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Todd

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Posts: 5
Reply with quote  #1 
Hi. My main hyperacusis symptom is ear pain that lasts days or longer after moderate sound exposure. It feels like a burning sensation in my ear. Is this typical for other hyperacusis sufferers in the group? From reading this forum I understand that people get more sensitive after setbacks where loud sounds give momentary pain, but do any of you typically get ear pain that hurts constantly for an extended period of time even when you are in silence after loud sound exposure?

If so, how long does the pain last? I had a major setback yesterday when someone slammed down the toilet seat while seated in the next stall of the bathroom where I work. I had earplugs on but the burning sensation in my ear is still going on over a day later. It feels more painful than prior setbacks, so I am discouraged and fearful that it won't get better. Do any of you have continuous ear pain that lasts a long time after a setback even when you are in silence? What's the longest its lasted, weeks, months, years?

Thanks. Other than this group is seems like there is no one to talk to. None of the doctors I've seen have any clue.
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Margy

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Reply with quote  #2 
Hi. My experience of hyperacusis is that my ears are always somewhat sore, kind of like a low-grade ear infection. When I have had some unfortunate noises happen, my ears feel sort of burned for the rest of the day and often the next day or so. But it's difficult to say whether they just remain sore by themselves or if they are being irritated over and over every day and the soreness just builds up. I do know they get more sensitive every time they are hurt during a day, but a good nights sleep heals them somewhat.


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Aplomado

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Reply with quote  #3 
Todd, that sort of thing happens to me as well.  Sounds normal.

For me, when sound therapy slowly improves my tolerance, the pain decreases and goes away, and it takes a lot louder things to set me off.  I don't know what therapy you are doing.
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jeffinatlga

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Reply with quote  #4 

Todd,
  I have hyperacusis and my doctor says that I may have recruitment as well. I always have a tingling, mild pain going on that feels like it could easily be aggravated to more pain. When I have a setback from loud noise exposure, it usually lasts for 2 to 4 days and then goes back to my normal "base" of tingling and mild pain. 
  I have custom molded ear plugs that I wear when I know that I am going to be exposed to noise above my threshold (music, vacuum cleaner, lawn mower, loud restaraunt) but I only use them for that because hiding behind ear plugs for "normal" sound levels can make things worse. Hope I was of some help.

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Kribu

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Posts: 43
Reply with quote  #5 
YES! Todd, I am having a flare up now.  Fifth day of burning feeling deep in my ears, increased ringing and I just had a scary morning awakening to "phantom radio".  It really freaked me out this time. Thankfully, I had already read the article in this network about it, so "knew" I wasn't going crazy, but it took a few minutes for that to click in, and before that, I was pretty scared.  Once I realized it, I was just upset because I can't control it.  Same with this pain, burning.  Its exhausting.  I'm trying to keep busy during the day with little projects (I'm out of work at the  moment due to this) and that helps.  Its the undistracted moments that really weigh on me.  I wish I had answers for you, but reading your post this morning helped remind me that "this is what it is".  I am wondering if anyone has found relief for the pain/burning through holistic medicine? (over the counter pain meds dont help). I was hoping this flare up would be brief, but a week of very stormy weather seems to not be helping matters. (my hypothesis of Low/High pressure systems--could be bunk).  Thanks for sharing.
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Todd

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Posts: 5
Reply with quote  #6 
Thanks, everybody, for your perspective. Even though I don't wish this on anyone, it helps to know that, like you all said, this is just what I should expect with hyperacusis.

I am not on any sound therapy yet. Three different head and neck doctors I've seen don't think it is helpful,though I've seen here that a significant number of people report some relief with sound therapy.

jeffinatlga, I wish I could use my earplugs sparingly like you do, but it seems like within a few minutes of taking them off, there is some loud noise that causes a setback. I do take them off when I am around the house when it is quiet.

Kribu glad my post helped a little, sorry you are going through a painful setback. I hope it's gotten a bit better by now.
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smuth

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Posts: 11
Reply with quote  #7 
Hi

My hyperacusis started 5 years ago, i have pain even in silence that last for 30 minutes to 5 weeks depending on the volume of the sound that cause the setback. i have improved 90 % and almost pain free for a year. Now i am fighting a setback again due to a loud noice, thankfully the sound sencetivity is not as bad as it used to be.

My advice: Start to build up tolerence to everyday noice, little by little. When you feel pain, rest using earplug or og to a more silent room, when the pain goes away try again,and again and again.. also use background sound during night, if you can tolerate sound generators use it as much as you can. Rest you ears when you feel that you have to... Do not stress, if your sound sensitivity is bad it will take a long time to get 90-100% better cause of all the setbacks...


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Aplomado

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Posts: 710
Reply with quote  #8 
Quote:
Originally Posted by Todd
I am not on any sound therapy yet. Three different head and neck doctors I've seen don't think it is helpful,though I've seen here that a significant number of people report some relief with sound therapy.


Todd- I can assure sound therapy does work for many people with noise-induced hypearcusis.  If a doc says it doesn't work, the doc is incorrect.  I am not trying to be rude, but typically docs know nothing about hyperacusis.  Sound therapy does work for me, and I got hyperacusis from gunshot noise.  Unfortunately, it does not appear to work for everyone.  What caused your hyperacusis?  If you have noise induced hyperacusis, you absolutely should start sound therapy and see if it works for you.

If your hyperacusis is caused by something other than noise exposure, I don't know if sound therapy is an effective treatment or not, but it is at least possible that it may help.
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Aplomado

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Posts: 710
Reply with quote  #9 
Todd, I recommend you get evaluated by an audiologist trained in sound therapy for hyperacusis.
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