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Symphony_of_a_Butterfly

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Hello everyone and I am so glad to find this place and to finally talk about hyperacusis and how it has affected my everyday life.

I have been living with hyperacusis for as long as I can remember. I avoided going to shops, concerts, party's everything anyone in there 20's would be doing at least once a week but not me. It makes me feel depressed and anxious everyday, when I have to go out I feel sick, also having a diagnosis of Agoraphobia and Asperger's Syndrome doesn't help.

I can't hear people properly when talking to me, as it sounds as though everyone is talking to me at one go. I cant filter out the background noises and am distracted easily .  The car horns, car brakes, trucks, people etc etc play a huge part into the way  I feel after a day out. I go home and feel tired and stressed, like I cant focus on anything and at worst end up in bed early to sleep because of the awful headaches I get.

The other day I hurt my own ears while taking out a bowl, the noise of the bowls hitting of each other sent me off in a panic. Thats when I realised that I've had enough of the noise and have to do something. I have a fear of the telephone so I got my mother to phone hidden hearing for me, they straight away said that I had hyperacusis, they didn't even have to see me, they just knew. I am going for an appointment with them next week to discuss some sort of treatment and get my hearing tested. There is talk about going to see someone in the UK also but I shall wait and see what happens over the next few weeks. I',m in Ireland by the way.

Sorry for the rant, just been feeling awful lately, and now I finally understand why. I am happy to be here and hope to talk to you all very soon.

Kind regards,
Symphony of a Butterfly

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loudnclear

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Reply with quote  #2 

Hello Butterfly.  I am so sorry to hear that you are suffering, but glad you ended your post on a positive note - as hard as it can be.  I too am suffering with hyperacusis, and suffering in general, for four months, and am just starting to come to terms with how it is going to impact my life on so many levels.  I have a deep love of music and it is a major part of my personal and professional life.  But how it affects you socially and professionally is also profound.  What state do you live in?     

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Symphony_of_a_Butterfly

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I am living in Ireland, just altered my post before seeing yours lol...Also mentioned that I have Asperger's, or some may call it high functioning autism but really all the same. Do you work in the music industry? I still love music but listen to it very softly but never at night as I would not be able to sleep. Well as you can tell I don't sleep well as it is already 1.20 am here, and I am wide awake. It is great to hear there are others like me and I am not alone.

Thank you for responding.

Kind regards,
Symphony

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