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repairyear2011

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Posts: 67
Reply with quote  #1 
Hello Everyone at the network. I have again been distant from you. Apologies, I have isolated myself. I am lonely on this journey. I am not much better, marginally worse, reaching out a bit more for help in my town. I thought that I had things at a manageable level, I feel that I am wrong. My family are present in this experience and are helpful in my life to the best of their know how.

I have read some interesting things posted on the web 'in general' about H and T. Are we moving forward and learning? or are we simply documenting our experiences and allowing non sufferers to assume they know what to do / say once they have charged us $ for telling the 'the how it happened story' over and over again.

I have fallen into the drug trap, allowing my general practitioner to keep me dosed up and down. I have maintained this far too long, exhausted my finances and lost many friends along the way.

I have one thing to hold on to...hope. I hope that things will at least stay the same. The same is familiar, I don't think I am ready for things to change and get worse.

Much love to the members of this network. I know that some are old, and some are new and we are all unique in our experiences. I am working my way through the topics and reading about your experiences. The terrible occurrences of people feeling too isolated and this how it ends for them. This has to stop.

This is what prompted me to return to the network. This isolation has to stop.

Regards Jason


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Jason
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Rob

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Reply with quote  #2 
Welcome back, Jason. 

Rob
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fellfromthesun

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Posts: 34
Reply with quote  #3 
Hey Jason,

I hear exactly what you're saying. In almost the same place myself, and it sure can get dark at times. As a musician, the loss of music and sound as a source of pleasure, replaced by becoming a source of worry and pain, is almost too much to deal with.

This goes on so long, it's hard to have much hope, especially when one is older. My younger ears recovered quite quickly from a milder case of hyperacusis, and I wonder about how many people who have spoken about recoveries here will stay recovered for life, or whether it will come back to bite them again later.

Still, recovery is possible. It has happened for some people. We have to believe that and keep fighting. Maybe the day will come when it's just too much, but until then, be strong.

Gio
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Rob

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Reply with quote  #4 
As a musician, the loss of music and sound as a source of pleasure, replaced by becoming a source of worry and pain, is almost too much to deal with.

I can relate to feeling that way.  I was in the middle of working on a recording project when I got hyperacusis and I never thought I would see the inside of a recording studio again, much less record in one.  

This goes on so long, it's hard to have much hope, especially when one is older.

There is hope at any age. 

I wonder about how many people who have spoken about recoveries here will stay recovered for life, or whether it will come back to bite them again later. 

That can happen, but there is hope in that case too.

Still, recovery is possible. It has happened for some people.

You bet. 

Rob
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repairyear2011

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Posts: 67
Reply with quote  #5 
the days are long, the nights are longer, somehow the time passes. I want to 'be better', I aim to get better, thank you everyone for your support.

This week has been overwhelming, I am truly grateful.

j



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