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Rislaja

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Reply with quote  #1 
I've been having attacks of severe noise sensitivity for a few years now.

They are usually triggered by something: people whistling, two or three people (five at most; more than that and it's not as much of a problem) talking loudly at once, people talking and banging around at the same time. I'm also much more likely to get an attack when I've recently been startled. They are quite uncommon when I'm not around other people.

I usually can tell when one is going to strike about thirty seconds to a minute beforehand. I can stave them off if I can go somewhere completely quiet (or at least without people talking) until it's past. But it's hard to get decent silence in my house, and I usually can't stop it.

It's hard to explain what an attack is like, except that it's really really bad. It's like excruciating pain without it actually hurting anywhere (although headaches might happen), and it's accompanied by loss of emotional control, especially with fear and generalized anger. If I can't get to somewhere quiet soon, I can end up on the floor sobbing with my hands over my ears. I can say pretty definitively that I much prefer physical pain to an attack.

They can last anywhere from a minute to half an hour; however long it takes me to get somewhere quiet, without people around. As long as I can hear voices, it remains. I can usually eliminate noise somewhat by jamming my fingers into my ears, but not completely.

They've been increasing in frequency, especially within the last year. At first they were relatively rare (once per month-ish) and not that severe (just annoying and concentration-inhibiting). I never really paid them any heed until recently, as I thought they were normal until they became very obviously not.

So a few weeks ago, I looked up noise sensitivity in Google and found something on hyperacusis. I was quite grateful to find it; I thought I was going insane, and at least it's been documented and stuff.  I now need to make an appointment to get definitively diagnosed and treated, but I'm pretty sure that this is what I have unless I've misinterpreted the information about it.

It has been shown that I hear approximately twice as well as a normal person, and it seems fairly obvious that I'm somewhere on the autism spectrum as well.  I know both of these are also related.

So, er, does this sound right?
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LynnMcLaren

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Posts: 7,990
Reply with quote  #2 
Hi Rislaja, (((( Smiles ))))

Interesting question as autism is such an interesting subject for me..
As one who has gone through severe to profound for awhile hyperacusis..
Following my collapse, and then building my tolerances back over time
till where I am now.. And then dealing with haveing two children on the
spectrum myself.. Caused an interesing complicated dilemma for me...
Took me through new expirences and train of thought and years of researching into it...

The answer to your question is yes and no....
As autism is a list of symptoms and they are not allways the exact same..
As being on a spectrum one can exibit symptoms that another person diagnoised with autism may not have..

Like one can be sound sensitive and have a tedency for more auditory like
problems were another may not.. It effects people with autism the brain
ect... differently.. Like one child of mine was hypo while another was hyper..
One could block out sounds while the other one couldn't....
Hands over the ears bombarded with it..
Hideing from it..

And of course depending on where one goes with it..
Where one leans there are different thoughts on whats behind that...
What the probable causes are for that....
There are children with autism that do exibit auditory disfunction..
There are children also with autism that can have what we may call
classic hyperacusis disorder....
One with autism can also exibit signs of OCD, Tourettes, ADHD, ADD, the
list can go on and the realtionship between theses disorders/symptoms
and their relationship depends on where you lean with it....

It's complicated in the way of.......
How you see it .....
And following all the research into it from different sources..
M.D's ect..... 
And could one develop hyperacusis from a neurological condition...
Of course one could...
Why not ???  

__________________
Take Care

Lynn
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LynnMcLaren

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Posts: 7,990
Reply with quote  #3 
Plus... (((( Smiles ))))

Just in case you think I believe that Autism is strictly just a neurological
disorder... I don't.. It can involve the immune system , gut, gastrointestinal,
central nervous system all the way down to the very cells....

It can be a system wide involvement in breakdown of cause and effect...

And it can lead to many symptoms that manifest itself in a person..
I've read the findings on the myelin and different problems that have been
found in autistic children through research.....

And I know that sound sensitivites is a problem that autistic children
can have...
Some more/ worse then others it's a spectrum of symptoms..
And.. This is one of the reasons of the many reasons I have read over
the years why I believe so much in supplements.....

In the case of theses symptoms and disorders...
And I don't wait for all the research to catch up to my feelings on it...
I do what I believe I have to do right now before they say oh ya....
That I do believe would be helpfull and this is another reason right here...

http://www.autism.net.au/Autism_Causes.htm

All the way down to the very cells....
Just reading up on this condition you can find out alot....
With keeping an open mind that helps as things unfold overtime...
With new findings new research...
And sort them out and do what you believe is the most helpfull for you..
If you have autism... This of course will interest you...
And of course thoses with autism and sound sensitives and/or
hyperacusis.. Or unknown cause disorders with this effect....
From an auditory sound sensitivity neurological perspective...
Maybe biological involvement as well...
Central nervous system... Other....
It's just interesting and maybe helpfull as well... 

http://www.newsrx.com/newsletters/Pain-and-Central-Nervous-System-Week/2007-07-30/34073020071458W.html 

Good Luck To You.....
But for hyperacusis disorder...
Sound therapy goes along way..
I believe it helped my autistic children alot as well..
As I did pink noise therapy for two years....
They got some of that too....
One more then the other but whatever may help..
Right ?????

__________________
Take Care

Lynn
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