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BonnieBeth

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Posts: 553
Reply with quote  #1 
Hi folks,

It's been ages I know, since I've posted here.  Lots has happened since.

My hyperacusis is pretty much "cured" (although I really believe there is still the possibility for flares). 

While I can't go into small areas where music is blasting (wouldn't want to anyway...) my life is pretty much back to normal.  I don't hear the screeching "SSSSS" sounds anymore.  I can walk on busy streets and boulevards, even main highways and trucks and motorcycles pass by without too much fuss.  Yeah, it's bothersome, but there's a big difference between bothersome and agonizing pain.  It used to feel like my ears were getting a root canal.

Most important, I never wear the generators anymore to go to my Squaredance class, or any other classes, and the New Year's party went fine without any generators or earplugs.  I went to a very loud convention and didn't really notice it much.  There are still things I can't do, like loud movies and concerts.  But there's so much more I can do now.  I'm very satisfied overall with the results.  Without TRT I don't think this problem would have gone away on its own.  It took years though, alot of patience and alot of help from very understanding people on this board.

As for the law suit, it's all public knowledge now so I can post who it is, since it's become a huge case here in New York with the DA's office.  My lawyer was Marc Bernstein, of Bernstein & Bernstein.  I was only awarded a small settlement award for the hyperacusis that I got from the MRI.  To date, I have only received one third of my reward, the rest was stolen by Bernstein.  In fact, Marc Bernstein ripped off many of his clients, to the tune of $2.2 million.  Seems he took the award money and either gambled it, invested it, or did whatever he did.  We are all part of this lawsuit.  I was one of the witnesses and appeared before the grand jury last year.  If it does go to trial I guess I'd have to appear again.  That would happen if he pleads not guilty, although I don't see how he can since the evidence seems insurmountable and incredibly strong. 

He's already been indicted, he's been in jail a couple of times, and we're just waiting to see how his lawyers will plead.  His legal team has delayed many times already.  I'm used to it.  I really do hope I get the rest of the money, but there are many others who were ripped off, too.  Anyone can Google "Marc Bernstein" AND "Bernstein & Bernstein" and read the dope on this guy. 

I had other health issues - 4 herniated disks in my neck last year.  But the physical therapy I received helped alot.  BTW, herniated disks can definitely bring back a flare of hyperacusis, it happened to me but it's better since the therapy.  Right now I'm dancing and doing my walks, and I'm ok, but the weather's getting better too.  These things run in cycles, so I always count my blessings when they're good!

The real problems are money.  I won't even go even go into the details.  A horror story, that.

Hope all is well.  Special hello to Dan and Lynn and Rob.  Hope all is going well with both of you, and everyone here...

G-d bless...

Bonnie

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Rob

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Posts: 4,049
Reply with quote  #2 
Well for crying out loud.  Look who it is. 

Great to hear from you, Bonnie.  Who loves ya, baby.

Rob
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Johnloudb

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Posts: 1,951
Reply with quote  #3 

Hi Bonnie,

Thanks for sharing your success story. Way to go! That's quite an achievement as you well know, and it gives me something to look forward to.

John

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saab1216

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Posts: 95
Reply with quote  #4 
Bonnie, You said that herniated discs would bring hyperacusis back`? What about it being the cause for Hyperacusis? I have bad neck problems with pinched nerves.
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BonnieBeth

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Posts: 553
Reply with quote  #5 
Lovin' ya right back Rob!  How are the Sheckys?  Most important, how are you?  I hope you are doing great and I have much to catch up on.

John, it looks like you are a newer member.  I first came to the forum almost 5 years ago, in July '05.  I don't know if they archive that far back but in some of my posts I felt so hopeless and scared, I never thought I'd get well.  Ask anybody here...I was going crazy with worry.  Rob and many others were very helpful and supportive.  Whatever your situation, with the right therapy and keeping a positive attitude (especially during setbacks) you will improve and maybe even find a cure but it does take time and patience, which with this condition can be very difficult.  Stay focused and keep a positive outlook, no matter how hopeless it seems at times.

saab, maybe if you see a chiropractor, physical therapist or an orthopedist who specializes in herniated disks you can ask if that could be causing your hyperacusis.  That wasn't true in my case because I only recently was diagnosed with the disk problem.  I wouldn't be surprised if there is a synergistic relationship between neck problems and hyperacusis.  The ears and neck are all connected.

The one thing my p/t did tell me is that neck problems can affect your shoulders, arms and hands and cause a feeling of having a dead arm, with alot of numbness.  When I went to San Francisco and Palo Alto last October I had terrible neck and shoulder pain, so it was difficult to enjoy the trip.  I was on a lot of painkillers and muscle relaxers.   David was driving and I fell asleep in the car during the wine country tour; the drugs made me pass out.  My hearing was fine, though.  Didn't need the generators or earplugs even once on the trip, not even at Fisherman's Wharf.  But the jet was very noisy and that bothered me.  It was the first time I was on a plane in ten years.  I think I put earplugs or headphones on during the flight.  That was about it.

Bonnie



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aQuieterBreeze

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Posts: 2,083
Reply with quote  #6 
Dear Bonnie,

It's so kind of you to write about what you have been dealing with, and of your improvement!

I think, in my own case - i will always have to be a bit careful around sound, (Loud sound in particular) As I have said before,  if i ever get to the point of trying to go to a concert , I'll be ready and willing to leave if it's too much For Me- no matter what the tickets cost - And going to see a fireworks display is something i doubt i will ever do again......
But so much Is possible..

And Though i still have a long way to go-(and am not ready for loud environments yet )
I am doing much better than before, and continue to notice more improvement all the time....
And your message brings great encouragement.
To know you were doing pretty well last year, (about a year or so ago) with what you were able to tolerate in the way of sound,  but even better now - is wonderful!

You did a very  noble and wonderful thing, by going about your lawsuit - about that MRI - in the manner you did - Instead of staying quiet about it -
(Not everyone would have handled it in the way you did - and it is to your credit that you put others first )
I sincerely hope that things work out for you in the long run, as far as all the legal stuff goes.....
you certainly did not  and do not deserve the extra stress all this legal mess must have brought.
And i hope other things in your life - bring you great joy. That  you do deserve!

Sometimes having these challenges can really make us appreciate what others take for granted in the way of sound, and other things in life as well ------
May more of the world sound like beautiful music to your ears, as time goes by....
Wishing you the very best,
aQB
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Marilyn

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Posts: 194
Reply with quote  #7 
Bonnie,
You've just warmed my heart.  So glad you're doing well.  That's an encouragement to the rest of us! 

P.S.  Rob was the first person who posted to me when I first joined the message board.  I asked a question, and he so kindly and knowledgeably answered.


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~ Better days are ahead! ~
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BonnieBeth

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Posts: 553
Reply with quote  #8 
QuieterBreeze,

I love your posts.  So glad to hear you are doing better and it's great that you are keeping an upbeat attitude about your hyperacusis.  Even "regular" folks without our condition react badly to loud fireworks, so just keep posting and doing what you're doing.  Happy for your improvements, let that be an encouraging sign for you.  I hope you will continue to improve and recover completely.

Marilyn I don't remember you so you must be new to the board.  I joined in 2005.  I guess I have some catching up to do...glad you found my post helpful!  What is your situation?  Do you have hyperacusis or tinnitis?  John, I am so happy to be back to a normal life, looking for work and not focused so much on the fear of sound.  Hopefully, everyone with hyperacusis will eventually have access to a good TRT clinician.  With time, it works.

Bonnie

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aQuieterBreeze

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Posts: 2,083
Reply with quote  #9 
Dear Bonnie,

Thank you for your good thoughts and wishes.
And your kind words about my posts.
What you said is appreciated.
And thank you - for coming back for awhile
and enlightening us with your knowledge and experiences,
which you have shared in several threads.
You have shared some insights that only you could give -
and your perspectives are valuable.
And appreciated!
It's always nice to see you "here".
Wishing you the best, of everything life can bring,
aQB
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