone.

Rob 
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Guflu

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Reply with quote  #12 
Wonderful wonderful!

I am going to watch Avatar tonight, in the IMAX theatre. I am bringing my earplugs which take out about 9 dB, but I am definitely only taking them in case it is very very loud, not starting off with them.

Will let y'all how things went. It has been almost two years since the T and H kicked in and I am still progressing, the T goes almost unnoticed nowadays... YAY.

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aQuieterBreeze

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Reply with quote  #13 
Guflu,

If the movie is too loud remember you have the option to leave.
It may also make a difference - or not, depending on the theater, where one sits in relation to the speakers - as to how it sounds.
Hope you enjoy it!
Glad you are doing well enough to give it a try.
I'm not nearly there yet, but happy to see how well others are doing :-)

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aQuieterBreeze

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Reply with quote  #14 
Rob,

You mentioned-

I went to a very long, boring movie and had the time of my life because I could tolerate it without wearing hearing protection during the film.


That must have felt really wonderful. When i read about you and Dan going to indoor movies, in Laurene's thread I believe - I thought, I'd never even think of it, for myself  -
But some of what i thought would be impossible for me before, is in the category of maybe - perhaps someday - and that's one of those.
Thanks for the inspiration.

And for going to a movie, that is something I'll keep in mind - like a concert or other place we may go - what we go see at a theater may make a difference. Sound tracks and musical scores can vary alot from one film to another.
And if and/or when i take that step- (I've not been to an indoor theater in years) I'd want to go to something that would not likely be really loud to begin with.

We are all in different places along this path....
and it is wonderful to see how much better things can get.

Wishing you, and everyone here - more improvement as time goes by.
There are ways through these challenges.
Thank you for being an inspiration,
and for helping keep this path lit with hope, knowledge, inspiration and insight.
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gardennut

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Reply with quote  #15 
Hi all, Speaking of trying things, can we talk about flying [ in a plane]? It's something I haven't done for years and would dearly love to. I've tried the Bose ear phone system and had a hard time with it. I could use ear plugs and muffs, but what about altitude agony?
Would wearing ear plugs make this worse? I recently read an article on the various ways people try to help their children and themselves with this. These are people without H or T. The suggestions are yawning, swallowing.
laughing [love this one, although one might be considered nuts, oh well ]and pinching the nostrils closed and pretending to blow your nose, very gently.
HOw do those who fly find the pressure issue........   Thanks ,   Donna

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Donna Keddie
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aQuieterBreeze

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Reply with quote  #16 
Donna,
you mentioned
Speaking of trying things, can we talk about flying [ in a plane]? It's something I haven't done for years and would dearly love to.

And you made me laugh - yes, astral travel would be quieter.....
I've not been in a plane in a long time either but some have.
Thanks for the grin....
And there are some threads and posts around here about traveling by plane.
Something I would keep in mind, if i were to travel by plane -  is that I have heard that some of the active noise cancelation headphones do not have much passive protection, and if the batteries go out,  one could be without the protection they were counting on - so if possible i would sugguest that people make sure to have extra batteries when relying on active noise cancelation headphones, for air travel or when using them for other reasons when it is truly necessary to have the protection they offer as well.
And it would be a good idea to make sure that the headsets would be allowed on the plane too....

You mentioned-
I've tried the Bose ear phone system and had a hard time with it.

Do you mean you tried one of  their versions of the active noise cancelation headphones  for flying?
Or some sort of earphones or earbuds, perhaps for something else?

P.S. While airplanes can be noisy - flying a kite can be a fairly quiet thing to do :-)
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gardennut

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Reply with quote  #17 
Hi Breezy, Thanks for your comments. Several years ago when I began to have trouble talking on the phone I was in a panic and wanted to try anything and everything. I had read about the Bose noise cancellation ear phones in the Newsletter i think, so sent away for them for a try. They gave me so much pressure the minute I put them on that I thought no, these are not for me. Maybe I should have persisted a bit but you know how it is when you're all stressed out. Back they went for a refund. I remember at the time someone from the company saying they are not designed for people with Hyperacusis although some find them helpful for that.
Have recently had a setback from being startled out of a half sleep by my barking dog neighbour at 12 a.m. and yelling at it to be quiet.Woke up the next morning with vile Tinnitus and much more sensitivity. Note to self. DO NOt YELL ! 
I have many relatives who live quite far away and that's why I'd like to be able to fly. I'm in central Canada and have a son and brother on the West Coast as well as friends. My mother and two sisters and a brother are on the East Coast. My 91 year old mother fles up here to visit me every summer. and sometimes the sibs too, which I appreciate very much. but I have never seen the West Coast. Was born on the East, lived there till early my early 20's.

Where do you live? If you'd rather not say that's OK.

Ciao, Donna








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Donna Keddie
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