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Laurac1960

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Posts: 16
Reply with quote  #1 
I am currently experience unbearable hyperacusis, been grabbing a few hours of drug induced sleep at night.

The main problem I have is my whole body buzzes every time a neighbour has a tumble dryer or Hoover on, I literally jump out of my skin for hours.

Has anyone else experienced this? I do have a a spinal injury which could be altering the sensation maybe?

I am currently taking Valium and zopliclone but not much relief. I tried Propanadol but made no difference other than a headache and dry mouth.

Don't know how much longer before I see an ENT consultant but any advice is appreciated

Been a month now since I had more than 4 hours sleep and I'm desperate. The nights are the worse when I hear and feel buzzes from over 20 metres away that no one else can hear. I fall asleep listening to music but wake to the most awful hum/buzz every time. Whilst I've had bad nights, I've managed at some point to get a few good nights sleep in, I'm now at the stage where I can't eat even.

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supra97

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Posts: 16
Reply with quote  #2 
Hi Laurac1960, I"m sorry for what you are going through. I have been diagnosed with Hyperacusis for going on 2 years. I would find someone who has some experience with Hyperacusis IE: an ENT or Otolaryngolgist specialist.I have 15 decibel westone ear plugs they help in a lot of situations I have also been doing TRT very helpful for toleration. I have setbacks but I am better than 2 years ago. I also have severe cervical stenosis and lumbar. That diagnosis way before Hyperacusis.  My best to you Supra97.  
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Mark Fiorenza
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Laurac1960

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Posts: 16
Reply with quote  #3 
I've just cancelled a 2 week dive trip to Belize as the H was so bad I wasn't sleeping and eating. Going out was unbearable as everything was too noisy and AC units, shop lights and fridges just made my body tremble. I've lost tons of weight but become very isolated from friends.

I've been on an uncomfortable journey for months trying different medications, none of which helped and am now back on amitriptyline, Valium and sleeping tablets, but only in the evening.

I have also been fitted with a mouth guard as my ears were given the all clear and this has helped. X-rays of my jaw haven't highlighted any problems but my symptoms are similar to TMJ so I am sticking to soft food and experimenting with pillows and position. I have a referral to maxillofacial for further tests,

The best news is that I slept for a whole 8 hours two nights ago and 4 hours straight last night. I'm still buzzing away when I do wake but seem to be calming down gradually. I finally believe there is hope but it has taken from February to get to this point.

Now my challenge is to become accustomed to the noises out of the house (cars, planes and screaming children) so I can look at booking another holiday.

Whilst I believe I've always had a mild case of H from major trauma to my face and jaw, it became so much worse this year after a visit to the dentist and I do believe it was their work that left my bite slightly out of sync causing the H to get worse. It has started to improve with the mouth guard and having the repaired back tooth smoothed down.

I'm still waiting for physiotherapy and CBT but the NHS in the UK does take time to get these appointments booked.

Anyway, just wanted to share that things have quietened down and mentally I'm feeling stronger so others can see it doesn't have to be terrible all of the time. I have been blessed with family and friends feeding me and taking care of me when I've been so weak.


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