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Summerdaze2

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Posts: 51
Reply with quote  #1 
Hello everyone, I have not written a post on here in so long, its pretty crazy. I have H and T and was diagnosed in 2009. I got this terrible condition from Acoustic Trauma. I have been dealing with it for years. I have done the Trt traning and have improved greatly over the years. I am a total music lover and have finally been able to go to concerts again with hearing protection of coarse. Since my tolerances have improved so much the volume level on my stereo has also gone up. A few days ago I was listening to music and it was up loud since I was in the kitchen. However, I had to go get some thing out of my living room where it was playing, usually i have someone turn it down before I go in there, but this time I didn't and went in grab what I needed and went out. This is where my problem arises. Ever since then I have had burning ear pain off and on. I have had setbacks before, but not in so long I almost forgot how bad it can be. Has anybody on here improved so much and then one day have a bad set back? How long is this one going to last? Should I start TRT all over again? So many questions I know. I would greatly  appreciate any info on this. I know how bad this condition can be. But, I do know I have to stay positive. Thanks for listening.
 I just wanted to clear up that I did TRT on my own with an MP3 player prescribed to me by clinicians at OHSU in Portland, OR. My therapy consisted of nature sounds where I started at a low volume and gradually increased the volume when I felt I was ready. This took a very long time. I also only wore hearing protection as needed so my ears wouldn't get more sensitive, but I wore them a lot at in the beginning. 

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Summer Relken
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Sadears

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Posts: 62
Reply with quote  #2 
Hey there,

Sorry to hear about your setback. I am not the most knowledgeable on the specifics of hyperacusis but please know that set backs happen to everyone, it's very normal. I've had H since July, been doing trt at home as well and I've had set backs from things less loud than a stereo, I'm waiting for when I can go to concerts with ear protection again.. I would advise to continue the trt as you did in the past, I'm very sure you will recover. There have been many people who had severe H with setbacks and made a recovery. Good luck to you!

-Adam
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olms

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Posts: 321
Reply with quote  #3 
Summerdaze2:

I had a similar situation. I had not played my folk guitar in 10 years. One day someone said, "Oh, you play the guitar!" Well, I guess that starts the adrenalin, which covers the pain, and common sense, so I slowly got back into it like an idiot.

I played at low volume for a week or two, until one day I noticed my ears were shot. And I've never picked it up again, and that's been several months, and I still feel like an idiot. My ears aren't back to where they were.

I think when our ears improve a little bit our common sense goes out the window. I can't even hum a tune now.

What helps me when I have a setback, is I put my ears under and extended heating pad for about 20 or 30 minutes. If medicine and noise constrict the blood vessels to the inner ear and cause ear damage, which they do from lack of oxygen, why wouldn't heat expand the blood vessels to the inner ear and put more oxygen and nutrients to that area and help the ears? I found that it does.

(When I mentioned this to someone else on the board just recently, the reply was, "I do try hot bottles on my ears and it's heaven!! would 100% recommend that to anyone else as well.")

I would recommend that during a setback, rather than sitting around waiting for the hope improvement to occur over time. I've found that a heating pad speeds up the hoped for improvement process by putting more oxygen to the injured area faster than mother nature can do that.

Same way as a heating pad can improve a sore arm or leg or back, or even mild chest pain as I've had from time to time. It's all the same thing. I just put the heating pad to where the pain is (with the chest I can also take medication that I have that helps.)

I just keep the heating pad hooked up to near my bed and cut it on as soon as I lie down. 

(In addition to a heating pad, I read on this website that a warm to very warm bath helps h. And I then realized that it did, with the warm water expanding the blood vessels to the ears and head.

(I then tried pouring a warm to very warm plastic cup of water on my head while taking a bath, on in the kitchen sink during the day, and that helped my ears. I now use a wash rag and tilt my head back, and squeeze the water over my hair and back of my head, and that helps.)

(A pack of frozen ice pellets, for a minute or so on each ear, from the ice box during the day cools down my hot, irritated ears, and makes them feel calm.)

As for the heating pad, I moisten the foam insert, for I find moist heat helps my ears better than dry, put the pad on my pillow, lay my right ear on that, put the rest of the extended heating pad (22 to 24 inches sold at drug stores) wrap the other end around to the top ear, put a partial phone book or catalog on top of that ear to hold it down, put a clock nearby, and try to lay there for from 15 to 30 minutes or more.

But doing this early in the morning before I really get up, just moistening the pad, I get it 30 minutes while I'm still half asleep, and I haven't really done anything. Same thing when I go to sleep at night. I'm going to be laying there anyway, half sleep, so I'm not really going anything. I can do this at noon, also.

Hot pickles, etc., on food helps also, with heat from the inside out, but I've found that it can give me stomach problems so I've had to cut back, but others can try it.

Also, when I'm complaining or worrying about my ears, anytime, I tell myself, time to quit just sitting on the couch complaining; time to cut on the heating pads, and do something constructive for those same next 30 minutes rather than just worrying.   

                Tom

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Aplomado

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Posts: 711
Reply with quote  #4 
Yes, I have also had a bad setback before.

Restart your TRT it does work again.  I am improving steadily (AGAIN!!!!)
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Summerdaze2

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Posts: 51
Reply with quote  #5 
Thanks so much for the responses. I am starting my Mp3 player treatment again and watching the noises around me, but also not trying to over do it with hearing protection. I have also tried the heating pad thing, but have found that I like ice more. The ice pack has  always been my best friend through out the years of having this condition. It really does calm the ears from the searing, burning ear pain. However, I have recently been drinking Chamomile/ lavender tea. I read that it calms the nerves in your body and it seems to also help calm my ear nerves. You may want to try it. Thanks so much again. I have had this condition for many years and if I can be of help in any way just let me know. 
Ps. Sorry it has taking me this long to post, I have been really busy, which  doesn't help my ears either. 

Stay Positive!! Peace, Summer

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Summer Relken
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Quint

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Posts: 39
Reply with quote  #6 
Hello Summerdaze,

I sympathise with your predicament.  I had some dental treatment in May this year and since then I have been unable to listen to a TV.  Phones and car stereo's are fine.  But TV gives me a burning sensation and fluttering in  my ears.  Its very bizarre that only some noises nother me.  I am just back from seeing Jastreboff and he told me the dentists drill didnt affect my ears as I didnt have a reaction until 24 hours after but I have my doubts.  It could ne just a virus I have.  Does anyone have any thoughts?

Thanks

Derek

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Derek
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kdevore

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Posts: 29
Reply with quote  #7 
I am sorry for your set-back.  I have had hyperacusis since 1995.  I had several setbacks over the years, but it always would return close to baseline after some time; however, 3 years ago, I went to see some live music for the first time (with ear protection).  This was after having several other loud noise exposures over the previous couple of weeks.  In retrospect, it was not a good decision, but my love of live music overcame my common sense (i.e., a person with H should err on the side of caution when it comes to exposure to loud noise). I had a terrible setback and still have not recovered.  My H is worse than it was originally in 1995.  I have tried TRT multiple times, but have a lot of trouble with high frequencies and get a burning sensation in my right ear pretty quickly after using TRT.  I have customized the frequency to cap at 2000KH and am able to tolerate it more, but still with some difficulty.

Having been through what I have been through, I would advise a person who develops H and then improves to be careful (not fearful).  Everyone is different, but in my experience most can recover from most setbacks by taking it slow, using sound therapy, and avoiding really loud noise.  Ice has helped me a bit too.  Good luck in your recovery. 

KD 

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Ken Devore
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felinefine

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Posts: 4
Reply with quote  #8 
Summer,

Has your fullness ever gone away at times? It is my most bothersome symptom, no hearing loss says audiologist, though that right ear just feels numb and "off." I also have lyme disease and got this symptom in my right ear after a firework. I wonder if it is from the added inflammation from that noise exposure, after an already inflamed brain and ear due to disease? I am still dealing with it 5 months later. I'm trying to make it better if all possible. 
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Johnloudb

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Posts: 1,951
Reply with quote  #9 
Hi Summer,

I think the music hurt you cause you just weren't used to listening to it that loud when you walked into the room.

I can relate and when ears get hurt it's good to spend more time with sound enrichment (nature sounds) and also to not avoid loud sounds for a period but don't over protect. You made great progress before so you can do it again, no doubt!

It's taken me a couple weeks to a month to recover from most setbacks. Sometimes just a few days, but I don't those setbacks. So, stay positive, it's so important!

Best,
John
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