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youngsquire61

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Reply with quote  #1 
I have had H for about 2 years now. It was brought on by exposure to loud music because of my background as a musician/audio engineer. When I first started having symptoms all my doctors said that I had TMJ. And as a result they gave me a fitted mouth-guard to wear at night. Over the next couple months my symptoms went away -- later finding out it wasn't because of the mouth guard. So I started making music again, nonstop, every day -- in recording studios, at home, listening to music in my car, etc.

Then one day, after working on a song for an entire day, my symptoms started up again, then I went to see more doctors. After again getting the runaround from many of them, I finally stumbled upon one that said I had H, and he sent me to a specialist. The specialist gave me an mp3 player of Pink Noise and White Noise. He basically told me that I needed to do two things: one, listen to these sounds for eight hours a day, each track individually until I can listen to it at a reasonable level, and two, protect my ears when around loud noises. This seemed simple enough, I thought. So I decided to give it a go, later finding out that it is not simple at all; in fact it's quit the opposite.

Between then and now I have had many setbacks ranging from motorcycles to car stereos, from construction work to loud TV's, from doorbells to an intercom at a local bookstore -- each time setting me back to square one, and each time making my condition worse.

Now I wear earplugs whenever I leave my house. I understand that over protecting my ears can be destructive, but I don't know what else to do. I could be walking down the street and everything would be find, until one day some large SUV drives by going mach 5 bumping the newest Two Chainz single as loud as a Black Sabbath concert at the Ohio Stadium during a nuclear holocaust. Then I'm back to the drawing board.

My point is this: sound is unpredictable when living in the 21st century. So how can I know when or where to protect myself? I don't. And that's why I can only do two things now: one, sit in my room and listen to my sound therapy, and two, be out in the world and wear earplugs.

This would be fine. I could live with this. But the truth is it's not working; I am getting worse and worse. Before I used to be fine with any kind of noise except noise coming from speakers. But now it's any type of noise that gives me setbacks and pain no matter where it's coming from -- I have even grown intolerable to the sound of my own voice.

I have been on a continuous downward slope and I don't know how to reverse the process. Now I'm thinking that I've already had too many setbacks to recover.

Doctors can't tell me anything, friends and family don't understand, and the worst thing about it is it's getting worse. So here I am on this forum for the first time. I am looking for any type of help, advice, or even just some understanding to maybe help me get on an upward climb rather then a downward slope.
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phacker

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Posts: 143
Reply with quote  #2 
Hi Young Squire,

I understand what you are going through as I have been down your path. I have had H & T for about 15 years at different levels. I find the most difficult part of the recovery process from H is knowing what sounds I can handle and what sound are going to give me a set back. For example, about 3 weeks ago I went for a walk and there was a guy mowing the lawn and I decided to challenge the sound of the lawn mower without ear plugs. I walk past the lawn mower and now my ears are in pain, so I start running with my fingers in my ears trying to get away from the mower sound. I made a mistake as I got a set back, but it only lasted a couple of days. I have been there where I could not leave the house without using ear plugs and my own voice hurt my ears.  I am making slow progress with TRT with the use of ear level noise generators. I can leave the house without ear plugs but the plugs are in my pocket and I am quick with the fingers and feet if needed.  

Pink Noise and White Noise are both good options for sound enhancement.  I question the delivery method of using a MP3 player as I believe the best method is to use ear level noise generators. You need to consider starting over with your sound enhancement program and only doing what you can handle. If that is only one hour a day at a very low volume that is good and build from there.  The typical time to recover from H is about 6 to 8 months and some times longer. Get your mind set for a long recovery process and you need to find value in small improvements such as sounds not bothering you from running water, paper, birds, etc. I was excited when I could flush the toilet with the lid up as I was always putting the lid down before I flushed to quite the sound.     

The use of ear plugs full time when you leave your house can be an issue as it could make your H worse because the brain could turn up the central gain. When you start building your exposure outside of the house, maybe you start with cutting the plugs in half, so a little more noise enters and start removing the plugs in areas you are comfortable where you are not going to get whacked with sound. I believe to improve you do need to stay away from setbacks, but there is a fine line of uncomfortable sound exposure that you need, so you can move forward and tolerate more sound. A trained audiologist in TRT may be able to help you discover the line, so you can improve.

Is your specialist trained on TRT? 

PH
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youngsquire61

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Reply with quote  #3 
PH,

Thanks for all your advice. To answer your question: yes, I believe that my specialist was trained in TRT. But, unfortunately I don't see him anymore due to financial issues. Anyway, I will certainly look into "ear level noise generators." If anybody recommends any specific models in particular, please let me know.


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phacker

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Posts: 143
Reply with quote  #4 
Hi Young Squire

Below is a thread last year from a member SandyHendy who recovered from H and said the cost for the NGs was under a $1000 each: 

I absolutely love my Audifon Sueno S noise generators http://www.audifon.com/?id=470
after three months of using them. I've skyped with Marsha Johnson in Oregon a few times and got the generators from a local audiologist here in Hong Kong called Keri Fung, who is TRT trained I think. It's taken me 15 months of up-down-up but I'm pretty much pain-free now.

Another member Scott reported that many states have finicial aid programs for hearing aids to help people get back and his NGs were clasified as hearing aids. 

My NGs cost $2000 each.

Hope this helps you get on the road to recovery.

PH

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