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Rob

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Posts: 4,049
Reply with quote  #1 
First, go to a doctor and get a proper diagnosis.  This can take time and repeated visits to several doctors.  I know a very well-regarded neurotologist who is very knowledgeable about many ear disorders and knows next to nothing about diagnosing and treating decreased sound tolerance.  It can take time and patience to find a clinician who knows what he or she is talking about.  But they are out there. 

Second, get on the field -- and stay there.  Work with your doctor to find a strategy that is well-suited to you, get into treatment, and work at it everyday.  Consistency is key. 

Third, Internet support boards like this one are filled with people who have never gotten off the bench as well as with people who have practical, sensible suggestions based on experience.  It can be difficult to distinguish between the two.  If you are convinced that the previous sentence does not apply to you, my advice is to stay off Internet support boards. 

Fourth, you have a health challenge you can improve.  Take some time and feel as prodigiously bad for yourself as you need to.  But when you miss your life badly enough, make a commitment to do whatever it takes for as long as it takes and act accordingly.  Working consistently at treatment is one key; not giving up is another.  When some time passes and you begin to see improvement, you won't want to give up.  

Fifth, if your strategy is working in some respects but not in others, be open to making adjustments.  

Rob

  

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Paulbe

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Posts: 176
Reply with quote  #2 
You know Rob, for all the argy-bargy that you see here at times, this is one of your best posts.
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Aplomado

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Posts: 711
Reply with quote  #3 

Good post Rob.

I will never understand people who complain won't try treatment.

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fellfromthesun

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Posts: 34
Reply with quote  #4 
May I ask you an honest question, as a hyperacusis suffer who also has such extreme ear pain and trigeminal Neuralgia that I cannot use your buds, earplugs, or headphones of any kind, is there any treatment out of there other than TRT (which uses the above)?

I have been working with constant sound exposure and attempting to boost sound tolerance levels in my home environment on my own, and I've also tried various pharmaceuticals for the pain, but have seen zero improvement in the hyperacusis or tinnitus after a year.
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sojourner

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Posts: 7
Reply with quote  #5 
Dear Rob and others,  All that is fine, if one is generally healthy, apart from the ear problems, and can walk.   I am so crippled with M.E. and fibromyalgia, and have 3 wheelchairs and a little disability scooter and am in so much bodily pain, that the thought of various continual appointments at doctors/hospitals fills me with dread.   I cannot tolerate noise of any kind, and only very short periods amongst people.

I did have an audiologist come to the home once, and yes, she was quite helpful, but that was years ago.

I also have voice loss for long periods, so that makes explaining to any doctor, almost impossible, especially with deafness as well as tinnitus and hyperacusis.    So thankful for the use of a computer, though hands and fingers extremely weak.  Lots of eye troubles too, but still able to read a little.   I have faith in the Lord Jesus Christ, so that holds me up.  

Nevertheless, I do hope that the majority can find some help with increasing their tolerance levels of noise, because it is a very noisy world out there.

So glad to know there is a Hyperacusis network to share with others.

sincerely, sojourner


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Rob

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Posts: 4,049
Reply with quote  #6 

People who are sitting on the bench use phrases like “I can’t” or “I won’t” and sometimes regard themselves as exceptions.  Here's how I see it:  If you have two ears, you fit right in.  Find a doctor who knows what he or she is talking about, find a strategy, get on the field, and think in terms of what you "can" do. 

The most important step someone with hyperacusis can take is the step to get off the bench.  It is a step we must take in our minds, not our ears. 

Rob     
    

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kendaleigh

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Posts: 162
Reply with quote  #7 
Sojourner - i'm not sure if there is a way through the hyperacusis network for you to email me, but if there is then do email me because I just wanted to send you a personal message with regard to the fact that I've been praying for you today. K x
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